Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-18-2013, 04:11 PM #1
Tom from Queens Tom from Queens is offline
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Tom from Queens Tom from Queens is offline
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Default Reading?

I just celebrated the nine-month anniversary of my concussion.

I am definitely feeling better than my worst days, which were in June and July.

I feel like my short-term memory is serviceable--I do not often forget things I just did or said, or lists of things I want to do; when I do, I can usually recover them, which was not the case over the Summer. One of the parts of my therapy over the Summer was to try to take words whose letters had been "jumbled" and to figure out what words they were. I had a lot of trouble then, but almost no trouble now.

One of the things I've noticed is that I do not read with the same engagement as I did before the injury; it's not that I don't understand what I read, or even don't remember it (I read an op-ed piece in today's paper this morning and not only do I remember what it was about; I remember the thesis). It's that it takes a while to make connections with my other knowledge; something which happened a lot quicker before. Though I read for a living (I am a medical editor), my personal reading is the problem.

I am a reader, and I do not want to give that up. That, more than residual neck or head pain or anything else, would make me very sad. One of my doctors said that I should read intensively every day, which I try to do, even if on some days it kind of washes over me.

I've been reading mainly poetry—my strong suit has never been plot and most poetry you don't have to remember from line to line anyway.

My medium-term goal is to be able to read Shakespeare again with some understanding.

My questions:

1. What kind of things have people been doing to increase their reading comprehension other than just reading what they can and when they can?

2. What kind of cognitive training/ regimens have people found to be successful? (I'm not asking so much about products as I am about what kinds of exercises do people use and with what frequency and results (there are two that I use which I like and in which I feel I have shown real progress).)

Thank you for your continued support.
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What happened: in February of this past year, I suffered a fall. Though I did not hit my head, I came within three or four inches of hitting the ground, and the whiplash/ coup countercoup has caused lingering concussion symptoms.

I have had five or six prior head injuries, most of which completely healed within a few weeks, though one took about three months.

When I get my most depressed, I remember that I could have killed myself, which would have been far worse than anything I have gone through. June and July of 2013 were the absolute worst.

I have managed to keep my job in a field that demands a lot from my brain, though I do get cognitively tired very easily, and have some problems with reading comprehension and short-term memory, though some days I feel close to my pre-injury self.

The headaches of the Summer are gone (mainly) and I drink a lot of water and rest more than before.

I am on a supplement regimen, and that has helped; probably the medical intervention that helped the most were seven chiropractic manipulations of my neck in June and July.

I am fearful that I will be slightly brain damaged the rest of my life, but I am determined to enjoy the same things I enjoyed before, and I, even on days that I despair, know that the odds are with me.
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Old 11-19-2013, 01:12 AM #2
Mokey Mokey is offline
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I think online scrabble helped enormously. It is a game that doesn't move (good for dizzyness, vision problems), helps you scan, and slowly builds up connections.
I read a novel two years post injury. Believe me...I lived to read and this part of the injury has broken my heart.
Mending.....slowly but surely.
I also got an ereader...changes the font, spacing etc. which made it easier to retain and read.
I am slowly able to retain and make links with other things.
I think anything you do that adds in multitasking (i listen to radio while playing scrabble, fo example) is a good thing.
Hang in there. Glad you see improvement!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 11-22-2013, 10:26 AM #3
concussedlawyer concussedlawyer is offline
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Have you tried going to a neuro-optometrist, someone who is a member of the Nuero-optometric rehabilation association (NORA)? The prismatic glasses they prescribe are not for eyesight but for vision; so they can aid in reading comprehension. They have for me. I also take frequent breaks.
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Old 11-27-2013, 09:21 AM #4
brokenbrilliant brokenbrilliant is offline
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Ah yes... reading. I have been an avid fiction and essay and non-fiction reader for all my life, but after my fall in 2004, I lost all interest in it. The loss if interest followed my loss of ability. I literally could not make it through a book. Or even a chapter. I was given "Life of Pi" for Christmas one year, and I could not follow it. Granted, it's a challenging book to begin with, but I would forget what had happened on the last page, whenever I turned to a new one.

After several years of this, I decided enough is enough. I had to do something. This is what I did to "reboot" my reading (which has worked).

I found a book that really held my attention -- one of the Bourne novels, which one of my favorite movies was based on. Because I knew the movie so well, I could follow the book - like training wheels. The places where the book was different from the movie made it a little challenging, but it also got me thinking things through more completely.

I'm not sure I ever actually finished that book, but it got me started. I worked on different books at different times, with plenty of time in between to rest my brain. Reading intensively every day was not an option for me, because my brain couldn't deal.

It probably took me at least 6 months, before I could read through an entire book. But it's been several years since I "rebooted" my reading, and now I'm reading regularly. I find that I need to really care about what I'm reading. I can't tolerate plot lines about people I think are idiots... so, that tends to limit my choices

I get irritated quickly, and that sets me back, so I need to pick and choose my material carefully.

Fortunately, there are plenty of books in the world, and I have plenty of interests, so I'm happy to report ... I'm back.

With time, you can be too, I am sure.
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What happened: Sustained mild TBI #9(+) in 2004 when I fell down a flight of stairs and smacked the back of my head on the steps. Knocked out briefly, then bounced back and resumed everyday life, as usual. Then things fell apart -- lost my job, friends disappeared, spouse became terrified of me, money flew out the window, and I had no idea it was all happening, or why. Finally put things together in 2007, when I was researching brain injury for a family member. Have been actively working with a neuropsych and recovering since late 2007, with amazing results I never thought possible.

I blog about this at
.
.

Symptoms: fatigue, tinitis, sensitivity to light and noise and touch, insomnia, general pain, headache, attention issues, emotional lability, panic/anxiety, anger/rage spikes, confusion, difficulty hearing and understanding, slowed processing speed, limited short-term working memory, balance & vertigo issues, difficulty reading and learning new things, nystagmus and tremors when over-tired.
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