Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 06-24-2014, 01:05 PM #1
Afrochick73 Afrochick73 is offline
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Quote:
Originally Posted by Laupala View Post
Hi everyone,

I've started on 10mg of amitryptiline each night to try to help with sleep and headaches. I know that it takes some time to feel the effects, but I'm wondering if anyone experiences worsening headaches from just starting amitryptiline? I'm on day 2 and it seems that my headaches have gotten worse.

I'm afraid I may have complicated the situation my first night of taking it, when I woke to go to the bathroom and was sort of dizzy after opening the door and kind of fell into it. I didn't hit my head at all, but it was jarring (and if you've seen other threads I've started you know I have a non-helpful fear of minor head bumps) and caused me to not get great sleep the rest of the night. So, maybe my worse headaches are from this jolt, but even I'm doubtful, as it wasn't that forceful and I think I was so startled just because I was sleepy.

Thanks
Hi,

It takes time for amitriptyline to take effect. I also started on 10mg and that took at least 8 days to take effect. Like you when I started I felt worst but that soon passed and did assist with the headaches and overall a well feeling. Stick with it and you will see a difference.

Regards
Rosa
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Old 06-24-2014, 02:13 PM #2
Laupala Laupala is offline
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Your headaches specifically got worse? Have you had to increase dosage, and is that generally common? Ideally I'd like to not be on this for too long.

Also, how can I determine if you're pushing too hard too soon if I'm interrupting the signal of headaches with medicine? Should I just do nothing while I'm on this stuff?
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Old 06-24-2014, 03:27 PM #3
Mark in Idaho Mark in Idaho is offline
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Laupala,

Why don't you list all of the activities you want to do. I'll try to give you some feedback about whether they are pushing too much. You need to keep in mind that many symptoms will have a delay after the triggering activity. Trying to micro analyze is a losing game.
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Old 06-24-2014, 03:39 PM #4
Laupala Laupala is offline
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Thanks for the response and your time. OK, here are some of the activities I've been doing while trying to quietly rest.

Play solitaire, backgammon, etc. (sometimes exacerbates headache)

Shuffle cards

Sit quietly outside

Meditation

Reading (A month and a half ago I was able to read a full New Yorker magazine without exacerbating symptoms, I've since cut back dramatically as shorter reading bouts seem to exacerbate symptoms more easily now)

Listening to audiobooks (Just started this today actually, hard to know what effect it's having)

I'm thinking of trying painting - never done it, but might be relaxing

Computer work (Trying to not let emails and contact with the outside world completely go, I should be more diligent about limiting this)

Listening to music (usually classical, generally seems OK, although sometimes exacerbates headache)

Conversing with friends and family (rarely exacerbates headache)

Cooking

Walking (1.5 months ago was doing 30-40 minute bike rides, back to doing short walks, they don't seem to make the headaches much worse, but sometimes they flare up)

I've been trying to generally do a 2 hours of "activity", 30 minutes of rest (i.e. laying down, icing neck, etc.)
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Old 06-24-2014, 05:03 PM #5
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They all sound fine except conversing can be tough if there are too many people talking, especially if they end up try to talk over each other. A two way conversation should be fine.

You could get a book on card tricks and try to learn slight of hand card tricks.

I would limit the computer to ten minutes at a time.
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Old 06-25-2014, 05:08 PM #6
Laupala Laupala is offline
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Does the 2 hours of activity 30 minutes of rest formula sound like a good one? Or should I be more conservative at first?

I've felt worse the past few days than I have since the concussion, certainly worse in terms of variety of headaches, and I feel I'm less able to concentrate, and the ringing in the ears is a totally new symptom. Is it possible to have setbacks worse than the initial injury? Or could this be a cumulative effect of head bumps, my last one being the straw that broke the camels back? Or side effects of the amitriptyline? Or just the stress from travel and an emotional week last week?

I've been keeping my anxiety somewhat reined in (I think because I'm just exhausted from worrying). I'm sure it's an interplay of all of these, and I'm starting to be OK with not knowing, but part of me still really wants to know why!
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Old 06-25-2014, 05:28 PM #7
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Your increase in symptoms are NOT from an accumulation of head bumps. That question has been asked and answered over and over.

You need to learn to gauge your activity. There is no formula of 2 hours activity, 30 minutes rest. Each activity has its own stress level. If you notice a spacy feeling, stop and take a break. If you are reading and need to reread a line, stop and take a break.

I believe your struggles are from how you deal with stress and possibly increase stress by trying to understand every little symptom. You need to get your anxiety under control.

There are NO worthwhile answers to your why questions. Over time, you might start to notice trends. 2 hours of reading could set you back. Or, participating in a multi-person conversation may cause a crash. Only you can connect the dots. Find something simple to occupy your mind with.

You need to find some somewhat sedentary activities. What would you be doing if you broke you leg badly and needed to be sedentary for a month ?

Learn to play a musical instrument like the guitar or something. Learning to play guitar chords and pick at the strings could occupy lots of time. Or. learn to tie fishing flies. There are lots of activities that are just manual based with no need to be out and about.
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