Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Reply
 
Thread Tools Display Modes
Old 06-24-2014, 10:34 AM #1
Galaxy1012 Galaxy1012 is offline
Member
 
Join Date: Jun 2014
Posts: 260
10 yr Member
Galaxy1012 Galaxy1012 is offline
Member
 
Join Date: Jun 2014
Posts: 260
10 yr Member
Default

Hi Mark,

I have seen 2 neuros and 2 ENTs so far. I had a brain MRI which was negative. Hearing tests have been normal upto 8khz and Otoacoustic emission test was negative which indicates no cochlear damage so none of the ENTs were serious about any potential treatment and keep reassuring me that Tinnitus would go away with time. I tried piracetam and Gingko for 20 days but no luck.

I havent had any neck evaluations. I am seeing my neuro tomorrow and will talk about it. I hope he will think about it seriously and will not send me back telling me its just a minor concussion and will get better with time.

I am also seeing a phychiatrist who gave me some antidepressants. My neuro told me to wait for sometime and not take them and see if his treatment is working.
Galaxy1012 is offline   Reply With QuoteReply With Quote
Old 06-24-2014, 11:34 AM #2
MomWriterStudent MomWriterStudent is offline
Member
 
Join Date: Dec 2013
Posts: 159
10 yr Member
MomWriterStudent MomWriterStudent is offline
Member
 
Join Date: Dec 2013
Posts: 159
10 yr Member
Default

I'm so sorry that you are going through this, Galaxy.

I had similar feelings during the first month or two of my concussion. I cried constantly and was like, "Why me? Why does God hate me so much? My life is over." I mean, I really felt like it was over and I had nothing to offer anyone.

Thankfully, that got better with time. I'm 6 months in now, and I feel a little bit better each day. My doctor originally said I'd recover within a few weeks...then a few months...and now he's saying a year or two. Recover fully, that is.

As far as your walking goes, I am up to 1.5 miles a day now. I used to struggle to even walk .25 of a mile. I would take 5 or 10 minute walks, very slowly. Now I do 1.5 miles in less than 30 minutes. For me, that's a huge improvement.

You're on the right track with your meds and supplements, it seems. I think you will continue to improve. I think I had a big improvement around 4 months. I'd have to check my journals.

Do you have an iPhone? I have an app called Map My Walk. It makes it easy for me to increase my mileage by just a little bit each day. It keeps track of how far you walk and how long it takes. That keeps me from overdoing it.
__________________
It is what it is.
.
MomWriterStudent is offline   Reply With QuoteReply With Quote
Old 06-24-2014, 12:08 PM #3
Galaxy1012 Galaxy1012 is offline
Member
 
Join Date: Jun 2014
Posts: 260
10 yr Member
Galaxy1012 Galaxy1012 is offline
Member
 
Join Date: Jun 2014
Posts: 260
10 yr Member
Default

Quote:
Originally Posted by MomWriterStudent View Post
I'm so sorry that you are going through this, Galaxy.

I had similar feelings during the first month or two of my concussion. I cried constantly and was like, "Why me? Why does God hate me so much? My life is over." I mean, I really felt like it was over and I had nothing to offer anyone.

Thankfully, that got better with time. I'm 6 months in now, and I feel a little bit better each day. My doctor originally said I'd recover within a few weeks...then a few months...and now he's saying a year or two. Recover fully, that is.

As far as your walking goes, I am up to 1.5 miles a day now. I used to struggle to even walk .25 of a mile. I would take 5 or 10 minute walks, very slowly. Now I do 1.5 miles in less than 30 minutes. For me, that's a huge improvement.

You're on the right track with your meds and supplements, it seems. I think you will continue to improve. I think I had a big improvement around 4 months. I'd have to check my journals.

Do you have an iPhone? I have an app called Map My Walk. It makes it easy for me to increase my mileage by just a little bit each day. It keeps track of how far you walk and how long it takes. That keeps me from overdoing it.
Thank you for your encouraging words. I am sorry for your struggle and hope you continue to improve further. I am still trying to figure out what happened. I am overwhelmed by the experience and I am somewhat denying that I had a trauma and things have changed. Really hard to accept. No doctor has been able to tell clearly what's happening to me and that's scary. I am trying to maintain a good diet and eating lots of fruits n veggies. I don't run or even bump/jar my head. I am avoiding all uncomfortable situations and really listening to my body and taking plenty of sleep n rest. You can say I have withdrawn myself from the life totally and just go for small walks. I will look into the app you suggested, seems helpful. Thanks
Galaxy1012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MomWriterStudent (06-26-2014)
Old 06-24-2014, 03:42 PM #4
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
15 yr Member
Default

Stressing out over tinnitus is a losing game. There is no rhyme or reason as to how and why we get tinnitus or when it may resolve, if it ever does. I have had tinnitus for over a decade. It gets very loud sometimes then, without any changes, it will lessen. A glass of cold water can trigger an increase in volume.

The best way to deal with it is to try to ignore it. The PCS brain tends to get obsessed with little stimulations. Trying to refocus on a distraction can be helpful. Sometimes, music or other background sounds can help.

I would not hold hope the stuff your neuro has you on will help with your depression. They are mostly memory aids. A broader B vitamin supplement might be worthwhile. L-Tryptophan and L-Theanine may help, too.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10

Last edited by Mark in Idaho; 06-24-2014 at 11:36 PM.
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 06-26-2014, 08:51 AM #5
Galaxy1012 Galaxy1012 is offline
Member
 
Join Date: Jun 2014
Posts: 260
10 yr Member
Galaxy1012 Galaxy1012 is offline
Member
 
Join Date: Jun 2014
Posts: 260
10 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
Stressing out over tinnitus is a losing game. There is no rhyme or reason as to how and why we get tinnitus or when it may resolve, if it ever does. I have had tinnitus for over a decade. It gets very loud sometimes then, without any changes, it will lessen. A glass of cold water can trigger an increase in volume.

The best way to deal with it is to try to ignore it. The PCS brain tends to get obsessed with little stimulations. Trying to refocus on a distraction can be helpful. Sometimes, music or other background sounds can help.

I would not hold hope the stuff your neuro has you on will help with your depression. They are mostly memory aids. A broader B vitamin supplement might be worthwhile. L-Tryptophan and L-Theanine may help, too.
Hi Mark,

I went to my psychiatrist today. She asked me whether I feel that nobody understands me I literally broke down and started crying like a baby in front of her. She has prescribed risdone mt 0.5(risperidone 0.5mg) and nexito 10(escitalopram 10mg) each once a day for 7 days . I am afraid they will give me bad tinnitus spikes. What can I expect after taking them as I have never taken any antidepressants in my life? Any ideas?
Galaxy1012 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Concussion, PCS, and then Numbness on the left side worstislucky Traumatic Brain Injury and Post Concussion Syndrome 3 10-31-2014 01:39 PM
What do you do when you hit rock bottom? peppermintpatty Reflex Sympathetic Dystrophy (RSD and CRPS) 19 07-31-2010 02:01 PM


All times are GMT -5. The time now is 06:16 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.