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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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10-29-2013, 06:39 AM
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I've ebbn told I have vestibular migraines, occipital neuralgia, and mayo facial ...., slightly bulging disc
I've had two nerve blocks for the occipital 2x. It was euphoric like as the needles went in my head. It drew me away from the migraine. The first lasted 3-4 weeks second 4--6 weeks. I do physical therapy on my neck and see a pain a management doctor this week. ANYTHING ABSOLUTELY TO GET RID OF THESE HEADACHES! Exercising (restrictive, chair, lying down, holding onto wall), water, vitamin regime, keppra. Tell me what u do, how long has it been? Any suggestions? I have never been a big drinker, drug addict, or inflicted injury for purpose but feeling desperate. I can understand why some people resort to these thing. Peace and healing, Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | MiaVita2012 (10-29-2013) |
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10-29-2013, 08:30 AM
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living_dazed,
disc injuries are tricky and then add PCS to the mix--no wonder you are suffering. Acupuncture helped with my daughter's headache. We started at Stanford Integrative Clinic, but the drive was too long. Once we realized how much it helped we found someone local with a lot of great references. She goes 2xs/ week. For me, icing always helped by bulging discs. --Hopeful |
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10-29-2013, 01:40 PM
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Co-Administrator
Community Support Team
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Ask PT to check for trigger points in your muscles, if they don't know much about it, find another PT person..
Do you know if your cervical spine /disks have any issues (bulges/ tears / herniations etc) or is it mainly soft tissue/myofascial based pain? Triggerpoint chart for upper body referred pain http://www.pressurepointer.com/pain_reference_chart.htm
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Search NT - . |
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10-29-2013, 04:21 PM
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I am in the same situation! I have one more shot of cortisone left for my neck until the shot's will no longer be an option for me. I have bulging disks C1-C5 and I get really bad Myofacial jaw pain as well. I am dealing with this BAD today from the weather I believe.
The shots only last short term so I turned to acupuncture for the chronic pain with my SNRI but I think I will be needing more for my pain or I will be back on bed rest with hot/cold compressions non stop....Back to step one I had vestibular problems and now when I get in this condition of headaches my eye's start bothering me along with tinnitus.  I have one MD tell me to not work on the strengthening and a pt that say's to work on it.....I have no answers for you but to let you know you are not alone with this chronic pain! Sux 
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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10-30-2013, 09:08 PM
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Thanks everyone. I just posted on ED's topic. These headaches are brutal.
I can't decide if bad all the time is the worst or off and on. Once you have that break its beyond hell when it comes back full force, just like the nausea. Pain management doc tom! Hopefully he can help me without taking off my head. Peace and healing, Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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10-30-2013, 11:33 PM
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Legendary
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Have you seen the thread about a surgery similar to carpal tunnel surgery that is designed to reduce the pressure on the nerve thus relieving the head ache ?
It is only for specific conditions but worth the research. I found the thread. here is a link to it. http://neurotalk.psychcentral.com/sh...d+ache+surgery My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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10-31-2013, 12:33 AM
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Thanks Mark,
I will take this with to the pain m doc. I have heard of freezing the nerves. Very hopeful that something will work. Thank you for your time and this info. Peace and healing, Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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