I agree! Neurologists seem to have HUGE egos. Maybe it is because of the perception that they have all the power. When a doctor cannot "fix" us, what else is there to do but blame us for "imaginary" symptoms.

I see you're "newbies." Welcome to NT and our little brain boo boo club.

I have several doctors, as do many of you. A couple of them take my complaints very seriously, but there's one who keeps trying to tell me I just have anxiety. It drives me insane.

A neurologist knows, or should know, just because an MRI and EEG come back normal, it doesn't mean you're not having some kind of seizure. (Don't think an MRI would show seizure activity though)

I was told by one Dr plus a few people who actually have seizures, that sometimes the EEG does not pick up seizure activity because A. it's either deeper in the brain so is not being picked up or B. you're not actually having a seizure at that time.

Many people who have Epilepsy etc have normal EEG tests.

Yes, I've hear a good route to go is to see a neuropsych (sp?) they do more extensive testing. There's I think it's called a PET test that can be done.

I see a neuro next month and am trying not to dread it, like you, I'm having seizure like activity and will not be able to bear being fobbed off.

My old Dr was a fool, kept saying it all takes time, well....the things I'm experiencing warrant investigation and they then got worse.

If a Dr does not know what's going on, send us to someone who may know, don't fob us off as though nothing is wrong!!

Hope you can get further as others have suggested, hang in there, this is not in your head, something is happening and you need help

PS. One Dr wrote "headaches" on my report when not once at that time did I say I have a headache, drives me 1/2 insane.

Is the cognitive therapists words have any leg to stand on? I mean maybe im making a bigger deal out of this than I should, but I got a pamphlet in the mail all about WC yesterday. In it they say they can refuse to pay you after 180 days. Im in month 7, and have a 3 month old. Im freaking out that if that happens Ill lose everything.

As I right in thinking you've got a lawyer? Let him/her deal with this rubbish.

Hockey, I sent you a private message.

sitke,

A PET Scan is a specialized CAT Scan imaging process (Positron Emission Tomography). It is usually ordered by a neurologist MD.

A Neuro Psychologist is a PhD or PsycD. A NeuroPsych Assessment is a battery of tests to diagnose memory skills, cognitive skills, executive functioning, motor speed, etc. They often take many hours. Some of it may be paper and pencil. Some on a computer. Some answering tasks presented by the NeuroPsych.

Mark, Thank you! great info. going to print this out.

Hi, guys. I'm also new to the board. I have been lurking around here for some time now and your site has honestly been the most helpful to me. I have a supposedly minor case of PCS, thought it has been going on now for upward of 2 years.

My Neurologist was totally useless and had no clue what to do. A PCP I saw recently just to have a regular check up told me to, "Enjoy life as much as I can." and that Doctors are only now examining people who have lived their entire lives with PCS after they have passed on.


Ironically, I now work as a Psychometrist and have met many others like myself who experience similar sympoms, though I think theirs are generally much worse than mine. However, it has definitely altered my lifestyle and prevents me from doing many other things that I used to enjoy. I am right now trying my best to live with as little pain and interference as possible, though it can be challenging to do everyday.

I look forward to chatting with you all more in the future.