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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-11-2013, 04:01 PM | #1 | ||
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To give a background on my story. I have had three concussions in about three months. The first was several small concussions. I was playing football and didn't know that I was concussed. I didn't know that I was cuncussed, but I received the five small concussive hits(4 in the left frontal lobe) and one in the back left part of my brain. I healed up just fine and was playing football in about 2 weeks. I played football for two more weeks when I hit that same front left spot on my head again, not extremely hard, but obviously enough to cause another small concussion. I then developed tics, a twitching disorder, two days later. The concussion symptoms (headache, small light and sound sensitivity) seemed to disappear as I was twitching very badly. I saw a team of neurologists, and they didn't seem to think I developed the tics from a concussion. They think that I developed tics from stress and anxiety, which at the time were at a moderate to moderately low level. I then got medication for the tics and my twitching went away. My second concussion went away and I was doing fine until I was wrestling with my brother about two weeks later and bumped my head on the ground. I got a third concussion close to the first two concussions but more on the outside of the left part of my brain. I healed up in about a week, but noticed I went cross-eyed for a while. I didn't have any postconcussion symptoms after any of these minus a few headaches in the concussion spots, zoning out, and about a week and a half period of insomnia.
Then about a week or two after the third concussion I was in class, and someone bumped my head lightly with their elbow. It didn't hurt my head at all, but I was extremely dizzy and had concussion symptoms for the rest of the day. About two weeks later, I bumped almost brushed my jaw with a guitar and thirty minutes later I noticed I was super dizzy and the rest of the weekend I had a headache and was dizzy. Then a few days after that I got hit in the head with an extremely soft inflatable ball right in the front of the head and it has caused a whole mess of problems. The next two days when I tried showering my tic movements started acting up a ton. I became extremely light sensitive, got headaches, sound sensitive, lightheaded almost all the time, loss of focus, reduced cognitive function, and (common symptoms). I tried taking one shower since then, about 6 weeks since the last two incidents, and my tics flared up for about two days, and I only let the water hit the back of my neck and parts of the back of head just barely. I can't get bumped by people anywhere and especially my head. I accidentally ran up my stairs and had concussion symptoms for the rest of the night and a bit the next day. I also jumped up to get a bag of chips probably about a foot off the ground and it lasted probably about the same time frame for symptoms as running up the stairs. Some people will give me a pat on the back or something which causes some symptoms. I have to be very cautious in car rides as well. Anything that causes jolts through my head causes symptoms. I now wear sunglasses all of the time at school, and most of the time at school. My sensitivity to light is getting better and at times I can go without wearing the glasses a while. My headaches are getting better and my brain functions very well compared to what it used to. I'm not very positive thinking though. I've lost a lot of things the past couple months, mostly playing football and track in high school and college. Sports have meant more to me than most things and losing them has been rough. That part was tough, but now my future of going to college next year is in jeopardy because I can't have these symptoms and go to college. I have suicidal thoughts when I have a set back and sometimes just when I have time to think about how good I used to have it and how hard life is and will be. I have a friend at school who also is struggling with PCS and its nice to talk about our problems, but sometimes I worry. I've gone to many appointments in a traumatic brain injury department, seen a neurophsycologist, who is my main doctor, ocupational therapist for schoolwork and stress managment, and vestibular therapist to reduce by lightheadedness which has been reduced a lot. I've also been going to acupuncture which has helped a bit. I'm having an appointment with an anxiety therapist soon. The neuropsychologist believes that a lot of my symptoms are caused from stress and anxiety, particularly me being cautious about my head now. I know there was a thread called Sensitive to Jolting? and recently Extreme Head Sensitivity. I can't copy and past the links because I'm a new member and haven't posted 10 times, but I know there are people with really sensitive heads and I was wondering if there was anything besides not bumping my head or getting jolts that helps. I brought up the idea from the sensitive to jolting thread to my doc about the lymbic system of the brain being messed up in my situation and he thinks that is likely. |
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12-11-2013, 08:51 PM | #2 | ||
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Legendary
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JBuckl,
Welcome to NeuroTalk. You have found a good place with good people. It sounds to me by your attention to detail that you are a high stress type of person. This is detrimental to recovery. If you were playing football with helmet and pads, your concussions and sub-concussive impacts would be more generalized that directed to the left frontal lobe. These generalized impacts often result in a diffuse axonal injury. There is often a concomitant injury to the neck or spine. It sounds like you have a severe case of sensitivity to all of the sensory systems. This is usually due to an injury to the part of the brain that gates or directs the flow of sensory information or blocks it entirely. This is a common PCS symptom. The only treatment is to reduce sensory stimulation so the brain can rest and try to heal. Reducing anxiety is also important. Read the sticky at the top about Vitamins and supplements. Your brain needs stress support and the vitamin regimen is focused on helping the brain tolerate stress. You sensitivity to head motion could be just the brain movement or it can also be related to upper neck issues. The vertical pounding from walking and running can irritate the upper neck and cause inflammation that effects the brain. You need to get plenty of quiet rest. School should be minimized, especially any extra activities or intense projects or tests. Knowing more about your age, location, and school objectives could enable us to better understand your situation to help you. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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12-12-2013, 11:00 PM | #3 | ||
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Thanks. I appreciate your help and your concern. I must ask why you help so many people though? Do you still have symptoms with using computers?
I would say after all of this I am much more anxious, cautious, and stressed. I never was before. And after the first three concussions I unfortunately wasn't very cautious nor extremely stressed. My work load at school is very high right now. I'm trying to get caught up in school. I missed three weeks from my last incidents and I take two college level classes. I'm a senior in high school. I'm not extremely stressed about school because the teachers have been relatively nice about things, but it has been a lot of work. I'm still very behind in the one non-college level class, but I'm not too worried about it. I have a Christmas break coming around soon which will be good but until then I have a lot of studying and homework to do. I live in Wisconsin. |
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12-13-2013, 12:42 AM | #4 | ||
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Legendary
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Don't get stressed by the 'level' of the courses you are taking. I was in college in 1973 and the entry level college courses were equivalent to courses I took in junior high. I took a quarter of college level Earth Science as a freshman.
I suggest you do everything you can to reduce your workload at school. Drawing out your recovery will be counter to being ready for college. An understanding school admin should accommodate you with alternative ways to show you have mastered the curriculum. "I must ask why you help so many people though? Do you still have symptoms with using computers?" I used to have problems with screen time but I have learned how to recognize when my brain is fatiguing. I then step away for a while. I do this because I know how important it is. I went through a miserable time for the 10+ years after my concussion at 10 years old. I had very little support nor information, especially after my severe concussion at 10 years old. I was discharged from the hospital after three days with NO FOLLOW UP. I had slurred speech and a severe change in personality. Plus, I have lots of time to follow NT.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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12-13-2013, 01:40 AM | #5 | ||
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Hey yeah I have the very extreme head sensitivity like you that sets of my pcs a lot worse. I don't have the twitching aspect of it though. It's very odd though, there are days where my head isn't as sensitive and others where if I even go to itch my head to hard I will get disoriented and set off my symptoms. I don't really know how to approach this, all I do is rest. I also eat an anti inflammatory diet and sometimes that seems to help.
Recently, the head sensitivity hasn't been as bad, but it could get worse in the future as the sensitivity seems to randomly worsen. I suggest following marks advice and getting a lot of rest and starting a vitamin regimen and eating healthy |
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12-14-2013, 10:50 PM | #6 | ||
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I've tried to get my workload reduced but the teachers can't much at all because most of it is essential for earning the college credits. I'm almost caught up in the two difficult classes, but I have been pushed extremely hard.
Termed college or not, they would be difficult no matter what. The teachers are older and hard-nosed. The easier class I am in I'm pretty far behind in but my teacher is much more understanding. I realize I shouldn't be doing as much work as I have been, but I can't exactly control that. My teachers are pushing me and I really don't want to keep getting behind! My brain has held up very well. And I have a break coming up soon after this last stressful week of school. I've been successful and I think my cognitive function is probably at around 95% of what it used to be. Does that mean anything? I'm seeing an anxiety specialist this week, which should help a lot. I have lots of anxiety, caution, stress about my head and rightfully so, but I know it's not all the best. I think I should see a chiropractor soon though. Any thoughts? |
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12-19-2013, 12:35 AM | #7 | ||
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Junior Member
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Quote:
You know I value your advice and your opinions; however, I have to say that what you're referring to here is very different from what the OP is probably talking about. When high school students today take "college level" courses while still in high school, they are referring to advanced courses that are designed to challenge them intensely, and these courses are typically in tough subjects to begin with. The "entry level" college courses you took in 1973 were undoubtedly far less strenuous than AP or IB courses that this person is taking. I know this with almost absolute certainty, as these are the kinds of classes I usually teach. I agree that, generally, "college level" courses doesn't mean much... but when a high school student is taking them, unless it is a joint enrollment situation (which most are not), the classes being taken are probably more difficult than what most of us remember from our undergrad years.
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Head injury on 10/26/13 due to a fall. Had extreme headaches, fatigue, and nausea over the next several days, but no insurance so I couldn't afford to get checked out. First official migraine occurred on 11/19/2013; no migraines before the injury occurred. |
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