Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-15-2014, 07:48 PM #21
Mark in Idaho Mark in Idaho is offline
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I have learned to be slow to comment in debate like situations. I think through my comments and rehearse them. It has greatly improve how I am received because my comments are much more though out. I think my comments are better received that they were when I was quick to speak up.

I went from sounding arrogant and egotistical to sounding intelligent and thoughtful.

The closed eyes trick is important. I often tell people why I close my eyes. Most understand.
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Old 07-15-2014, 08:00 PM #22
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Quote:
Originally Posted by SarahSmile0205 View Post
I seriously struggle with word recall,
What you're describing is aphasia. It is caused by damage to the central nervous system and is fairly common in TBI patients. (I've got it, too.) You might benefit from working with a speech language pathologist.
www.nidcd.nih.gov › Health Info › Voice, Speech and Language
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Old 07-15-2014, 09:38 PM #23
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I am noticing more and more just how many more memory issues I am having. Hockey, you mentioned that there is a therapist for this? what kind of therapist would that be? I don't think I am fully aware of all the PCS symptoms I have. I notice a new symptom even after 9 months post-concussion. My brain feels heavy and unclear and I feel like my brain is getting more rusty!!! I have trouble planning my actions. Before the injury, I would automatically/effortlessly micro-manage my actions "leave the hallway light on, go to my room, email someone, get ready for bed, turn off the hall way light" now, this planning is very difficult and I forget as I am doing my second task why I did the first one or what the third one is!!!! Does this ever get better?
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Old 07-15-2014, 09:44 PM #24
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Quote:
Originally Posted by willgardner View Post
I am noticing more and more just how many more memory issues I am having. Hockey, you mentioned that there is a therapist for this? what kind of therapist would that be? I don't think I am fully aware of all the PCS symptoms I have. I notice a new symptom even after 9 months post-concussion. My brain feels heavy and unclear and I feel like my brain is getting more rusty!!! I have trouble planning my actions. Before the injury, I would automatically/effortlessly micro-manage my actions "leave the hallway light on, go to my room, email someone, get ready for bed, turn off the hall way light" now, this planning is very difficult and I forget as I am doing my second task why I did the first one or what the third one is!!!! Does this ever get better?
if it makes you feel better I lost my typing skills then regained them. also my memory has gotten better than the worst period.
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Old 07-15-2014, 09:57 PM #25
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Quote:
Originally Posted by willgardner View Post
I am noticing more and more just how many more memory issues I am having. Hockey, you mentioned that there is a therapist for this? what kind of therapist would that be? I don't think I am fully aware of all the PCS symptoms I have. I notice a new symptom even after 9 months post-concussion. My brain feels heavy and unclear and I feel like my brain is getting more rusty!!! I have trouble planning my actions. Before the injury, I would automatically/effortlessly micro-manage my actions "leave the hallway light on, go to my room, email someone, get ready for bed, turn off the hall way light" now, this planning is very difficult and I forget as I am doing my second task why I did the first one or what the third one is!!!! Does this ever get better?
I did Attention Processing Therapy (APT). http://www.lapublishing.com/attentio...s-training-apt I found it helpful.

The person who worked with me on APT happened to be a Speech Language Pathologist. She noticed my speech problems (stutter, aphasia, disfluency, etc...) and helped with those, too. A really caring person, she also helped me develop better coping skills, like how to follow a detailed list of instructions.

My psychologist also helped me with memory and daily living issues. She taught me to keep a memory book, to avoid unnecessary decisions (I could get bogged down having the choose from a drawer full of socks), etc...
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Old 07-18-2014, 03:13 PM #26
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So not sure if anyone has ever done both an NPA and belong to lumosity.com.

But, I just signed up for lumosity.com just to help my therapy since next week is my last session.

So far Im doing decent I guess. For my age I rank in the lower perctinles for some of the stuff, but they have their own nueropsych assement on their site. I ranked 101 for a score with the average of 100 for most people my age. So that was nice. I was 80% for memory for 40% for reaction time.

Not sure if some of the tests are the same, but I did some trail making, some tests where I had a bunch of circles, and they would flash and I would have to memorize the order, and then they would add more. started with 3 and ended with 7. Then another one, I think it was spacial memory, and it was the same as the last test, just in reverse order. Then they had a decoding test, where they gave u a legend with symbols and their numbers, then would flash the symbol on the scree and you had to respond with the correct number for the symbol, but luckily the legend stayed on the screen. There was also another one, that was real difficult but I did decent on it, where they would give you 3 sets of blocks and you would try to figure out the pattern. Was tough. The hardest ones were the remember which dots lit up. I did great on them up until 6 or so started lighting up. Same for the reverse order. I got very frustrated by the end of it.

They would also show you a card with a shape on it, then ask you a question as was this the last card, yes or no, then show another card, sometime with the same shape sometime with a different one. Also had one where they would show you two shapes and ask true or false questions, like is the triangle to the right of square, true of false ect.

Anyways I thought it was a really good site with some good tests. Really similiar to the stuff ive been doing in cognitive therapy

Although it did seem that my response time was much longer than I wouldve of liked, and they certainly note that during the tests it seems.

But even though that was lumosity's test, it sounds sort of similiar to the the descriptions ive heard from others. I actually did pretty good at it, and it got rid of my anxiety I had about it.

Last edited by Bruins88; 07-18-2014 at 03:49 PM.
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Old 07-18-2014, 03:25 PM #27
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Have terrible short term memory and word recall, am talking to someone and either go completely blank...as in cannot even think of a word..or struggle to fine the word that makes sense, trying not to let the worried stares people have when this happens bother me.

At home, lists everywhere and timers help.
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Old 07-19-2014, 12:12 AM #28
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At what point in your recovery should you have the NPA? Should you recover to the point where you can get through the assessment without feeling like you are going to throw up? I know the assessment will be gruelling for any TBI/PCS patients, but when should one pursue this test to get the most accurate results?
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Old 07-19-2014, 12:22 AM #29
Mark in Idaho Mark in Idaho is offline
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I think the question is, Why would one need an NPA ? For most, it is to quantify one's condition for an insurance company/liability claim. Most health plans will not pay for an NPA without a strong reason.

An NPA will have accurate results for the time when it is administrated.
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