Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-25-2013, 12:40 PM #1
sarahliz sarahliz is offline
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sarahliz sarahliz is offline
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Confused duplicate: Does anyone relate to tbi

I am the caretaker of a tbi survivor. He's had this injury for a little over 6 years now and I have been his home health aid for a little over 8 months. He had OT and PT and speech therapy in the past. And continues to have OT and PT as of now. Also we do adls and stretches at home. Matthew is unable to walk and has little control over limb movement. Matthew is pretty cognitively aware of his surroundings, is able to play card games, and responds with hand signals when asked questions or when spoken to.

I just want to know if anyone out there has suffered the same limitations or knows someone who has suffered the same, and what their recovery has been. Like I said, I have only been with Matthew for about 8 months. He is my first client to have a tbi, and I want to know as much as I can. Is there any hope for further recovery??

please share your stories!!
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Old 10-26-2013, 12:32 AM #2
Mokey Mokey is offline
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Aren't you kind to try to learn as much as possible!
My injury is not like Matthew's, but continual progress(at varying rates) occurs until humans die. That is how the brain works.
Hope he continues to improve. Lots of stimulation and challenging the brain!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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