Sitke- I understand where you are coming from when you mention the disorientation. I feel the same way.

Like everyone has said, I guess we just need to rest rest rest until we can see a specialist or neurologist.

Hi just a quick update on my progress. Thankyou all for taking the time to read and respond to my concerns.

Since I last posted I have stopped exercising completely, stopped caffeine and alcohol and have not gone to any social events. Finding it really hard not doing the things that make me happy and saying no to friends but got to keep remembering that health is important. I'm losing muscle by not working out and its so frustrating as summer is soon (uk time). I've had good days and bad days but i think things are slowly improving. Still getting headaches but less severe ones and not napping so much in the afternoon when i get home.

I previously booked to go to a music festival in June and not sure if i'll go yet as im worried about my symptoms worsening. Thinking about taking some ear plugs but that's just an option. I'm going to decide nearer the time depending how i feel.

Once again thanks for the advice and wish you all a positive recovery.

Hi there,

It is hard to stop doing the things you love to do but from experience your healing can go backwards if you don't!

Rest, no loud music etc...my severe headaches actually lasted for months.

I also lifted weights which is my passion! had to completely stop and only just now started hiking again.

Look after yourself, take it really slow.

Well I've definitely taken steps back this week. I feel like I've got worse. The constant head pressure is driving me mad! Went to see my go again who gave me a leaflet on concussion thank god I found this forum. Feel a bit at a loose end because I don't know what else I can be doing to help. I guess my anxiety is probably making the whole thing worse.

Be easier on yourself, anxiety is a concussion symptom.

Couldn't agree more.

I'd suggest going to see a psychologist to or therapist or at least a family member / friend to talk about your anxiety.

I wish I did this sooner. My extremely large ego did not want to admit that I had an anxiety issue. I've also always been a very mentally tough person.

Unfortunately an injured brain doesn't care about your ego or how tough you are and the anxiety will come.

The first thing you need to do is accept that anxiety is there and that it's ok to have it.

I think some CBT work with a professional could help wonders here. I know it did for me. It can't hurt .. that's for sure.

Since my last post I have been prescribed amitriptyline which is really helping with the headaches. I feel my noise sensitivity has decreased also. I am still having bad days if I do too much. I feel a lot less frustrated now as I'm accepting this is going to take time. The doctors in the uk don't seem to know a lot about pcs! I've been thinking about having some physio therapy as maybe I have for tension in my neck. Is this a good idea?

Anxiety, and ruminating on negative things, ("my anxiety makes things worse"), is unfortunately a cognitive/emotional symptom of this crazy thing we live with.

Believe me, we all have and still go through times where we feel like we are at wits end and are unsure what to do next or what to try. That being said, there is hope. The more you experience what makes you get worse, (for me- too much screen time), the more your brain and spirit learn, (for me- Hey! turn the computer off now or you're going to be in bed for the next two days!).

Once you get comfortable with what makes you feel better and what makes you feel worse, you can make choices.

For me- Choices:
(1) If I stay on the computer longer, I may start to feel sick, but I really miss seeing my friends and family. My mom just emailed me, so I will read it and reply because potentially feeling sick will be worth it to me because I will have connected with her;

Or,(2) I'm just going to write a quick reply;

Or (3) I will respond tomorrow because I need to feel good for something I have going on tonight.

Ps. Sorry your doc doesn't get it, but we will ALWAYS be here for you

I find walking helps for anxiety, relaxes the mind and is good for brain blood flow. Like Hockey says anxiety is a concussion symptom as can be depression. Have something to look forward to like a treat to stay optimistic Recovery doesn't tend to be linear, you will get setbacks, don't be hard on yourself it's still early days the brain certainly takes time to heal. But I sympathise with you regarding UK GP's mine just printed out a leaflet and gave it me.

Thank you mate. I've made good progress this week and feel optimistic because I saw a physio and have started doing some simple neck stretches. Really helped with the headaches. Yeah my gp did that to but he did give me 10mg amitrityline at night which helps. Slowly but surely getting there .

All the best