Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-06-2014, 04:14 PM #1
shortcircuit shortcircuit is offline
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Default Advice? Difficulty returning to work and pushing through. Harmful?

I suffered a concussion as a result of an assault 2 months ago. Symptoms improved fully after two weeks, after which I hit my head a week after that (not too hard, but hard enough) on a door frame while unloading a van and everything came back full force. Since, things have been up and down, but not consistently normal. My current symptoms include dizziness and lightheadedness, disorganization, brain fog, mild headaches, "slow" thinking, pressure feeling in head, anxiety/panic attacks with physical symptoms including heart palpitations, very mild tremor in hands and jaw, low energy, and intolerance to alcohol, caffeine, and heat, also patterns (i.e. checkered floors in large spaces like the mall or airport make me feel dizzy/weird, etc... anyone experienced that one?? never heard of it..) Initial symptoms of severe headache, (one) hallucination, and numbness/tingling in random areas have subsided. Have had one CAT scan immediately after the incident (normal) and was recommended another, which was also normal, a little over a month after as a follow-up due to jaw tremor symptoms (seizure suspicion, everything was fine though.) Since the beginning have been on a supplement regimen of fish oil, magnesium, turmeric, b vitamins, resveratrol, green tea extract. Was prescribed lorazepam for panic attack symptoms. (never have been on psych meds before). Improved a week before my seasonal job started, which is as a field botanist in the Great Basin in Nevada. Involves lots of camping and hiking in hot desert conditions for 4-8 days at a time.
I have since returned to work last week and I love my job. But, my symptoms are raging and are making it very difficult to be here. I offroad a lot in the work truck and the jostling is really hard to handle. makes me feel like my head is full of pressure and it just hurts. I am not able to adjust to the heat as I have in the past and have gotten dizzy and out of it very easily which is un-nerving out in the wilderness. My co-worker told me the first time it happened I got very pale (to be fair,that was the first day we were out and I think I really needed to be drinking more water..) I lay down to sleep at night in my tent and it feels like my head immediately swells and I have to struggle to sleep.
I really don't want to quit my job. It's awesome. And I feel terrible that I flew out here from across the country and I may have to quit after only one week. Is it harmful to push through these symptoms? Will my body adjust?
This has been a weird and long road, it feels like, although from reading this forum I know a lot of you have been dealing with this for much longer and I hope to not offend you by saying that. I would really like to e-mail someone as a mentor about some of these issues if anyone is up for it and has some hope they would like to share. yesterday i just broke down and cried after returning from my stint in the desert. I haven't had the energy to cry up until this point. I feel defeated but I don't want to give up on this job that is so important to me.
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Old 06-06-2014, 04:51 PM #2
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I've been at this TBI thing for over 3 years now. I have not returned to work, but I am taking graduate classes. (My doctors feel if I finish my degree, I have less of a chance re-injury, due to the nature of my job).

Anyway, are you doing harm by pushing through? Technically no. However, your brain is only going to let you push so hard for so long before you are dealing with really severe symptoms. (I've done this a few times and ended up in bed for like a month). The long and short of it is, each time you over do it (i.e. your symptoms increase), you are adding on to your recovery time.

Believe me, I know how horrible it is to not be able to do the job you love. (I've dealt with huge depression over this since my accident.) My hope is that as I continue to take care of myself with various therapies, that when I finish my degree my brain and body will be ready for me to go back to what I love.

For the dizziness from patterns that you mentioned, I too have issues with this. It triggers seizures in me Have you had your vestibular system's function and your vision checked since this started? Both can really play a part in causing dizziness and disorientation caused by seeing such patterns.
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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Old 06-06-2014, 04:54 PM #3
Mark in Idaho Mark in Idaho is offline
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shortcircuit,

Welcome to NeuroTalk. Sorry to hear about your struggles.

What you are experiencing is not uncommon. You will not likely cause further injury by pushing but you will delay your recovery. Your symptoms may even become worse from your over-extending yourself.

I wish I had more advice for you. Heat can be tough. Getting plenty of water will be important. The off-roading can be a big issue. It can help when the road get rough to sit forward with your back off the back of the seat. This posture allows your spine to flex more and absorb more of the bumps.

I think you biggest challenge will be the rough ride.

You can help us out by putting a double space every 5 or 6 lines. Many of us have vision struggles that make it hard to follow from the end of one line to the start of the next. Short paragraphs make this much easier. I struggled but was finally able to read your post.

My best to you.
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Old 06-06-2014, 05:03 PM #4
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Unfortunately I had to read others posts because I can not read the original... like Mark said I am one that struggles with visual stuff...

I have tried to have the push through and while it may not be detrimental to my brain it can have ill effects in that I get dizzy and run into things or fall down.

I am sorry you are struggling, and welcome! You are in great company! There are several of people who have lots of knowledge, I am still very new to all this and ask lots of questions myself.
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 06-06-2014, 05:16 PM #5
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Default edited post with double-spacing- thanks Mark!

I suffered a concussion as a result of an assault 2 months ago. Symptoms improved fully after two weeks, after which I hit my head a week after that (not too hard, but hard enough) on a door frame while unloading a van and everything came back full force.


Since, things have been up and down, but not consistently normal. My current symptoms include dizziness and lightheadedness, disorganization, brain fog, mild headaches, "slow" thinking, pressure feeling in head, anxiety/panic attacks with physical symptoms including heart palpitations, very mild tremor in hands and jaw, low energy, and intolerance to alcohol, caffeine, and heat, also patterns (i.e. checkered floors in large spaces like the mall or airport make me feel dizzy/weird, etc... anyone experienced that one?? never heard of it..)


Initial symptoms of severe headache, (one) hallucination, and numbness/tingling in random areas have subsided. Have had one CAT scan immediately after the incident (normal) and was recommended another, which was also normal, a little over a month after as a follow-up due to jaw tremor symptoms (seizure suspicion, everything was fine though.)


Since the beginning have been on a supplement regimen of fish oil, magnesium, turmeric, b vitamins, resveratrol, green tea extract. Was prescribed lorazepam for panic attack symptoms. (never have been on psych meds before). Improved a week before my seasonal job started, which is as a field botanist in the Great Basin in Nevada. Involves lots of camping and hiking in hot desert conditions for 4-8 days at a time.


I have since returned to work last week and I love my job. But, my symptoms are raging and are making it very difficult to be here. I offroad a lot in the work truck and the jostling is really hard to handle. makes me feel like my head is full of pressure and it just hurts.


I am not able to adjust to the heat as I have in the past and have gotten dizzy and out of it very easily which is un-nerving out in the wilderness. My co-worker told me the first time it happened I got very pale (to be fair,that was the first day we were out and I think I really needed to be drinking more water..) I lay down to sleep at night in my tent and it feels like my head immediately swells and I have to struggle to sleep.


I really don't want to quit my job. It's awesome. And I feel terrible that I flew out here from across the country and I may have to quit after only one week. Is it harmful to push through these symptoms? Will my body adjust?


This has been a weird and long road, it feels like, although from reading this forum I know a lot of you have been dealing with this for much longer and I hope to not offend you by saying that. I would really like to e-mail someone as a mentor about some of these issues if anyone is up for it and has some hope they would like to share. yesterday i just broke down and cried after returning from my stint in the desert. I haven't had the energy to cry up until this point. I feel defeated but I don't want to give up on this job that is so important to me.
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Old 06-06-2014, 05:30 PM #6
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SmilinEyes: I'm so sorry to hear that you have had to leave your job. Wishing you the best in returning. It is good that you were able to put your "down" time to good use though. I have been thinking about hunkering down and going back to school a lot the past week.


I have not tried vision/vestibular assessment but I have noticed a movement and "squishing" in one of my ears since the concussion. neurologist says "that's normal" but from reading this forum it seems like that may be a sign of something potentially fixable?


smilineyes, sarah and mark: the advice you gave me makes sense. I think I am going to try some symptom management before I make the decision to quit.


(i.e. pillows on the seat and good posture when off-roading, tons of water/electrolytes, and resuming some anti-inflammatory supplements/heavier b-vitamin dosage and possible some Traumeel as well- have you tried that? My dog was prescribed it for arthritis and I tried some on a bad day and it seemed to help...)


I can't help but to feel spiteful toward the concussion- like it's an enemy that I don't want to let run my life. thank you for the thoughtful responses and I'm sorry my post was so hard to read- hopefully the edited version I posted underneath helps


Good luck to everyone in their recovery.
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Old 06-06-2014, 07:33 PM #7
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Actually, you want bad posture when riding off-road. Your shoulders should be forward so you back is arched forward. This allows for back flexing to help absorb the bumps.

Traumeel is a homeopathic remedy. They do not state the dilution but arnica montana is usually diluted into oblivion. It is unlikely that a single dose has any molecules of the "active ingredients" in it.
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Old 06-06-2014, 09:26 PM #8
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Default Hello!

Hi There

So sorry to hear you are struggling with PCS. This is a very good place.

Mark gave you good advice. if there is any way you can leave your job and put recovery first, you will get better faster. That requires leading a dull life for awhile.

If you have to work with this, and some do, then see if you can take mental breaks from work. As for the heat,i don't know what to say. Heat can bother me too even now.

Anyhow, keep asking questions and people will weigh in to try and help you. Just know that your symptoms are real and we can understand what you are going through.

Sincerely,

poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 06-07-2014, 12:29 AM #9
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Hi,

Those are some long paragraphs and today I just can't do them. So I'm going off your title only.

I can not work. Boy if I could count how many times I've over-done it just trying to live life. It's my crutch of denial...I feel decent and think hey I'm improving and it may not hit me immediately but later on...BAM!

It's a knock out punch. Too much Monday put me down Tues and Wed. Too much Thurs put me out for 17 1/2 hours.

What I've noticed is I'm not getting worse in the sense of my PCS and other issues. It just takes me time to recuperate and then I'm back where I was before over doing it.

ThursDay I knew I was over doing and I knew the consequences ahead of time but it was worth it to watch parts of my daughters game, and talk to past student and parents of mine.

I had a choice. I made it.

Good luck to you and be good to yourself.

Jace
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.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 06-08-2014, 02:03 PM #10
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Default quitting.

well i have only gotten progressively worse on my days off, when i had hoped i'd get better.

headaches, vertigo, dizziness, vision problems, nausea.

worsening even as i lay in bed constantly.

i'm going to quit the only job i've ever loved tomorrow morning.

really, really sad.

thanks for the advice everyone. i hope this will disappear someday..
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