Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 12-05-2013, 11:29 PM #1
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
15 yr Member
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There are a lot of things I can do. I also KNOW that the risk to my future if I were to suffer another head injury would likely be catastrophic. I have found less risky activities to fill my life.

Those of you who tend to think our symptoms are all in our heads (mental) miss the issue that concussion does cause mental issues in addition to physical issues. I doubted my symptoms. They confused me. I tried to live on as if they were just made up. Then, I started taking inventory of the events that were almost non-existent before my injury that had become common place after the injury. This confused me even more because in the past after a head trauma, I had been able to relearn and overcome PCS symptoms with a noticeable improvement early on.

I then had a neuro-psychological assessment. The report showed why I had these problems. I had a qEEG exam that revealed the same. 5 years later, I had another NPA that mirrored the previous NPA.

So, for me, I could stop thinking it was all in my head because it was all in my head, but physically, not mentally. The repeat NPA 5 years later after I tried to relearn lost functions showed the reality and in my case likely permanence of my symptoms.

What I find to be most helpful is accepting the lost function and working a way around it. I try to do what I can while minimizing stressful actions and events. I have learned that anxiety and worry and other negative emotions about my condition only hold me back. So yes, mental is a part of it but we can overcome the mental flip flops and move forward.

The " holding on to the past " stubbornness is the worst at preventing one from moving forward. This is the mental part.

Some may be exacerbating their symptoms with anxiety but I doubt the anxiety is the cause of the symptom. Just a catalyst. The additional FACT is that anxiety is a symptom of concussion that is physically caused. We can do a lot to minimize anxiety. It is a choice that we must make. No doctor or therapist can sold our anxiety problems without our compliance.

Hope you all can accept that you have suffered an injury and must play a big part in your recovery.

My best to you all.

btw, I just returned from our annual holiday dinner for our brain injury support group. These people live full lives with struggles that are a magnitude worse than those we suffer.
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