[Galaxy1012]

So I am 4 months into this and have tinnitus as one of my major symptoms. I know it's pretty common in TBI and nobody can predict anything about it. I was just wondering can it really go away for some or it's a myth? I mean I understand it's nearly impossible to tell this but have you heard or know of any people whose tinnitus have gone away after whatever amount of time after a concussion? Please note that I am specifically talking about concussion indices tinnitus. And going away means completely gone and if not that has it lessened for them and if yes to what extent? This will be interesting to know

I know it's one of those stubborn symptoms and even professionals are skeptical about it most of the times. My ENT and a renowned neuro clearly told me it may never go away but docs can be wrong sometimes and miracles do happen everyday mine comes and goes so I would assume that I have some sort of neurological damage rather than any damage to my ears as they are able to function perfectly when it's not there.

Please share any knowledge/stories you know about TBI induced tinnitus

[SarahSmile0205]

Some days mine is louder than others... I wonder if i have just gotten used to the sound...

[Bruins88]

Usually loud surroundings or complete silence and a lack of any sort of thought brings mine on. I usually put on some kind of noise like the tv or radio and it helps.

Plus, at this point im so used to it that it doesnt bug me all too much unless its causing me to not fall asleep.

[Mark in Idaho]

I have had my tinnitus for decades. My mother has lived with tinnitus for over 80 years do to an injury to the nerves in her ear.

Let me put this into context. There are symptoms of PCS that are just annoying and there are symptoms that are life changing.

Head aches can go from annoying to life changing (too much pain to function)
cognitive dysfunctions..... life changing
sensitivity to lights.... annoying
loss of memory skills..... life changing

Tinnitus........ annoying

Even at its loudest, and my tinnitus can get very loud, it does not stop me from doing anything. I may have to focus to listen better if the frequency of my tinnitus is competing with the sounds I am trying to hear. Mine is at about 1100 -1110 Hzs. About a C#6 Db6 on piano.

I have learned to ignore the ringing, even when it is loudest. Occasionally, I will hear a sound and need to stop to tell if it is something else ringing or just my tinnitus. It is often just my tinnitus spiking. Once I realize that, I can go on with whatever I was doing.

There are thousands of people living with permanent tinnitus. Annoying, yes, Life changing, no, except for people who have not learned how to control their anxiety levels.

Learn stress reducing behaviors and thought patterns and your tinnitus will be more tolerable. Nutrition for good nerves also helps.

[Mokey]

So far mine has not changed. Hoping for a miracle (or two!)

[anon1028]

I get pulsatile tinnitus, regular tinnitus, no tinnitus..i give up

[Mark in Idaho]

Giving up on anxiety about tinnitus is the start at being able to ignore it. So, if you can give up, it will be a good thing.

[anon1028]

Mark,
I got used to the tinnitus, then the pulsatile tinnitus started and it drove me crazy. tonight it isn't there. I'm sick of reading bout things and then getting worried so do you know if pulsatile tinnitus is a big deal or just another form of tinnitus.

[Galaxy1012]

Sorry to hear about your tinnitus folks. Although this is the key question that many scientists and doctors are researching throughout the world, what goes so wrong with our system to produce this symptom permanently!! Man this is extremely overwhelming. Mine was relatively a small hit and bam!! Tinnitus forever!! Isn't this crazy?? Everything else will heal...Even the debilitating headaches cognitive problems or depression may go away at some point ...there are many people cured of cancer too...I understand tinnitus is nowhere near as painful as cancer and is just annoying, but what's so special about this thing that it lasts forever. One event in life will leave back tinnitus for to he rest of our lives! Everything else will pass away, but tinnitus won't. It will be same even 10 years from now and will keep reminding me of this hit always, even decades from now. Wow! This thing must pass away because everything else does! This isn't fair. Life has to move on and we can't spend our life always thinking about this stupid PCS. We need urgent help and a cure fast for this! Sorry for whining, but this is crazy!

[anon1028]

Originally Posted by Galaxy1012

Sorry to hear about your tinnitus folks. Although this is the key question that many scientists and doctors are researching throughout the world, what goes so wrong with our system to produce this symptom permanently!! Man this is extremely overwhelming. Mine was relatively a small hit and bam!! Tinnitus forever!! Isn't this crazy?? Everything else will heal...Even the debilitating headaches cognitive problems or depression may go away at some point ...there are many people cured of cancer too...I understand tinnitus is nowhere near as painful as cancer and is just annoying, but what's so special about this tinnitus that it lasts forever. One event in life will leave back tinnitus for to he rest of our lives! Everything else will pass away, but tinnitus will be same even 10 years from now!! We need urgent help and a cure fast for this! Sorry for whining, but this is crazy!

I hate to say this, but after 7 years (don't worry guys, I've had multiple brain insults, you new guys will improve a lot) I think I would have rather faced a beatable cancer and either beat it or lost than deal with symptoms that at this point are too many to count. god forgive me