Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-15-2014, 05:26 PM #1
Socks Socks is offline
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Default Who to believe?

So I haven't been around much lately but I've told my story before. Knocked my head on the door frame of my car in early March for concussion #1 and then hit it on the corner of my desk in mid April for concussion #2. My CT scan was clear, I've been under the care of both my GP as a neurologist since then, I've had PT regularly for my neck and I saw a therapist for my anxiety. I'm back to work almost full time and back doing most of my regular activities.

With that said I still get headaches and I'm still prone to noise sensitivity. I also get tired easily. I've long suffered from migraines so some of my headaches certainly could be from that. But my neurologist is of the opinion that my concussions weren't severe enough for me to still be experiencing symptoms. I don't think I'm making these things up. So who do I believe? My doctor or my body?
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks.
Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia.
And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc.
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Old 08-15-2014, 05:48 PM #2
allday310 allday310 is offline
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Quote:
Originally Posted by Socks View Post
So I haven't been around much lately but I've told my story before. Knocked my head on the door frame of my car in early March for concussion #1 and then hit it on the corner of my desk in mid April for concussion #2. My CT scan was clear, I've been under the care of both my GP as a neurologist since then, I've had PT regularly for my neck and I saw a therapist for my anxiety. I'm back to work almost full time and back doing most of my regular activities.

With that said I still get headaches and I'm still prone to noise sensitivity. I also get tired easily. I've long suffered from migraines so some of my headaches certainly could be from that. But my neurologist is of the opinion that my concussions weren't severe enough for me to still be experiencing symptoms. I don't think I'm making these things up. So who do I believe? My doctor or my body?
In my humble opinion believe yourself. My primary thinks im full of it and said i need to get over it. Ive been suffering from pcs since january 2014 and people on hear much longer than me. I also got re-injured multiple times by hitting my head everywhere and i must wear sun glasses in doors and im sound sensitive with vestibular issues and some breathing problems. Saw a neurologist who has seen many like me and told me he has had many patients who have taken 2-3 yrs and some that never 100% recover but symptoms are minimal and they deal with it. Short span concussions magnify the problem by 10x and everyone is different. Honestly if you didnt lose consciousness they will not take you seriously. Good luck to you and we both need to stop hitting our heads.
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Old 08-15-2014, 05:54 PM #3
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Quote:
Originally Posted by allday310 View Post
In my humble opinion believe yourself. My primary thinks im full of it and said i need to get over it. Ive been suffering from pcs since january 2014 and people on hear much longer than me. I also got re-injured multiple times by hitting my head everywhere and i must wear sun glasses in doors and im sound sensitive with vestibular issues and some breathing problems. Saw a neurologist who has seen many like me and told me he has had many patients who have taken 2-3 yrs and some that never 100% recover but symptoms are minimal and they deal with it. Short span concussions magnify the problem by 10x and everyone is different. Honestly if you didnt lose consciousness they will not take you seriously. Good luck to you and we both need to stop hitting our heads.
Amen to that lol.
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks.
Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia.
And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc.
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Old 08-15-2014, 09:38 PM #4
JuliaBertha JuliaBertha is offline
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I'm sorry you are suffering. I believe we are the best judge of our symptoms. How could we not be? I too have had some frustrating encounters with medical professionals over this. Trust in yourself. Try to relax and keep stress under control. One day at a time.
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Old 08-16-2014, 12:45 AM #5
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Most doctors don't have a clue what they're talking about when it comes to concussions and brain injury. I made the mistake of listening to a GP tell me for three months that I was going to wake up the very next day and it would all be clear.
You need to work hard to get proper help and assessment.

Good luck!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 08-16-2014, 06:07 AM #6
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If you'll pardon the expression, this is a no brainer - listen to yourself.
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Old 08-16-2014, 08:55 AM #7
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I would have to agree with the others on this issue. It is normal to still be experiencing symptoms, even after a "mild" concussion. I believe that you should listen to your body. Doctors can be funny like that.
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Old 08-16-2014, 09:29 AM #8
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Thanks guys. I appreciate the responses. My inclination was to follow my body but it's tough when your doctor is telling you that you really should be over this by now and dismissive of things you say. She actually questions me about my mental health (no worse than normal lol) and tells me my posture sucks more than anything. I hate the idea of going to anyone else because I've had enough medical bills from this as it is and I don't know what they could tell me that I don't already know. I want someone to validate my feelings but I don't want to accrue more bills for it. Work has been incredibly supportive so far but the deadline for me to be back up to a full 40 is September 1, which is fast approaching. I just have to pace myself I guess.
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks.
Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia.
And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc.
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Old 08-16-2014, 10:26 AM #9
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Id highly recommend you get a neuropsych exam. Then they will probably start taking you seriously.
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Old 08-16-2014, 10:30 AM #10
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Quote:
Originally Posted by kevbo887 View Post
Id highly recommend you get a neuropsych exam. Then they will probably start taking you seriously.
I've seen people talk about this on here. Exactly what is this and who provides it?
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks.
Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia.
And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc.
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