Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 10-28-2013, 11:31 AM #1
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Default I'm breaking the rules

I have been having serious struggles with melancholy and even darker thoughts this past week. After fighting through it with little success, I decided to see if a pick-me-up would help. So, I took an Excedrin tablet. It has 65 mgs of caffeine.

It appears to be making a difference. I have done it twice and both times, I felt much better. The sense of hopelessness has reduced substantially. It sure beats the side-effects of taking an anti-depressant.

Since I am long beyond any healing or recovery stage with my brain, I doubt the caffeine will have any detrimental effects. If anything changes with this protocol, I'll let you all know.

My best to you all.
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"Be still and know that I am God" Psalm 46:10
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Old 10-28-2013, 12:10 PM #2
Mokey Mokey is offline
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Hi Mark. Sorry to hear you are having a tough week. Things will get better if you can weather the storm.

I think that the only rule for people with brain injuries and concussions is that they don't get another one! So if you find something that can help you and doesn't seem to harm you, that is great.

I use Excedrin for headaches. I try not to use it too much as it does a job on my stomach. In terms of caffeine, would a green tea be good for you? High in anti-oxidants which are great for the brain and for neuro-transmission and it is not too high in caffeine.

Hang in there!
M
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 10-28-2013, 04:35 PM #3
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Hi Mark,

I'm really sorry to hear about the melancholy, but glad you've found some relief. Things WILL get better. Please let us know how you're doing.

Have you had melancholy prior to these last few weeks? Have you noticed any stimulants or situations that have brought it on? I am a pretty depression-prone person but I haven't had melancholy that much since the accident. A huge sense of defeat, yes, but melancholy and dark thoughts not as much.

There is a test the upper cervical chiropractor did measuring my flight or fight response I guess as a measure of anxiety. My reaction was a bit slower than a healthy reaction should be. Wondering too if this has anything to do with it. I'm not explaining it well, but I'm happy to scan it and send it to you to look at, pm me if you're interested. Are you still going to an upper cervical?

How long the Excedrin relief last?

Remember things WILL get better.
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In July 2013 ran into a metal bar at a playground, remained conscious. CT normal. Headache subsided after a week. In August woke with thunderclap-type headache in right side of head, right eye was droopy. Ever since had electrical-type pulsating all over when falling asleep and during sleep. Strong muscle twitching occasionally. Chest pain in heart region, front left neck region, and left shoulder. Strong heartbeat noise in head and occasional weird noises in ears. Taking Gabapentin to control nighttime nerves. Other symptoms: anxiety attacks, goosebumps, fine motor coordination problems, sleep apnea, headaches/migraines, fatigue, unclear thinking.

Update as of Jan. 2015 - almost all symptoms gone except for some tinnitus. Taking good care of myself except sometimes when I overdo it.
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Old 10-28-2013, 06:53 PM #4
Mark in Idaho Mark in Idaho is offline
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Mokey,

I took the Excedrin precisely for the caffeine. I had it in the cabinet because years ago I used it to overcome the somnolence from Klonopin until the doc read me the riot act about combining the two.

65 mgs of caffeine is about like a weak cup of coffee. (95 mgs in a normal cup of coffee).

I am not a tea drinker so the green tea is a no go.

Oddly enough, the caffeine did not keep me up. After taking it late, I still could go to sleep.

Regarding triggers for my episode. I spent 3 hours digging with my diesel tractor. It is loud and rough riding. Maybe too much from that activity. I had to stop when I realized I bent a $500 part. That was a certain downer. The frustration of searching the country for a replacement part was exhausting.

I am also waiting to see if my legal case will get resolved. The stress has not been good for someone with PCS.

Thanks for all your concern.
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Old 10-28-2013, 09:01 PM #5
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Mark,

I'm so sorry to hear you are having a rough time.

You are such a massive help to everyone here but please look after yourself, hope you feel better very soon.
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Old 10-28-2013, 09:10 PM #6
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Have you considered tapering down gabapentin?
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Old 10-28-2013, 08:55 PM #7
concussedlawyer concussedlawyer is offline
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Mark,
You/ve given so many people support on this board, I'm glad to be able to return the favor. Hopefully some of the melancholy has dissipated. Did you check out the link on Integrated Listening systems that was posted above on the what's new section? I have no idea if that would be helpful for your injury, but the whole idea that there was a significant recovery after 11 years was very heartening for me. Best to you!
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