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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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i liked this poem...thought i'd share, b/c i have woken up with sorrow many days, as i'm sure you have. either sorrow or anxiety, or sometimes a fun combo!
Before you know what kindness really is you must lose things, feel the future dissolve in a moment like salt in a weakened broth. What you held in your hand, what you counted and carefully saved, all this must go so you know how desolate the landscape can be between the regions of kindness. How you ride and ride thinking the bus will never stop, the passengers eating maize and chicken will stare out the window forever. Before you learn the tender gravity of kindness, you must travel where the Indian in a white poncho lies dead by the side of the road. You must see how this could be you, how he too was someone who journeyed through the night with plans and the simple breath that kept him alive. Before you know kindness as the deepest thing inside, you must know sorrow as the other deepest thing. You must wake up with sorrow. You must speak to it till your voice catches the thread of all sorrows and you see the size of the cloth. Then it is only kindness that makes sense anymore, only kindness that ties your shoes and sends you out into the day to mail letters and purchase bread, only kindness that raises its head from the crowd of the world to say it is I you have been looking for, and then goes with you everywhere like a shadow or a friend. Naomi Shihab Nye
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel. Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements. Just started vision therapy, waiting on some blue-tinted prism glasses. "You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou |
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#2 | ||
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I lost enough when my father died 33 years ago lol. I didn't want anymore lessons. but I will really cherish good times from now on and think of them in the context of the bad times that have been. it will make things that much better
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#3 | ||
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I am SO DONE with life lessons too. I like the part about catching the thread of sorrow...like my sorrow is just another thread on the cloth where your sorrows thread is...we're not alone
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel. Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements. Just started vision therapy, waiting on some blue-tinted prism glasses. "You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou |
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#4 | ||
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Legendary
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"I lost enough when my father died 33 years ago lol." I am appalled that mention of a father's death can be followed by "lol"
Can we all agree to turn off the LOL switch ? btw, I completely disagree with the sentiments presented in the poem.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#5 | ||
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Quote:
although we cant feel each other's physical pain we can relate, that's for sure and we can share the mental hardships and get each other through the hard times. this board is my lifeline to sanity. |
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#6 | ||
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it's just a nervous online twitch. I will do my best to stop using it. and yes it was a horrifying event that probably altered the rest of my life for the worst. so it does not deserve on lol. Nothing funny about being 13 with a dead father and a mother in a psych ward *edit* I stand corrected.
Last edited by Chemar; 08-21-2014 at 06:31 AM. Reason: sorry but too graphic/triggering |
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#7 | ||
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I think it's important to remember here that we all differ in what we find comforting and helpful - and we don't know each others' life experiences.
I assume the poem was posted with good intentions, and I hope some liked it, but no, my dead babies weren't a lesson of any kind. I know more than I care to about waking up with sorrow. Leave my grief alone. |
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"Thanks for this!" says: | Lightrail11 (08-21-2014) |
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#8 | ||
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I've been finding it difficult to think about what I can learn or how I can grow from experiencing the suffering that goes along with PCS, as it always seems like it's easier to think about these kinds of things with the advantage of hindsight rather than being in the thick of it. I've been lucky to have not experienced real, profound suffering and feelings of despair and hopelessness until dealing with PCS, and I do think that, given I get out of this with my wits about me, I'll have learned more about what it means to be human. Hopefully this will translate into being a kinder, more generous person (not that I wasn't before!).
I can say with certainty that once I'm able to go on a 10 mile run, or read for hours without a problem, or just to feel like myself for a day without this dark cloud over my head all the time I'll appreciate it more deeply than I had before. I generally took pleasure in most of what I did before this whole ordeal, but knowing what it's like to feel like you might never get any of that back will make experiencing the small little joys of life that much sweeter. I try to do this even now, and am somewhat successful, but I just can't shake the cloud that adds a darkness to everything.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better. May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches. June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump. December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self. Trying, but struggling, to believe that I'll get back to my old self, or at least get close. Last edited by Laupala; 08-21-2014 at 04:14 PM. |
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#9 | ||
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i think the poem probably applies better to those who are going to get much better or and recover what they've lost. I know I don't fit into either of these categories until and unless more modern treatment comes out
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#10 | ||
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Member
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I've been through so many "life lessons" it's unreal, if one more person tells me "Well, these things are sent to us a lesson" I'll scream, I'm all out of lessons, how about something good happening.
Just broke my ankle on Monday night falling down some steps while have a dizzy spell, not depressed about it though or upset, I'll deal with it and survive ![]() I can see how someone would like the poem and that's absolutely fine but I just don't agree with what's being said, that's just me though, I can know I don't agree with it but don't ask me to explain as I can't out it in to words!! ![]() If it helps someone though that's great. |
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