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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-11-2014, 05:18 PM | #41 | |||
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Thank you!!!!!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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06-11-2014, 05:29 PM | #42 | |||
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Magnate
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Quote:
I've already spent a fortune to get private cognitive therapy. As I'm no longer contributing an income, I don't know how much more of my family's resources I can devote to my health problems. |
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06-11-2014, 05:42 PM | #43 | |||
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My mom read all that you posted and said that she thinks this test is a great idea... Do you know the name of the test that was done?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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06-11-2014, 06:15 PM | #44 | ||
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The following is what you should start with and then the results of these lab screens should indicate if further testing (stimulation testing) is needed.
Recommended NED screening labs: (local and lab specific reference ranges should be utilized to determine deficiencies) 0800 cortisol levels (<12 mcg/dl recommend follow up) LH (luteinizing hormone) FSH (follicle stimulating hormone) PRL (prolactin) IGF-1 (insulin-like growth factor) TSH (thyroid stimulating hormone) FT4 (free thyroxine) 0800 testosterone for males or estradiol for females |
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"Thanks for this!" says: | MomWriterStudent (06-11-2014), SarahSmile0205 (06-12-2014) |
06-11-2014, 06:17 PM | #45 | ||
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The blood screening test wouldn't cost too much... |
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06-11-2014, 07:15 PM | #46 | |||
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Magnate
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Quote:
Doctors don't like to be second guessed and will often resist. At the end of the day, I have to decide if I'm up for (another) fight. |
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"Thanks for this!" says: | EsthersDoll (06-12-2014) |
06-12-2014, 11:37 AM | #47 | ||
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I did meet at least one Dr. (the one I'm hopeful will retire soon that I mentioned earlier) whom I had the distinct impression that he did not like the fact that I had read up on so much of this stuff... imagine a Dr. feeling insecure about his patient's knowledge! At one point, he even asked me if I knew about all of this stuff why I even went to see him... my answer = so that he could order the test and my HMO would pay for it. He refused. I ended up paying out of pocket for it and in doing so proved him wrong/ignorant. C'est la vie. At the time I wasn't up for a real fight which is why I paid out of pocket for so many things. Luckily I was able to pay out of pocket and it all worked for me in the long run. But my heart goes out to those who don't have the energy or stamina to fight, who's Dr.'s are ignorant and who don't have the money to pay for things out of pocket... Below is a list of Dr.s in Canada who *might* know about this latest research that I gathered from the Pituitary Network Association's (PNA) website: http://pituitary.org/ Here is a link to PNA Canada: http://pituitary.org/news/featured-n...ciation-canada Amin B. Kassam, M.D. Professor, University of OttawaChief and Divisional Head, Department of Neurosurgery The Ottawa Hospital Ottawa, Ontario Canada Phone: 613-798-5555 16248 Fred Gentili, M.D., MSc., FRCSC Professor of Neurosurgery University of Toronto Toronto General Hospital TorontoON Canada Phone: 416-603-5250 Salvatore Di Maio, MDCM, FRSC(C) Assistant Professor, Cerebrovascular and Skull Base Neurosurgery Jewish General Hospital; McGill University MontrealQuebec Canada Phone: 514-340-8222 Sylvia L. Asa, M.D., Ph.D. Professor, Department of Laboratory Medicine and Pathobiology, University of TorontoPathologist-in-Chief and Medical Director, Laboratory Medicine Program, University Health Network University of Toronto TorontoOntario Canada Phone: 416-340-4802 Shereen Ezzat, M.D., FRCP(C), FACP Professor of Medicine & Oncology, University of Toronto; Head, Endocrine Oncology Site Group, University Health Network Toronto General Hospital Toronto, Ontario Canada Phone: 416-340-3316 Omar Serri MD, PhD Professor of Medicine CHUM Notre Dame Hospital Montreal Canada Phone: 514-890-8000 Email: Email Margaret Leslie England MD., FACE Manitoba Clinic Winnipeg Canada Phone: 310-855-4496 |
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"Thanks for this!" says: | Hockey (06-12-2014) |
06-12-2014, 12:02 PM | #48 | |||
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I have my list and will take to my GP and neuro to have them run the tests... I can not thank you enough for bringing this to my attention!
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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06-12-2014, 06:28 PM | #49 | |||
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Magnate
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[QUOTE=EsthersDoll;1075340]You are absolutely right. It does take extra energy to be able to tackle something like this - even in the US where I can pay privately for lots of different tests and scans... especially in LA...
I did meet at least one Dr. (the one I'm hopeful will retire soon that I mentioned earlier) whom I had the distinct impression that he did not like the fact that I had read up on so much of this stuff... imagine a Dr. feeling insecure about his patient's knowledge! At one point, he even asked me if I knew about all of this stuff why I even went to see him... my answer = so that he could order the test and my HMO would pay for it. He refused. I ended up paying out of pocket for it and in doing so proved him wrong/ignorant. C'est la vie. At the time I wasn't up for a real fight which is why I paid out of pocket for so many things. Luckily I was able to pay out of pocket and it all worked for me in the long run. But my heart goes out to those who don't have the energy or stamina to fight, who's Dr.'s are ignorant and who don't have the money to pay for things out of pocket... Below is a list of Dr.s in Canada who *might* know about this latest research that I gathered from the Pituitary Network Association's (PNA) website: http://pituitary.org/ Here is a link to PNA Canada: http://pituitary.org/news/featured-n...ciation-canada Amin B. Kassam, M.D. Professor, University of OttawaChief and Divisional Head, Department of Neurosurgery The Ottawa Hospital Ottawa, Ontario Canada Phone: 613-798-5555 16248 Fred Gentili, M.D., MSc., FRCSC Professor of Neurosurgery University of Toronto Toronto General Hospital TorontoON Canada Phone: 416-603-5250 Salvatore Di Maio, MDCM, FRSC(C) Assistant Professor, Cerebrovascular and Skull Base Neurosurgery Jewish General Hospital; McGill University MontrealQuebec Canada Phone: 514-340-8222 Sylvia L. Asa, M.D., Ph.D. Professor, Department of Laboratory Medicine and Pathobiology, University of TorontoPathologist-in-Chief and Medical Director, Laboratory Medicine Program, University Health Network University of Toronto TorontoOntario Canada Phone: 416-340-4802 Shereen Ezzat, M.D., FRCP(C), FACP Professor of Medicine & Oncology, University of Toronto; Head, Endocrine Oncology Site Group, University Health Network Toronto General Hospital Toronto, Ontario Canada Phone: 416-340-3316 Omar Serri MD, PhD Professor of Medicine CHUM Notre Dame Hospital Montreal Canada Phone: 514-890-8000 Email: Email Margaret Leslie England MD., FACE Manitoba Clinic Winnipeg Canada Phone: 310-855-4496[/QUOT WOW!!!! Thanks for taking the time to provide me with this info. |
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"Thanks for this!" says: | SarahSmile0205 (06-12-2014) |
06-12-2014, 07:05 PM | #50 | |||
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Ok... since we seem to have gotten off topic I am going to ask... I am having a hard time regulating my temperature.. normal? I mean i know it is not normal but do i need to be concerned?
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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