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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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08-01-2014, 02:05 PM | #1 | ||
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what the heck? just when I hought things couldn't get any weirder. woke up a few times for a minute and tried to take my meds but arms wouldn't do what they were told. what now
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08-01-2014, 02:49 PM | #2 | |||
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30 hours... wow! get hydrated is the first thing I would do!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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08-01-2014, 02:50 PM | #3 | ||
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Legendary
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You must have been exhausted.
Do you feel any better now after you've woken up more? |
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08-01-2014, 02:53 PM | #4 | ||
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Legendary
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You stole sleep from me. I hardly slept at all last night. Forgot to take my gabapentin.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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08-01-2014, 03:51 PM | #5 | ||
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sorry Mark . maybe the gabapentin really knocks you for a loop when you increase it and it builds up in your system. I felt better a little better but not 30 hours worth!!
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08-01-2014, 04:20 PM | #6 | |||
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I'm sure you get all the sleep from us and we are awake every night and you really knock down!!! Maybe you were exhausted and needed that sleep so bad.
I'm glad you are ok and hope you keep resting well,gentle hugs from jesika . Please tell us the secret!!!
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08-01-2014, 04:53 PM | #7 | ||
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thanks Jesika..alas I increased the gabapentin because of insomnia, night terrors, nightmares, tremors, and broken sleep. sometimes I am up 30 hours and now sometimes I sleep 30 hours never a dull moment with a tbi/pcs. perhaps the gabapentin will keep building up and I will sleep like a normal human being for the first time in years. here' hoping we all find the supplement/regimen/medication that brings that to all of us
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08-01-2014, 08:09 PM | #8 | ||
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god i would love to just sleep and sleep til this f'ing thing is over. but i'm terrified to try a new drug after dropping amatryptaline and starting sertaline (zoloft) caused an anxiety attack...which ended when i reversed course.
i'm getting 8 hours w/ occasional ambien, and the amatryp makes my legs jumpy when i take more than 12mg at night, so haven't found an approved way to knock myself out for say, 6 weeks. then i'd hopefully wake up and feel like myself again. any advice? or...is it: "there's no way out but through." |
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"Thanks for this!" says: | Sitke (08-02-2014) |
08-01-2014, 08:12 PM | #9 | ||
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just fantasizing here, but wouldn't it be great if we could just check ourselves into a swanky hospital, some sorta drug would knock us out and another drug would fix our brain. then we'd wake up with no memory of the horrors of pcs, but we would still be able to walk away with the wisdom gained. or not. f' wisdom.
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08-01-2014, 08:23 PM | #10 | ||
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if it existed for brain injury I would pay anything. I actually felt good for two hours the other day and was ready to send you guys a dear john letter but then the feeling good went away |
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"Thanks for this!" says: | Sitke (08-02-2014) |
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