Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-06-2014, 08:19 PM #11
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B6- 12.5mg
B12- 500mcg

Riboflavin-30mg

D3- 5000 iu

Magnesium- 300mg
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 05-06-2014, 09:46 PM #12
Mark in Idaho Mark in Idaho is offline
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Sarah,

I'd add a B-50 complex to your current B's. You need the full set of B's for the B-6 and B-12 to work best.
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Old 05-07-2014, 12:03 AM #13
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Quote:
Originally Posted by SarahSmile0205 View Post
I have days where I feel fine... I am happy nothing ****** me off and then I have days or hours where I just want all this over with... I want to feel like me again... I want to be able to work... I want to feel like I am not the only one that feels like this...

ideas, suggestions?
Hi Sarah.

Some ideas to consider, I have found mindfulness meditation to be helpful, it can take different forms, I like to practice compassion meditation or gratitude meditations when having down days. If you are physically able I have found gentle yoga and massage therapy to be helpful.

it probably seems like forever but as brain injuries go your is fairly recent. Best to you as your recovery continues.

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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 05-07-2014, 03:59 PM #14
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Originally Posted by Mark in Idaho View Post
Sarah,

I'd add a B-50 complex to your current B's. You need the full set of B's for the B-6 and B-12 to work best.
Hi Mark,

Whilst on this point of vitamins. Can you please clarify is there is a difference between B100 and B50 complex?

I am currently taking daily:

B100 vitamin B complex x 2
B12 1000mg x 2 (re ordered to get methyl based one in lozenges as this one is Cyan based)
Vitamin C 1000mg x 2
Curcumin c3 complex 1000mg x 3
Vitamin D3 5000iu x 2
Omega3 fish oil 1360mg (952mg EPA/DHA) x 3
Multibionta multivitamin with probiotics and minerals x 1

To be added shortly once packages arrive:

Vitamin e 400iu x 2
Magnesium bis-glycinate with calcium x 4

I hope I got it right please advise if I should be adding anything further. BTW I returned to work today. Being the first day it was a bit overwhelming. Back in tomorrow then rest it up. I don't want to start singing praises yet but do feel the regime has helped today.

I have never in my life devoured so many caplets, tablets. omg at PCS.

Regards
Rosa
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Old 05-07-2014, 04:40 PM #15
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Originally Posted by SarahSmile0205 View Post
I have days where I feel fine... I am happy nothing ****** me off and then I have days or hours where I just want all this over with... I want to feel like me again... I want to be able to work... I want to feel like I am not the only one that feels like this...

I am on Nortriptylin which I have read is a anti-depressant... how long does this take to work? I have been on since 4-24... this is the only med I am on now...

ideas, suggestions?

I can definitely relate to what you are feeling! Some days I am very happy and coping great with everything and the next day, or even just a few hours later I will be depressed having serious thoughts of suicide and such.

I let myself feel like crap for maybe a day or a few hours without doing anything more than I want(which is usually to lie in bed watching a movie or tvshow not talking to anyone or doing anything at all), and then I force myself to get up and I start distracting myself by going outside, playing with my dog, being around people, and I find that I can snap out of this state of depression as long as I am distracted.

As quickly as I can drop into it, I seem to be able to pull myself out. It's constantly up and down.

I am trying to figure out what triggers these depressive states for me so I can be proactive but so far I havent come up with much except for stress, which I guess is anything and everything hehe. I feel kind of ashamed of having these extreme ups and downs and before my head injuries I had never experienced this kind of cycling mood, it was more stable either depressed or not for longer periods of time. I don't really know how to handle it except for distraction, but I hope it helps you to know you're not alone!
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Old 05-07-2014, 04:50 PM #16
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Rosa,

A B-50 complex has 50 mgs of most B's and 50 mcgs of B-12

A B-100 complex has 100 mgs of most B's and 100 mcgs of B-12.

You should be fine with just one B-100 complex per day.

Your D3 is probably more than you need. Most do well with just one 5000 iu per day.
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Old 05-07-2014, 07:53 PM #17
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Sarah,

50mg is still on the low-mid end for the anti-depressant/anti-anxiety properties of nortriptyline, though I could see why your doctor wouldn't want you on both drugs. If it is intended to treat your anxiety in addition to headaches, give it a few more weeks to kick in and if it's not helping, you should tell your doctor that it's working for one but not the other - he might titrate the dosage to 75 or 100mg, as finding the right dose can vary by person. Additionally, it is always worth speaking to a psychologist or psychiatrist, as a lot of research on anxiety suggests that the most marked improvements come from a combo of the right medication and cognitive-behavioral therapy. Of course, the research that I've read is not in patients with TBI; the study that Hockey posted is about TBI patients, though, and seems to imply that a multi-mode approach is best.

Lunalu - have you tried journaling? It's really challenging to retrospectively evaluate triggers or specific stressers, but if you can record things you might be able to find more useful patterns. It sounds like you're working hard at figuring out how to cope, and especially at getting up and out when you know you need it - keep it up and I hope things improve.

Also: Please, if you are ever having serious thoughts of suicide (or even a passing, non-serious thought), know that there are resources to help you. You should never hesitate to call the national suicide prevention hotline if you are in the US: http://www.suicidepreventionlifeline.org/ 1-800-273-8255, and other countries have similar services. There are caring counselors who will talk 24/7.
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