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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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08-10-2014, 10:41 AM
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i was a loner before the injury but was well liked. now everyone is gone. due to my abi i did have hallucinations and acted bizarrely the first few months but geez, you are friends with somone a lifetime and you dessert them just like that? not one or two or three but all my childhood friends desserted me. its what hurts most. i picture them at their childrens' baptism communion and birthday parties and i'm not there and it rips my insides to pieces and drives me to despair.
my girlfriend is more social but i was the one with all the friends and with them being lost it is just me and her. and the cat. |
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08-10-2014, 01:49 PM
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I'm homebound most of the time. And I sleep a lot.
So, I rather enjoy the change of pace social time brings. I wear headphones to control noise issues. For conversations, I text. I also ask for help a lot. (I need a lot of help). I usually just sit there and don't try to talk. (still can't talk) What I really hate is when other people (strangers - I can deal with my friends) talk about their health problems. I deal with that by trying to stand up - and since I can't stand up, I either fall or totter. Then someone comes over and helps me. My best social life comes from asking someone for help - for example drive me somewhere, or do something for me. I practice my response to what people always ask me "how am I?" I know I can't just casually chat. I have some serious and long-time relationships online, places where I am still a respected and honored authority. That feels nice but no, it's not my real life any more. I have to deal with real life. |
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| "Thanks for this!" says: | Sitke (08-10-2014) |
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08-10-2014, 02:15 PM
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08-10-2014, 03:08 PM
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I tried to go out to eat the other night - I brought foam earplugs but as soon as I walked in the restaurant I was completely overwhelmed and had to leave.
I am supposed to travel in a few weeks to go to my grandmothers 100th birthday. I have to fly cross country, and deal with all kinds of stuff that seems like far too much. My issues have been getting progressively worse and really do not want to go. My family completely does not understand. I feel your frustration and pain. |
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08-10-2014, 03:24 PM
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I used to enjoy socializing but I just can't be out around people for too long, now, my head starts hurting, my eyes hurt and I just want to run.
I do talk to people on the phone as I find it easier sometimes, my very best childhood friend is kaput now...never hear from her, it hurt but now I've gone in to the mode of well, how good a friend was she anyway, this I suppose is my new life so hopefully it will eventually bring new people in to it. I get when you say you feel sad and lethargic, I'm the same way, not being around people now brings me down, just being inside by myself for most of the time "dulls" me. Hope you feel better... 
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| "Thanks for this!" says: | Hockey (08-11-2014) |
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08-10-2014, 03:47 PM
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Floyd4
I recently had to fly home to see family -first time travelling by myself since my accident - i booked a direct flight, noise cancelling headphones for noise sensitivity and a note from my doctor requesting assistance getting to my flight. at my family function I used foam earplugs and took alot of little breaks from the social action. I had a small meltdown at the airport when a flight was boarding at the gate next to mine but I just turned up my music and looked at the floor to reduce all the noise and visual stimulation |
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08-10-2014, 09:58 PM
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Will, i cant remember when/what was your accident?
A couple ideas: is acupuncture an option for you? For me its just the right amount of conversation, concern (you get to share physical and emotional crap with so little judgement. Some gentle touch and, after the needles are in, relaxation. Second, i've put out the bat signal to some older friends spread around the country so i dont wear any one friend out too much wth my woes. Third, i'm gonna overgeneralize here but women are better at knowing how to handle train wrecks like me. So if you have some old girlfriends you can call up try that Fourth, back before my boyfriend tired of this situation and when i could handle very little convo, he'd tell me quietly about his day kayaking or whatevs and stroke my head like he was trying to heal it. I wonder if we could hire people to do that? (;
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel. Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements. Just started vision therapy, waiting on some blue-tinted prism glasses. "You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou |
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08-11-2014, 05:37 AM
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Magnate
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Whenever possible, I avoid flying since my TBI. Among other things, I'm always worried that I might have a meltdown during the invasive security. I can be slow answering questions, and I can see the cop wannabes getting anxious. Does your provincial chapter on the Brain Injury Association issue TBI patient identity cards for your wallet? I doubt I could whip mine out, before they taser me. I'm thinking of having "out of order" tattooed across my forehead. |
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| "Thanks for this!" says: | music-in-me (08-11-2014) |
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08-11-2014, 09:33 AM
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planes? vacations? im so shell shocked I can barely make it to the doctor lol. by the time my night terrors and tremors are done, I wake up like a dog that's been beaten too much lol. but it gets better as the day goes on and I am goin to talk to doctor about it
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08-11-2014, 11:09 PM
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Hi Will
I remember feeling that isolation too and also how much conversations could tire me out. I have recovered from it though and hope you will too. I found good groups for PCS on facebook and that was one social outlet for me. I made friends there and here too. Even though this is not the same as going out with friends, it's one way to try and stay connected and work on social skills too. Could you skype with an old friend for some face to face and if it gets tiring, then let them know.. Mark had a good idea about the phone and I recall when even talking on the phone was tiring. Even try a good old fashioned letter with real handwriting and stamps. Send one and get one. Something to look forward to. Hang in there. Better days will come. poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | Hockey (08-12-2014), willgardner (08-12-2014) |
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