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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-03-2013, 03:04 PM | #1 | ||
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Thank you everyone for your support.
I have an ophtamologist appointment at Stanford this Monday. My main symptom is chronic headaches and light sensitivity in my left eye and I also feel that my left eye doesn't focus properly in conjucntion with the right eye. I've had my eyes examined before and they did say that I still have 20/20 vision. Can you guys give me some tips on questions to ask my Ophtamologist on these particular issues? Do you think wearing prisms in my glasses will help me? Thank you. |
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05-03-2013, 05:09 PM | #2 | ||
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I just wanted to make sure you are seeing a neuro opthamologist. I'm guessing so, but I just wanted to be sure, as a regular opthamologist cannot diagnose you. Anyway, if your doc is like mine, he/she will be exceedingly thorough and will ask you everything under the sun, as well as run all kinds of tests. I was there 2+ hours on my first visit. It was a bit taxing, so don't make a lot of plans for the rest of the day! Good luck!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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"Thanks for this!" says: | anon22217 (05-03-2013) |
05-04-2013, 12:12 PM | #3 | ||
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I went in april to See a. Neuropthamologist just outside of Toronto. There are only Three neuropthamologist in ontario and i had to travel five hours to get there. It was well worth the trip. I have been diagnoised with post traumatic. Vision syndrome, vision mid line shift syndrome and convergence insufficiency. She prescripted prisma glasses and i was able to try a pair in her office, what an amazing difference. I never realized how unbalanced i was until i tried the glasses. I am also going to be taught how to do vision therapy at home since it is very far to travel for a one hour appointment. I also went twice prior to the Ottawa eye institute and was told there was nothing wrong with my vision. This doctor knew exactly what my problems are. It was really nice to be validated, sometimes i would think i was going crazy. She also told me this process could Take anywhere from six months to Two years. Good luck.g
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"Thanks for this!" says: | anon22217 (05-04-2013) |
05-04-2013, 01:15 PM | #4 | ||
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Thank you! My hometown is Toronto. I miss it a lot. I"m just curious what were your symptoms?
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05-04-2013, 01:16 PM | #5 | ||
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Unfortunately its just an opthamologist. I'm hoping from there she will will refer me to a neuro opthamologist or do I need to search one out on my own? Thank you.
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05-04-2013, 01:19 PM | #6 | ||
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Oh, as well I will be scheduled to do a visual field test. Will this test help me to determine if I have convergence insufficiency or need prisms? Thank you
QUOTE=bluehiroko;980669]Unfortunately its just an opthamologist. I'm hoping from there she will will refer me to a neuro opthamologist or do I need to search one out on my own? Thank you.[/QUOTE] |
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05-04-2013, 03:55 PM | #7 | ||
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I don't think the visual field test will be able to catch the kinds of problems you might be having. I think it's used to diagnose other problems, but I'm no expert. Hopefully you can get a referral if they can't diagnose you properly!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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"Thanks for this!" says: | anon22217 (05-04-2013) |
05-04-2013, 04:10 PM | #8 | ||
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If I were you, I would call them and ask if they can diagnose things like convergence insufficiency. If they can't, I'd cancel the appointment and research it on your own or ask your PCP or neurologist if they have a referral for you. It could just be a waste of time for you. I should know! My PCP accidentally referred me to a retina specialist instead of a neuro-opthamologist and he said I was fine, except I needed bifocals. (And at the time, I didn't realize he wasn't a neuro-opthamologist! It was only later that I sussed that out!) I went tO the optometrist at the local mall, and she spent two hours trying to get a read on my eyes. She was very frustrated! Eventually she gave me a prescription for a very weak bifocal but when I got them, they just made my vision blurry, so I sent them back. Months later, my physical therapist finally referred me to the right doctor and he has been able to helP me. Anyway, I just am encouraging you not to waste your time like I did! The only reason to go would be to see if you could try prism glasses, but they don't work for everyone. If you can call and talk to someone about what they can do for you, that would give you an idea if it's going to be worth it. Good luck!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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"Thanks for this!" says: | anon22217 (05-04-2013) |
05-04-2013, 04:22 PM | #9 | ||
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If that is where you are going, it looks like they do have doctors who specialize in neuro-opthamology, so if the person you are seeing can't helP you, they should be ablE to refer you to someone whO can! Best of luck to you!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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"Thanks for this!" says: | anon22217 (05-04-2013) |
05-04-2013, 06:46 PM | #10 | ||
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I would cancel the appointment if it is just an ophthalmologist. You will go through several exams, but it will not specify convergence insufficiency or binocular vision or accommodation issues that are common after mtbi.
At Stanford the have a neuro-ophthalmology department, and you can contact the following for appointments: http://ophthalmology.stanford.edu/pa...ics_neuro.html Byers Eye Institute at Stanford 2452 Watson Court Palo Alto, CA 94303 Phone: 650.723.6995 Fax: 650.723.6619 Best of luck!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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"Thanks for this!" says: | anon22217 (05-05-2013) |
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