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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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I've also got the crazy startle thing going on ... to the point sometimes I startle so badly it makes me cry. Doesn't that make me feel like an idiot?!
It used to make my husband and my grown daughter nuts (before she moved out on her own) but after over 2 years, now my husband just rolls his eyes and says "Can't you get over that??"... Umm, no... I can't... I don't startle on PURPOSE!! The only improvement with the startling I've been able to make is to occasionally control the outburst of swearing that accompanies it. Sometimes I can manage to control the volume of the swearing and at least not yell obscenities and sometimes I can manage to curb them before they get going. The swearing is new with my injury and very out of character for me and would have never happened pre injury, so it is incredibly embarrassing and alienating to people around me. I've managed to learn to stop it in almost every other situation other than the startling situations, but I keep working on it. Who knew falling on my head would bring out my inner sailor?? ![]() Starr |
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"Thanks for this!" says: | Hockey (05-10-2014), music-in-me (05-10-2014) |
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Magnate
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Quote:
![]() I have tried everything to stop myself. I tried putting a dime "fine" in a jar every time I cussed. However, I abandoned the effort when I realized I was going to be able to pay off the U.S. national debt. |
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#3 | ||
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yes, a potty mouth, and I have no filter. A bad combination around my 3 children.
But it all makes for some laughs!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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"Thanks for this!" says: | Hockey (05-11-2014) |
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#4 | ||
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Yes, very familiar with the lack of filter and potty mouth combo! So not good!
But its important to me to be able to TRY to fit into social situations... its bad enough that loud noises, background noise, bright lighting, florescent lighting, not being able to remember people's names or other personal details, feeling miserable with a constant headache, lurching around with an odd gait walking with my cane, crying easily, being easily angered, laughing inappropriately interfere with my ability to socialize, I draw the line at blurting out swear words in the middle of conversations too!! So I have worked hard at trying to at least minimize this really alienating behaviour... and honestly its hard... the lack of filter makes it difficult. The things that have helped a bit are: -- practicing "normal" conversation at home before hand. Things that might come up during that particular event and the appropriate response to common questions that are likely to be asked. It seems the swearing comes up more when topics come up that surprise me or get me riled up. -- practicing "stop and think" before answering. (I got this tip from one of Mark's posts! ![]() For me, this also seems to help minimize the swearing... in a few ways. The surprise factor, as above, gives me a chance to try to get that under control and also with word finding... because it seems if I have trouble word finding, then my brain fills the blanks in with swear words. It also gives you a chance to try to really think about what's about to come out of your mouth and try to practice "installing the filter" again. I've been practicing this for well over a year now and honestly its still hit or miss, but I try hard and when I'm focusing and I'm not too tired, it does make a difference. I find it exhausting though and I had hoped with practice it would get easier, but so far, not so much, but I keep at it. I figure its just part of the rehab process, just like working on learning to walk properly again... which I've been working at for over 2 years now. ![]() Starr |
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"Thanks for this!" says: | Hockey (05-11-2014), MomWriterStudent (05-11-2014) |
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