Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-16-2014, 09:28 PM #1
sciencetoy sciencetoy is offline
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Default Some things I didn't really need to learn.

If you fall at Dunkin Donuts, they'll give you another coffee to replace the one that you lost.

If you fall at Starbucks, they'll give you a coupon for another small drink.

I'm really tired of falling. Oh, and Dunkin was more helpful than Starbucks at helping me get up afterwards. At least at my local shops.

And while we're at it, I find that a cane isn't good for my stability problem. Nor is a walker or a grocery cart. But a baby stroller works really well (now that my youngest grandchild has outgrown it..
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Old 08-16-2014, 09:31 PM #2
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so much knowledge and wisdom i've gained i'd gladly trade in for my health
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-17-2014, 07:14 AM #3
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Originally Posted by sciencetoy View Post
If you fall at Dunkin Donuts, they'll give you another coffee to replace the one that you lost.

If you fall at Starbucks, they'll give you a coupon for another small drink.

I'm really tired of falling. Oh, and Dunkin was more helpful than Starbucks at helping me get up afterwards. At least at my local shops.

And while we're at it, I find that a cane isn't good for my stability problem. Nor is a walker or a grocery cart. But a baby stroller works really well (now that my youngest grandchild has outgrown it..
"Clumsiness" after TBI is not uncommon. Have for discussed this with your doctor? Among other things, you might want to be examined by a neuro-optomologist.
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Old 08-17-2014, 08:59 AM #4
sciencetoy sciencetoy is offline
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"Clumsiness" after TBI is not uncommon. Have for discussed this with your doctor? Among other things, you might want to be examined by a neuro-optomologist.
Thank you. Of course I've discusssed it with my whole medical team. According to them, it's anxiety and stress. The anti-anxiety meds made it so much worse. My neuro-opthamologist says nothing is wrong. Good to know.
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Old 08-17-2014, 12:35 PM #5
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Thank you. Of course I've discusssed it with my whole medical team. According to them, it's anxiety and stress. The anti-anxiety meds made it so much worse. My neuro-opthamologist says nothing is wrong. Good to know.
I didn't mean to insult you. It's just that my neuro-psychologist told me that another symptom of TBI is that patients under report symptoms. Ideally, a doctor should ask patients whether or not they are experiencing this or that symptom, rather than waiting for them to report.

In my case, I didn't tell my GP that I was vomiting and passing out. If you asked me how I was, I'd say fine - and somehow believe it. Weird.
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Old 08-17-2014, 02:15 PM #6
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I didn't mean to insult you. It's just that my neuro-psychologist told me that another symptom of TBI is that patients under report symptoms. Ideally, a doctor should ask patients whether or not they are experiencing this or that symptom, rather than waiting for them to report.

In my case, I didn't tell my GP that I was vomiting and passing out. If you asked me how I was, I'd say fine - and somehow believe it. Weird.
No, no insult -I was just responding - that's interesting. I was in the hospital for four months after my injury so I had doctors all over trying to place all of my symptoms. I sure as heck wasn't fine - and all of my therapists were trying to figure out just what was going on so they could fix me enough to get me out of there - I was injured in the hospital (complications of brain surgery) Alas, I've had vertigo since the surgery - I fell out of bed in the recovery room.

lots of differences in us brain challenged bunch.
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Old 08-17-2014, 02:53 PM #7
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Sorry you're falling so much, not fun, only fell twice and once was in Walmart at the check out...felt weird them...TIMBER!!!!

Hockey, I do the same thing, I have still not told my pain Dr I was diagnosed with migraines and would sit and feel like I passed out for 10-15 mins....
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Old 08-17-2014, 04:14 PM #8
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Originally Posted by Hockey View Post
I didn't mean to insult you. It's just that my neuro-psychologist told me that another symptom of TBI is that patients under report symptoms. Ideally, a doctor should ask patients whether or not they are experiencing this or that symptom, rather than waiting for them to report.

In my case, I didn't tell my GP that I was vomiting and passing out. If you asked me how I was, I'd say fine - and somehow believe it. Weird.
This is the truth. My neurologist was completely thrown for a loop when my wife made a list of things I always complained about, because when I went to him I would say im fine, he would never ask specifics.

Then the neuropsychologist scolded me for downplaying my symptoms.
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Old 08-17-2014, 07:22 PM #9
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This is the truth. My neurologist was completely thrown for a loop when my wife made a list of things I always complained about, because when I went to him I would say im fine, he would never ask specifics.

Then the neuropsychologist scolded me for downplaying my symptoms.
Yeah, in the beginning I think it was a combination of not being really aware of everything that was happening to me and also not having the energy/ability to express myself. "Fine" was the easy default answer.
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