Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 06-25-2014, 03:21 AM #1
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Galaxy1012,

Your life may seem at the end but it's not. I've hit the bottom many times and it does eventually alleviate.

I highly suggest a neuropsychologist! This doctor knows all about the brain and can help you with understanding your injury, emotional problems, anxiety, and offer strategies to help you.

For the tinnitus which is frustrating I run a fan (photo included of what I use). It makes an even sound, not fluctuations, and does not light up my hyperacusis. It masks my ringing nicely.

image.jpg

You sound very depressed. Keep a journal of your moods if you can and whether you think your meds are working. Keep appts with psychiatrist to work out best med and dosage. Possibly something for anxiety too.

Keep reading on the forum and try to participate. You will come to realize that you aren't alone and there are many people to relate to.

Make a list of what helps with your anxiety and use it. Find an activity to do that you enjoy that doesn't push your symptoms into misery.

I'm coming off of a 'this really sucks &$@!%# and I'm in a dark place' bender. It's a horrific episode. Not having control of my emotions let alone a lot of my life is horrible but the fear of not being in control makes it worse.

These times do pass. Reach out. Hold on. You will make it through.

Jace
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 06-25-2014, 08:23 AM #2
Lolo82 Lolo82 is offline
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Hi,

I am so sorry to hear that things are so rough. I am only 3 weeks post-accident so I'm sure there are many more people on here with much better advice about dealing with the post-concussion symptoms. So, I'll leave that to them.

I just wanted to tell you, you are not alone. I understand feeling like your parents are the only people who get it. I have found myself cocooning into them because it feels like the safest place to be.

I am so sorry about your fiance. It sucks when situations like this arise and they reveal who people really are. You deserve someone who supports and uplifts you.

All the other people you feel are judging you, it's quite possible they aren't, they may just be completely inept at what to do, so they are giving you a wide berth. Definetely not okay but I've found people aren't the most reliable when it hits the fan. Moments like this help us sort out who to invest our time in and who not to.

I hope things get better for you. This may sound silly but do you have any pets? I know my two cats have helped me through a lot of these funks so far. I heard an old quote about a lonely, older woman with a cat who said, "it's just nice to have another heartbeat around." I can be completely concussed and foggy and they don't care. My four-year old, who I've raised since a kitten, won't leave my side. It's like he knows I'm hurt.
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