Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-08-2014, 11:42 AM #11
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Originally Posted by manda90 View Post
Update for Mark and about me- spoke to PCP this morning and he advised me to stop the steroid that was prescribed by my neurologist. I stopped it and hoping I feel better soon (symptoms are strong today) and hopefully it will subside by tomorrow. He told me to keep in touch. I also let neurologist's office know I stopped it because they also told me to keep in touch. And neurologist nurse just got in touch with me. Said I need to stick to the medrol dose pak and stop following up with my PCP (even though the ER told me to). Okay, so, any thoughts?
Another thing...

It's been 3 weeks since the concussion (I had two in 3 days). I know this is not very long, but my pain has increased tenfold with no relief.

I have had herniated discs in my lumbar spine which have led to shots and surgery back in Feb 2012 and recurring pain in November/December 2013 (when I got shots). Unfortunately, my neck is feeling the same way as my back did right before my surgery. I also have weakness in legs and extreme shoulder/arm pain.

I understand that this neck and back pain may be because of the brain injury. I was wondering if any of you would recommend me being seen by a different neurologist for a second opinion, or if I should describe the pain to my current neurodoc and see what he thinks?? Mark recommended a diff doc like a Physiatrist- what have been your experiences with those type of doctors?

Thanks for letting me vent everyone. Just very frustrated.
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Old 05-08-2014, 08:29 PM #12
Socks Socks is offline
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Originally Posted by manda90 View Post
Another thing...

It's been 3 weeks since the concussion (I had two in 3 days). I know this is not very long, but my pain has increased tenfold with no relief.

I have had herniated discs in my lumbar spine which have led to shots and surgery back in Feb 2012 and recurring pain in November/December 2013 (when I got shots). Unfortunately, my neck is feeling the same way as my back did right before my surgery. I also have weakness in legs and extreme shoulder/arm pain.

I understand that this neck and back pain may be because of the brain injury. I was wondering if any of you would recommend me being seen by a different neurologist for a second opinion, or if I should describe the pain to my current neurodoc and see what he thinks?? Mark recommended a diff doc like a Physiatrist- what have been your experiences with those type of doctors?

Thanks for letting me vent everyone. Just very frustrated.
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Old 05-08-2014, 08:39 PM #13
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Ha, thanks Socks. Since I posted, I finally got a hold of my neurologist (refusing to talk to his nurse who brushed off my concerns about my tailspin...) and he was very understanding. He is actually the one that treated me and admitted me to the hospital before the micro disectomy in Feb 2012. He told me he is not surprised that I didn't respond to the treatment of a medrol dose pack (shocker) because I haven't responded to conservative treatments before. He said he wanted to give it time to heal, but since things have gotten worse, he scheduled me for an MRI of the cervical spine tomorrow at 9:15am. Thank goodness!! I wonder if he will have results tomorrow too since I am doing the MRI at his practice.

I also looked back at my MRI results from Nov/Dec 2013 and it said I have Spondylosis without myelopathy, and degenerative disc disease, as well as herniation at L5S1 (again!) and L4-L5 was a broad bulge. All of this has me wondering what they may find in my neck and what treatment will be. I will keep you all posted. Thanks again for listening.
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