 |
|
| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
| Reply |
|
|
Thread Tools | Display Modes |
06-01-2014, 10:42 AM
|
#1 | ||
|
|||
|
Member
|
I use an app called Map My Walk to track my walks around the neighborhood.
Today, I hit a big milestone: 1 mile. Well, actually 1.05 miles. I have been slowly working up to this distance for months now, and I am very proud of my progress so far. When I first started my post-concussion walks, I couldn't even do a .25 of a mile without getting dizzy and nauseous, plus experiencing tons of head pressure and intense headaches. I'd feel extremely fatigued when I finished, as if I had just run a marathon or something. Walking also caused a major sensory overload for me - the cars, the people, the curves of the road, the noise - it was all too much for me. I have found that wearing sunglasses and walking during times when my neighbors are at work/school (so very little traffic or noise) helps a lot. I pulled some of my stats off of Map My Walk today. A few months ago, I walked half a mile, and it took me almost 40 minutes. Today I walked 1 mile, and it only took me 20 minutes and 12 seconds. Prior to the concussion, I walked at least 2 miles a day, and it was not uncommon for me to do 5-7 miles in one day if I had nothing else going on. Growing up, I ran cross country and track. Being athletic was a big part of my life. I was terrified that I'd never have the ability to walk for more than 5 or 10 minutes again, so I am so thankful that things are getting easier on me physically. I see the light at the end of the tunnel. I hope to be able to do a 5K again one day, and I'm starting to believe that it might actually happen. Thanks for letting me share.
__________________
It is what it is. . |
||
|
 Reply With Quote
|
|
06-01-2014, 05:41 PM
|
#2 | |||
|
||||
|
Member
|
I am so happy for you!! That is huge!
I was working out about 2 hours a day before my accident... right now, 10 minutes is about all I can do... it is very depression! and I feel very defeated! I am just over the moon happy for you! hopefully we can all get back to what we love one day in the sooner than later future...
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | greenfrog (06-02-2014), MomWriterStudent (06-01-2014) |
|
06-01-2014, 05:49 PM
|
#3 | ||
|
|||
|
Member
|
I'm also very happy for you! that's an achievement!
I couldn't walk anywhere last year, also used to walk/hike a lot but still have to be careful, always walk in quiet places, too hard with many people/noises around. Very happy for you and I hope you continue to improve, don't do too much too soon though!! 
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | greenfrog (06-02-2014), MomWriterStudent (06-01-2014) |
|
06-01-2014, 07:18 PM
|
#4 | |||
|
||||
|
Member
|
Walking is my fav. exercise, and it helped me a lot with recovery too. 1.5 is a great mile stone.
Keep it all going gently in that direction. Take care poetrymom
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | greenfrog (06-02-2014), MomWriterStudent (06-01-2014) |
|
06-01-2014, 10:01 PM
|
#5 | ||
|
|||
|
Member
|
Wonderful! Keep progressing!!!
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | greenfrog (06-02-2014), MomWriterStudent (06-02-2014) |
|
06-02-2014, 09:16 AM
|
#6 | |||
|
||||
|
Member
|
Nice PoetryMom! How liberating it must feel to get out there and go!
I take short walks as of now. It doesn't get the blood going though. I bought two walking sticks to use when I walk to get my arms going and get some cardio. Haven't tried it yet but hoping it works. Target sells them in a two pack for $20. Good quality. There's a lot online about walking with walking sticks. Keep it up! 
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MomWriterStudent (06-06-2014) |
|
06-02-2014, 03:15 PM
|
#7 | ||
|
|||
|
Junior Member
|
Great job!
__________________
What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks. Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia. And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc. |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MomWriterStudent (06-06-2014) |
|
06-02-2014, 08:16 PM
|
#8 | ||
|
|||
|
Junior Member
|
That's great progress, good for you! It's always nice to be able to look back and see how far you've come.
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MomWriterStudent (06-06-2014) |
|
06-05-2014, 11:03 PM
|
#9 | |||
|
||||
|
Junior Member
|
Congratulations!!!!
|
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MomWriterStudent (06-06-2014) |
|
06-06-2014, 06:41 AM
|
#10 | ||
|
|||
|
Member
|
That's good to hear, walking helped me a lot, a couple of times in the early days I felt awful while on a walk, foggy headed and anxious but persevered and always felt much better afterwards. I hear it stimulates brain blood flow which concussion negatively affects. I'm sure you'll build it up further bit by bit and walking will no longer be an issue.
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MomWriterStudent (06-06-2014) |
| Reply |
|
|
Big Fitness Achievement for Me
Linear Mode
