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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-29-2014, 12:07 PM
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I was wondering what you tell people you just meet?
Do you tell people right away, wait to get to know them a little, don't tell them until it becomes obvious there is something wrong, or never tell them unless they become your bosom friend? I usually tell people pretty quickly to explain my deep concern for people getting concussions and the reason I can't do certain things.
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused constant migraines, nausea, and dizziness/lack of balance. Migraine triggers are: light sensitivity (especially to florescent or bright lights) sound sensitivity (especially to high pitched or loud sounds) temperature sensitivity (especially to cold or extreme heat) activity (especially if breathing increases or head is jostled) pressure on head (sinuses, hats, headbands, sunglasses, pony-tails) lacks or quality (food, sleep, water) tension (stress, tight muscles, tired eyes, sickness) |
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06-29-2014, 12:32 PM
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It depends on my mood that day and how nice the person seems. I spend a lot of time alone (well, alone with my kids) these days because it's just easier.
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It is what it is. . |
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| "Thanks for this!" says: | EsthersDoll (06-30-2014) |
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06-29-2014, 08:27 PM
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Depends on the person... right now, I do not really meet anyone new... I do not go out and socialize because meeting new people means new names and I can not remember much.
The people that know me know either through me or my mom what my issues have been... so when people ask how I am my new standard answer is just "I'm fine" and they know that is code for " I am sick of talking about it, there is nothing new, my life still sucks"
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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06-29-2014, 08:32 PM
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i dont tell anyone. im lucky if i can concentrate long enough through the whole conversation. been at this new job for 7 months, met alot of the people that work there and only remember 5 or 6 names. hard enough to remember what i have to do.
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06-29-2014, 09:45 PM
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I just met a guy (eeee!!) and I told him when I was explaining why I was going to bed at 10 on a Saturday night. Mostly I don't bring it up unless I'm chatting with someone at work or something and the aphasia kicks in or something. Too much of a hassle.
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks. Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia. And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc. |
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| "Thanks for this!" says: | EsthersDoll (06-30-2014) |
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06-29-2014, 10:21 PM
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When something comes up that reveals my limitations, I usually say that due to a brain injury, I do not process sensory stimulation properly. I might mention that my visual and audio processing does not function correctly. Often, the subject is brought on by the fact that I do very limited driving. I may say that I do not process all the traffic around me properly.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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06-30-2014, 11:39 AM
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Quote:
I used to say something similar to people, especially if I exhibited something that warranted an explanation, but as I've gotten better I've noticed that many people I encounter (like cashiers at the Pharmacy or servers in a restaurant or at the food counter) don't have either the intelligence or the education to understand what I'm saying... and they also don't have the attention span. Most of the time, I just try to simplify it for the sake of expediency as I live in a city, and I say, "I'm a brain injury survivor". I think when I say things like "Aphasia" or "Pituitary Gland" most people have no idea what I'm talking about and they don't really care... |
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