Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-05-2014, 01:57 AM #1
Marina22 Marina22 is offline
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Marina22 Marina22 is offline
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Default 3.5 months setback - still suffering, symptoms changing...

It's been 3.5 months since my setback (bumped heads with my son while he was hugging me, I was symptom-free for more than a year before that). I'm still suffering

Brain fog is gone now (yay!), I can handle crowds, watch TV and use a computer(limited). However, head pressure, fatigue and headaches are still there . I'm starting to get scared that these symptoms will never go away. Headaches have changed though. It's kind of on surface of my head, not inside (hope that makes sense).

I have two biggest concerns. I have a huge fundraising event coming up in February, which I have volunteered to chair (before the setback happened). Now I am concerned that I won't be able to handle it at all.

My second concern is that I have very good friends of mine, whom I didn't see for 7 years coming to visit me in March. they've never been to US and I am very excited to show them around. But will I recover by March? Maybe I shouldn't do my charity event? Any thoughts, ideas are welcome.

Thanks for reading this!
__________________
2002 - hit my head on a washer door while doing laundry. Recovered in 24 hours (was 7 months pregnant at that time)
2005 (maybe 2006) - kitchen cabinet (it took me ~ 1 week to recover)
2009 - refrigerator shelf, recovered in 1 month
summer, 2011 - metal rail, the life-changing concussion. Black out for ~10 minutes, spent ~2weeks in bed (wasn't able to even use a bathroom by myself). Made a complete recovery in 2 months.
October, 2011 - washer door again. Recovered in 1 months.
March, 2012 - kitchen cabinet again. Suicidal depression. Was diagnosed with OCD. Severe anxiety. Was completely recovered in 4 months, celexa is a magical pill.

After that I managed to go almost 1.5 years without a concussion! Was at a completely symptom-free stage, started volunteering at my kids' school again. I was living a happy life. Then,

August, 2013 - fell down the stairs, broke my ankle badly (my surgeon said that he literally has never seen anything that bad ever before and he's been practicing for more than 20 years).
September, 2013 - my son was hugging me and we bumped into each other. Result - complete return of all of my symptoms., no improvement with time. Severe depression again.

7/7/2014 - hit my self on a metal shelf again while trying to clean.


I'm not clumsy. It's just the floor hates me, the tables and chairs are bullies and the wall gets in the way.
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Old 01-05-2014, 04:06 PM #2
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Margarite Margarite is offline
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It is really up to you, I know that it takes me about 3-4 months from each of my setback bumps to get to a settled state. It does not mean that I am better, but I am better able to handle the new symptoms and the old. Each person is different in how much they can handle, how much discomfort they are willing to deal with for the sake of the benefits of being active. I don't know if you could do the charity and then plan a week of relaxation and then plan a week of relaxation before and after your friends come for a visit.
Sometimes, I really need to just ignore the consequences and have a really great time, ignoring the pain and then the painful week or three that follow are still bearable because I had such a wonderful time.
But, as I said, each person's symptoms and lifestyle are different, so I can only say what I do.
Good Luck!
In Christ,
Margarite
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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Marina22 (01-06-2014)
Old 01-06-2014, 02:30 PM #3
EsthersDoll EsthersDoll is offline
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I'm still not back to normal after 3.5 years - actually I still feel quite limited despite having recovered a significant amount.

You just never know with these things.

I recommend that you let your co-chair or assistant chair or the board of the fund raiser know right away that you may need to back off the project or take on a much less involved role. if you get better before the fund raiser then you can increase the help you give, but backing off now should give them time to adjust just in case you're not all better by then.

Let your friends know that you are recovering from a concussion. Most likely, you should be well enough to have a good time with them when they are here. But there is a chance that you will need to take it easy.

There are many work arounds you could use when they are here if you do end up needing to take it easy. But I think if you can avoid worrying about it for now, since it's so far off, then that might be best? Or you could consider postponing their visit?
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Marina22 (01-07-2014)
Old 01-10-2014, 11:01 PM #4
Marina22 Marina22 is offline
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Thank you for your responses! Sorry it took me so long to reply - I've been very disorganized lately (I wonder why ) .

I have a meeting scheduled on Tuesday dedicated to my coming fundraising planning. I will let them know that I'm not as efficient as I was hoping I would be when I agreed to this. Maybe someone will volunteer as a co-chair - that'll be fantastic! The event is a disco dance and all the profit will be spent on a 5th graders graduation party (that's where my oldest child is).

I'll probably do just fine. I went to Canada in December to watch my nephew hockey game. It was 3 hours drive (hubby was driving), we spent the whole day in Vancouver. The game was at 7:45 pm and we drove home after that (I wasn't driving). I was extremely tired, but I was happy how I handled the whole trip considering that in addition to my concussion symptoms I also walk with a cane (I broke my ankle 5 months ago and I'm still limping).

As for my friends visit - no I can't postpone their visit (I wish I can). We've been planning this for years and it took a lot of effort from both sides to make it happen. But again - it's in March and there is always a chance I will recover by then.
Thank you everyone for reading this. I I pray for your recovery every day
__________________
2002 - hit my head on a washer door while doing laundry. Recovered in 24 hours (was 7 months pregnant at that time)
2005 (maybe 2006) - kitchen cabinet (it took me ~ 1 week to recover)
2009 - refrigerator shelf, recovered in 1 month
summer, 2011 - metal rail, the life-changing concussion. Black out for ~10 minutes, spent ~2weeks in bed (wasn't able to even use a bathroom by myself). Made a complete recovery in 2 months.
October, 2011 - washer door again. Recovered in 1 months.
March, 2012 - kitchen cabinet again. Suicidal depression. Was diagnosed with OCD. Severe anxiety. Was completely recovered in 4 months, celexa is a magical pill.

After that I managed to go almost 1.5 years without a concussion! Was at a completely symptom-free stage, started volunteering at my kids' school again. I was living a happy life. Then,

August, 2013 - fell down the stairs, broke my ankle badly (my surgeon said that he literally has never seen anything that bad ever before and he's been practicing for more than 20 years).
September, 2013 - my son was hugging me and we bumped into each other. Result - complete return of all of my symptoms., no improvement with time. Severe depression again.

7/7/2014 - hit my self on a metal shelf again while trying to clean.


I'm not clumsy. It's just the floor hates me, the tables and chairs are bullies and the wall gets in the way.
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