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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-18-2014, 09:41 PM | #11 | ||
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Magnate
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I responded on your thread about SFN . If you get a chance check out. I had for a short time used Lyrica and Cymbalta with nasty side effects. I know you had mentioned being on these meds. The Cymbalta caused me the "foggy brain" you mentioned. I needed to get off asap. That might be adding to some of yours issues as well. I think the hardest thing for most of us to deal with is feeling guilt about complaining or the inability to clean, cook, etc., as well as we once did. Also others thinking we are faking really hurts; especially family. Gerry |
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"Thanks for this!" says: | Hockey (06-26-2014), St George 2013 (06-18-2014) |
06-18-2014, 10:27 PM | #12 | |||
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Hi there
I found this forum early on in my injury and have hung out here because it's such a good place. I got no info on food, vitamins or supplements from my neuro, but luckily I found that and people who would GET IT here. One thing you might try with your family is this. There is a good series on YouTube called YOU LOOK GREAT inside a mTbi. It takes about an hour to watch. If they would watch it with you ith could shed some light. All brain injured people need some space and slack. Wishing you a good day poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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06-19-2014, 11:06 PM | #13 | |||
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"Thanks for this!" says: | music-in-me (06-20-2014) |
06-23-2014, 09:30 AM | #14 | ||
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I have been told aside from this horrible condition I am a perfectly healthy petit women. This will not cause death. I guess as my neurologist at the Cleveland Clinic said" this is the new me". Adapt. At this moment I am on the last thing I am trying Lyrica with our any effect at all. I am taking 50mg twice a day. I am sure they will want to up it but I think I will elect to go off it and just try and learn to live with this horror that I feel strongly was brought no by the vaccine |
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"Thanks for this!" says: | ger715 (06-23-2014), St George 2013 (06-23-2014) |
06-23-2014, 10:07 AM | #15 | ||
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Posada.....Adapt....easy to say but very hard to do. But I guess we are all finding our 'new normal' as they say. I am so sorry you are going through this and had to sell your home My journey with SFN is only a little over a year old and I see no end in sight. I have not tried anything except what the neuro prescribed but have decided to go on B-12 first and see if it helps any. I'm on gabapentin and a small dose of Cymbalta for the SFN....I take vicodin every three hours to try and keep the pain level to where I can try and deal with it. Oh the joys we all share. Take care and keep us posted on how you're doing Debi from Georgia |
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"Thanks for this!" says: | ger715 (06-23-2014) |
06-25-2014, 06:14 PM | #16 | ||
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I find I have a hard time expressing what symptoms Im experiencing and how noise and light are affecting me. But i found the book "Brainlash" by Gail Denton really made a light go on in my head. I photocopied the checklist chapter of the book for my boyfriend and my mom and checked all of my symptoms so that they would have a better understanding. Its been helping because i can refer to it if I'm having a hard time explaining myself, which happens a lot.
I try not to take the things my friends and family say personally, I think they just don't realize what we are going through. So i think the checklist helps them understand a bit more. |
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"Thanks for this!" says: | Superstition (06-26-2014) |
06-26-2014, 09:02 AM | #17 | ||
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Oh, I get that, 100%. My family does not understand yet (married 24 years) and I've been told to suck it up from time to time. I can't begin to explain how difficult work is with those issues. Memory and concentration issues as you describe them is the bane of my existence. YOU DON'T HAVE TO SUCK IT UP, you can adapt to your new reality. I'm finding that a smart phone can be very a helpful tool for remembering things and I'm trying other tactics as well, and the more I work at it, the more I notice little improvements. You can too.
Your brain can and will adapt if you give it the chance. Jamie
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Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea |
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06-26-2014, 11:41 AM | #18 | ||
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"Thanks for this!" says: | music-in-me (06-26-2014) |
06-26-2014, 11:28 PM | #19 | ||
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