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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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Junior Member
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It takes time for amitriptyline to take effect. I also started on 10mg and that took at least 8 days to take effect. Like you when I started I felt worst but that soon passed and did assist with the headaches and overall a well feeling. Stick with it and you will see a difference. Regards Rosa |
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#2 | ||
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Member
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Your headaches specifically got worse? Have you had to increase dosage, and is that generally common? Ideally I'd like to not be on this for too long.
Also, how can I determine if you're pushing too hard too soon if I'm interrupting the signal of headaches with medicine? Should I just do nothing while I'm on this stuff? |
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#3 | ||
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Legendary
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Laupala,
Why don't you list all of the activities you want to do. I'll try to give you some feedback about whether they are pushing too much. You need to keep in mind that many symptoms will have a delay after the triggering activity. Trying to micro analyze is a losing game.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#4 | ||
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Member
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Thanks for the response and your time. OK, here are some of the activities I've been doing while trying to quietly rest.
Play solitaire, backgammon, etc. (sometimes exacerbates headache) Shuffle cards Sit quietly outside Meditation Reading (A month and a half ago I was able to read a full New Yorker magazine without exacerbating symptoms, I've since cut back dramatically as shorter reading bouts seem to exacerbate symptoms more easily now) Listening to audiobooks (Just started this today actually, hard to know what effect it's having) I'm thinking of trying painting - never done it, but might be relaxing Computer work (Trying to not let emails and contact with the outside world completely go, I should be more diligent about limiting this) Listening to music (usually classical, generally seems OK, although sometimes exacerbates headache) Conversing with friends and family (rarely exacerbates headache) Cooking Walking (1.5 months ago was doing 30-40 minute bike rides, back to doing short walks, they don't seem to make the headaches much worse, but sometimes they flare up) I've been trying to generally do a 2 hours of "activity", 30 minutes of rest (i.e. laying down, icing neck, etc.) |
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#5 | ||
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Legendary
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They all sound fine except conversing can be tough if there are too many people talking, especially if they end up try to talk over each other. A two way conversation should be fine.
You could get a book on card tricks and try to learn slight of hand card tricks. I would limit the computer to ten minutes at a time.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#6 | ||
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Member
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Does the 2 hours of activity 30 minutes of rest formula sound like a good one? Or should I be more conservative at first?
I've felt worse the past few days than I have since the concussion, certainly worse in terms of variety of headaches, and I feel I'm less able to concentrate, and the ringing in the ears is a totally new symptom. Is it possible to have setbacks worse than the initial injury? Or could this be a cumulative effect of head bumps, my last one being the straw that broke the camels back? Or side effects of the amitriptyline? Or just the stress from travel and an emotional week last week? I've been keeping my anxiety somewhat reined in (I think because I'm just exhausted from worrying). I'm sure it's an interplay of all of these, and I'm starting to be OK with not knowing, but part of me still really wants to know why! |
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#7 | ||
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Legendary
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Your increase in symptoms are NOT from an accumulation of head bumps. That question has been asked and answered over and over.
You need to learn to gauge your activity. There is no formula of 2 hours activity, 30 minutes rest. Each activity has its own stress level. If you notice a spacy feeling, stop and take a break. If you are reading and need to reread a line, stop and take a break. I believe your struggles are from how you deal with stress and possibly increase stress by trying to understand every little symptom. You need to get your anxiety under control. There are NO worthwhile answers to your why questions. Over time, you might start to notice trends. 2 hours of reading could set you back. Or, participating in a multi-person conversation may cause a crash. Only you can connect the dots. Find something simple to occupy your mind with. You need to find some somewhat sedentary activities. What would you be doing if you broke you leg badly and needed to be sedentary for a month ? Learn to play a musical instrument like the guitar or something. Learning to play guitar chords and pick at the strings could occupy lots of time. Or. learn to tie fishing flies. There are lots of activities that are just manual based with no need to be out and about.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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