Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-13-2014, 02:03 PM #11
scarletBegonias scarletBegonias is offline
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Quote:
Originally Posted by Mark in Idaho View Post
scarletB,

In my opinion, I would consider it very important to know all the details of his injury. If you hope for a long term relationship, his history needs to come out. You can be much more support for him if you understand.

These injuries are often very complex. Researching the symptoms and then trying to diagnose his condition without him being open about his injury puts a heavy burden on you and strains the balance of your relationship.

Statistically, 80% of relationships/marriages interrupted by a brain injury do not make it. I am not trying to rain on your parade. I just think it is important for him to be open with you so you can be proper support.

My best to you.
hi mark,

i guess we have a bit of an advantage of sorts. i met him after his MVA and only know him the way he is now. i've seen the manic episodes, withdrawing himself, the confusion mid conversation, the frustration, severe depression, etc. while those things were frightening for me to experience, i'm glad to have gotten passed them. i never understood fully, the severity of his situation until recently. i agree, wholeheartedly, that i need the full extent of his injuries. what i've found out in the passed couple of months and very recently has helped us tremendously. so far i know that he was diagnosed with a moderate-severe TBI, has chronic migraines, and is currently seeing a therapist and neurologist.

it's just difficult when talking about it will either irritate or overwhelm him. he's not used to being open about it, as he was told not to talk about his case (legal concerns, of course). and he took that advice very literal in a sense. i have to take it at a slower with him; he's a bit more "fragile" than i realized in the past, but i am certainly making headway.
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Old 08-13-2014, 06:47 PM #12
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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It is going to be very difficult for your relationship until he can discuss his condition. As his legal case progresses, there should come a time when you will have access to the medical diagnosis of his current condition. Until then, it will be like trying to nail jello to the wall.

We struggle enough trying to understand our own condition. One of the starting points to getting on with our lives is that point in time when we fully understand our dysfunctions and limitations. Then, we can start to learn ways to work-around those dysfunctions.

Your goal should be to understand what parts of his behavior are caused by his injury and what are part of his pre-existing personality. Then hopefully, you can come to an agreement with him as to how you can help him.
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Old 08-17-2014, 03:00 PM #13
Silverymoons62 Silverymoons62 is offline
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Quote:
Originally Posted by scarletBegonias View Post
hi! i've been dating someone with a TBI for 4 & 1/2 months. not only are we faced with the injury (which happened a year or so before we met), but a 7 year age gap, and about 250 miles of distance between us. it may seem as though all the odds are against us, and sometimes they really are. but we preserver.

we're hitting some serious rough patches lately, especially after he met my best friend this weekend. she thinks he's lazy and full of crap which is not fair to him or myself, and rather ignorant of her.

i sometimes find myself not able to understand him. communication is difficult, as neither of us understand the other fully.

i guess what i'm looking for is some support from others out there who are also dating someone with this condition. i feel alone.. no understands the immense amount of love i have for my boyfriend despite all of the above. and equally, i feel i shouldn't have to explain it. what do i do to keep all the negativity at bay, short of cutting everyone off? i'm getting to that point..
People don't understand brain injuries, they can't see them. Sure they can see the visible scars, but understand, no. Our spouses all have different levels of function. Some have hearing, eye, nerve, muscle and brain damage.
Others have some or none. We have to continually walk the thin line between doing everything and finding the things they can and do need to do, to have a sense of self worth. They resent us because the have an brain injury, everything that is simple for us is harder for them. Staying on tract, remembering what they are doing. They forget. They go off track. They mentally drift away. The fixate on one thing and ignore the big picture. The impulse control issues. Thinking they can handle paying bills and finances. Its awful and it is hard to deal with.
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