Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 08-04-2014, 08:27 PM #31
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
Default

Quote:
Originally Posted by willgardner View Post
Hockey, I PMed you.



Since the injury, I have wished few times that I could be a Christian like the rest of my family. I am just not built that way, either.

I believe that we never stay the same. We get a completely new body every 7 years(through cells dying off and getting new cells). Our perspectives, belief systems change through new experiences. In this sense, we will never be the same.

For something gained, there is always something lost. By the same token, there is no pure loss, as we would surely have gained something: resilience, gratitude, acceptance to name a few.

What gets me through is thinking about my legacy to humanity (for folks who don't have children). I think about people who have inspired and continue to give me strength. I think about Helen Keller who never gave up. I think about others in worse shape than I do, who keep fighting with a smile on their face. I cannot let these people or myself down. This keeps me going.

That being said, I am scared. I want to feel like "myself"...
Lovely, thank you.
__________________
April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
underwater is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
willgardner (08-05-2014)

advertisement
Old 08-04-2014, 08:32 PM #32
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
Default

This is long so feel free to ignore. Re faith, a lot of Anne Lammonts words below resonate with me. The last paragraph i believe so firmly, have seen so clearly in the way friends, health care providers and strangers have been so kind to me.
_________

Many mornings I check out the news as soon as I wake up, because if it turns out that the world is coming to an end that day, I am going to eat the frosting off an entire carrot cake; just for a start. Then I will move onto vats of clam dip, pots of crime brûlée, nachos, M & M's etc. Then I will max out both my credit cards.

*edit*
Facebook copyright issue
Anne Lammonts words
__________________
April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou

Last edited by Jomar; 08-04-2014 at 11:12 PM. Reason: Facebook copyright - sorry
underwater is offline   Reply With QuoteReply With Quote
Old 08-04-2014, 11:17 PM #33
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

I used to watch the world news all the time. I don't any more. It is not healthy for me. There is nothing I can do to change what is happening in the middle east. Iraq has already taken my daughter from me. I hope someday to get her back. Her deployment has left her needing a very long healing process.

I have lived with PCS for almost 5 decades. I continue trying to do what I can for myself and those around me.

The current strife in the world is nothing compared to WWII. My mom lost her brother in that war. Many did.

But, life goes on whether we focus on the bad or the good. It is much easier to live without focusing on the bad.

If we are going to get better, we MUST avoid anxiety inducing behaviors. Plain and simple.

willgardner,

The brain does not regenerate brain cells like the rest of the body. If it did, we would lose all the learning of the past. It is sad you believe you are not built in a way that you can be a Christian. I sense a hopelessness in your comments about life.

I've been to Israel. What a beautiful country. The fact that it has survived over 2000 years of strife shows somebody powerful is in charge. Even Hamas complains that their rockets are redirected by the God of the Jews so they miss their intended targets. How have 5 million people fended off 50 million people who want them wiped off the face of the earth ?

I look at how the brain works and see divine design. Even when it is damaged, it follows a intricate design.

But that is my opinion/belief. It has benefited me for decades.

My best to you all.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
music-in-me (08-05-2014)
Old 08-05-2014, 02:28 AM #34
willgardner willgardner is offline
Member
 
Join Date: Jul 2014
Posts: 239
8 yr Member
willgardner willgardner is offline
Member
 
Join Date: Jul 2014
Posts: 239
8 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post


willgardner,

The brain does not regenerate brain cells like the rest of the body. If it did, we would lose all the learning of the past.
I did a quick internet search. You are right. Brain cells do not regenerate like the rest of the body.
willgardner is offline   Reply With QuoteReply With Quote
Old 08-05-2014, 08:02 AM #35
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

i stopped watching the news. Mark is right. It is stressful and there is nothing I can do about it. It wont affect me and I have no kids to worry about.

Not believing in God and not having kids makes this a devastating illness to live with. There are no brighter days coming in this life as there is no real hope in our generation for a "cure".

The darkest before the dawn doesn't apply. I will be sick and childless in this life until I die and cease to exist. The possibility of dementia or Alzheimer's is increased with multiple brain injuries and the possibility of living in the street with a brain injury is for me a possibility.

Grooming has gone out the window and I look like a Wildman with my hair and beard. It can be up to 2 to 4 weeks before I leave my house. Usually to psychiatrist to get pills. I have stopped taking the nonessential pills for blood pressure, cholesterol and dexilant for Barrett's esophagus.

In my dreams I am almost always young, and the long dead are almost always in them. There is hope and youth and possibilities in those dreams and I wake up devastated from them. Last night I closed my eyes tight hoping I was still 15 and this was a terrible dream and a warning to live my life carefully. My life has become a horrifying Twilight Zone episode.

My lifeline is Ambien Xanax and Advil PM with the occasional oxycodone if I get to my old pain management doctor. I had depression before the injuries and as you can see, it is magnified with the injury.

I was 37 and completely healthy besides depression, had a great job, friends and a great family. For some reason I decided to drink with dangerous medications and get my first abi. If there is a God, I will have a lot to answer for.

Certain senior members of this board and I are a contrast. Two ways to approach the injury. I suggest you take theirs. Hopelessness is a terrible and dangerous place to be.

Last edited by anon1028; 08-05-2014 at 08:21 AM.
anon1028 is offline   Reply With QuoteReply With Quote
Old 08-05-2014, 10:34 AM #36
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default

Quote:
Originally Posted by markneil1212 View Post
i stopped watching the news. Mark is right. It is stressful and there is nothing I can do about it. It wont affect me and I have no kids to worry about.

Not believing in God and not having kids makes this a devastating illness to live with. There are no brighter days coming in this life as there is no real hope in our generation for a "cure".

The darkest before the dawn doesn't apply. I will be sick and childless in this life until I die and cease to exist. The possibility of dementia or Alzheimer's is increased with multiple brain injuries and the possibility of living in the street with a brain injury is for me a possibility.

Grooming has gone out the window and I look like a Wildman with my hair and beard. It can be up to 2 to 4 weeks before I leave my house. Usually to psychiatrist to get pills. I have stopped taking the nonessential pills for blood pressure, cholesterol and dexilant for Barrett's esophagus.

In my dreams I am almost always young, and the long dead are almost always in them. There is hope and youth and possibilities in those dreams and I wake up devastated from them. Last night I closed my eyes tight hoping I was still 15 and this was a terrible dream and a warning to live my life carefully. My life has become a horrifying Twilight Zone episode.

My lifeline is Ambien Xanax and Advil PM with the occasional oxycodone if I get to my old pain management doctor. I had depression before the injuries and as you can see, it is magnified with the injury.

I was 37 and completely healthy besides depression, had a great job, friends and a great family. For some reason I decided to drink with dangerous medications and get my first abi. If there is a God, I will have a lot to answer for.

Certain senior members of this board and I are a contrast. Two ways to approach the injury. I suggest you take theirs. Hopelessness is a terrible and dangerous place to be.
Do you think you could benefit from some inpatient time at a rehab hospital? Not a psych unit - a rehab hospital.

I am a great believer in neuro-plasticity. With therapy, I feel you could learn to cope better with the tasks/challenges of daily life. That in turn could give you greater confidence and self-esteem. Just being in a more structured environment might help you get more grounded. I do so much better when I have a routine to follow.

I know it's hard - believe me - but I feel that you might be underestimating your potential. Do yourself a favour: go on you tube and watch "The Brain that Changes Itself." When I'm down, I watch it again - and it gives me courage.

Man, if you knew where I'd started my recovery... Even the doctors told my husband I was a "right off." Well, in your face, white coated devils.
Hockey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EsthersDoll (08-07-2014), Marina22 (08-06-2014), willgardner (08-05-2014)
Old 08-05-2014, 08:16 PM #37
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
Default

Quote:
Originally Posted by hockey View Post
do you think you could benefit from some inpatient time at a rehab hospital? Not a psych unit - a rehab hospital.

I am a great believer in neuro-plasticity. With therapy, i feel you could learn to cope better with the tasks/challenges of daily life. That in turn could give you greater confidence and self-esteem. Just being in a more structured environment might help you get more grounded. I do so much better when i have a routine to follow.

I know it's hard - believe me - but i feel that you might be underestimating your potential. Do yourself a favour: Go on you tube and watch "the brain that changes itself." when i'm down, i watch it again - and it gives me courage.

Man, if you knew where i'd started my recovery... Even the doctors told my husband i was a "right off." well, in your face, white coated devils. :d
yeah girl!
__________________
April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
underwater is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EsthersDoll (08-07-2014)
Old 08-06-2014, 12:21 PM #38
Marina22 Marina22 is offline
Junior Member
 
Join Date: Mar 2012
Location: Seattle, WA
Posts: 78
10 yr Member
Marina22 Marina22 is offline
Junior Member
 
Join Date: Mar 2012
Location: Seattle, WA
Posts: 78
10 yr Member
Default

I'm going through my darkest days now and this is not going well. I cry constantly and just can't stop.

My cat is sick. The receptionist in our veterinary hospital was talking to me like I'm some kind of retarded or plain stupid person (I didn't get much sleep last night because of my cat that made me even more slow than I already am). I came back home crying. Still crying in fact.

My kids help A LOT. I think they are what helps me to get through my darkest times. They always tell me that I'm the best mom ever. They draw cheering pictures for me (like flowers or trophies for the best mom). I am so blessed to have such wonderful children.

Favorite movies also help. I can't watch much of a TV, but I put them on and I listen. I find that very relaxing + listing to my favorite movies takes my mind off sad things.

Sometimes crying helps. Or kicking the wall. Sometimes you need to let your emotions out so they won't damage you from inside.

Starbucks helps. When I feel down, I go to Starbucks, order myself a latte (I know it's breaking the rules). I sit by the window and watch people or cars. I find that peaceful.

Baking helps. I love to bake. My kids are so spoiled, they don't eat store bought muffins, scones, cupcakes or cinnamon rolls. The only thing I buy is cakes when I need one because I suck at baking cakes.

I'll think of something else that helps.

I pray for you all
Marina
__________________
2002 - hit my head on a washer door while doing laundry. Recovered in 24 hours (was 7 months pregnant at that time)
2005 (maybe 2006) - kitchen cabinet (it took me ~ 1 week to recover)
2009 - refrigerator shelf, recovered in 1 month
summer, 2011 - metal rail, the life-changing concussion. Black out for ~10 minutes, spent ~2weeks in bed (wasn't able to even use a bathroom by myself). Made a complete recovery in 2 months.
October, 2011 - washer door again. Recovered in 1 months.
March, 2012 - kitchen cabinet again. Suicidal depression. Was diagnosed with OCD. Severe anxiety. Was completely recovered in 4 months, celexa is a magical pill.

After that I managed to go almost 1.5 years without a concussion! Was at a completely symptom-free stage, started volunteering at my kids' school again. I was living a happy life. Then,

August, 2013 - fell down the stairs, broke my ankle badly (my surgeon said that he literally has never seen anything that bad ever before and he's been practicing for more than 20 years).
September, 2013 - my son was hugging me and we bumped into each other. Result - complete return of all of my symptoms., no improvement with time. Severe depression again.

7/7/2014 - hit my self on a metal shelf again while trying to clean.


I'm not clumsy. It's just the floor hates me, the tables and chairs are bullies and the wall gets in the way.
Marina22 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (08-06-2014), music-in-me (08-06-2014)
Old 08-07-2014, 12:54 AM #39
EsthersDoll EsthersDoll is offline
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 765
10 yr Member
EsthersDoll EsthersDoll is offline
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 765
10 yr Member
Default

Luckily for me, after almost four years, it looks as if my darkest days through this ordeal are finally behind me.

But I still remember them...

I would create jokes out of anything I could.

I would also try to relive my favorite memories - but this technique would backfire sometimes because half the time they would make me very happy that I got to experience them at all and that I lived life to the fullest when I could sometimes they would make me very sad that I never thought I would be able to enjoy life again like I did before the accident.

And I also liked to plan what I was going to do and think about that... if I could make a plan for lunch with a friend or family member, then thinking about it, or getting ice cream, or chocolate, or whatever would make me happy, or just knowing that I would.

Or wondering what I was going to do with my life - MarkInIdaho helps so many people here on Neurotalk every day, or several times a day, and he is doing something very productive. Would I have done something similar if I couldn't return to work full time? Or would I have done something else? What field of work would I have gone into if I had to leave the one I'm in?

Daydream

Sometimes the pain was so severe all I could do was pray.
EsthersDoll is offline   Reply With QuoteReply With Quote
Old 08-07-2014, 01:44 AM #40
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

lately I am getting through my darkest days by sleeping 16 to 18 hours a day. My girlfriend hates it and says she is alone all the time and that I have given up. I don't know.
anon1028 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
GROUP CHAT 7pm(EST) SAT (2nd) How do you get through your darkest days? willgardner Traumatic Brain Injury and Post Concussion Syndrome 13 08-02-2014 07:08 PM
is it just good days and bad days ...or all depends on what you did?? wtrpk Traumatic Brain Injury and Post Concussion Syndrome 2 03-25-2011 05:11 PM
some days chicken...some days feathers lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 14 06-17-2009 09:36 AM
Darkest Week befuddled2 Bipolar Disorder 14 10-31-2006 08:38 AM


All times are GMT -5. The time now is 06:35 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.