Yes!!! Mine was the occipital nerves that start in the upper thoracic and run up the neck, back of head, up and to the front!

markneil1212 have you had those nerves burned???? I had very dark thoughts for many months before I had occipital nerve ablation. I lived in bed in the dark with frozen peas, a pillow covering my head and total darkness.

Like Mark said minute by minute, use prayer, reach out here... We can't fix it but we can let you know you are NOT ALONE.

I lost my career as a teacher, my ability to save for the future, to contribute to my family, build the home we planned (accident happened after we sold our house but before building the new one) I can't drive. These catastrophic repercussions are fair on top of our disability.

Please keep reaching out. I wish peace for you.

Jenna

is very hard all these years later because no one understands and eventually many people stop talking to me.does anybody have any ideas how to alleviate my head feeling irritated and swollen all the time. Just checking and thanks for the advice

markneil1212,

I am so sorry for all the things you have gone through, and continue to go through. I can only offer what the others have, and that's prayer and this site. I agree with Mark and Jenna in finding the reason for the burning pain. It is exhausting to be in chronic pain.

Fear and hopelessness. I'm sure everyone here on this site can relate to feeling one or both at one time or another. I cope best because of my faith. I can cope because I spend time on this site, and it helps me to think beyond myself and reach out to others. Kind of like a pay-it-forward thing. We end up helping each other and ourselves.

Keep on opening up here; you're among people who understand. And we'd like to help. Take care, M-i-m

I'm coming up on the seventh anniversary of my mTBI, so I know where you're coming from. Like you, my job is gone and my lifestyle has undergone a major downsizing. Like you, I also have times of deep, deep despair.

What I find helpful is to try not to think of it all at once. I try to identify one thing I might be able to change that would make things better. For me, recently, it was returning to this site and the support of people who understand.

In your case, it sounds like finding out about this burning sensation might get you back to a place where you could cope. Some of the others seem to have experience with this issue.

Like the others, I would also suggest trying to find a local support group. They are trying to organize a group in my rural area. I went to a meeting a couple weeks ago and meet some really great people. The sense of being understood and accepted was so refreshing. I often feel alone, but I'm not - and neither are you.

Hang in there. One day at a time.