Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 08-28-2014, 05:17 PM #11
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I can now walk 1.5 miles with no symptoms. I used to struggle to go on a 5 minute walk, so this is huge for me. I'm 8 or 9 months in (I'm too tired to do the math right now, but my concussion was December 2013).

My dream is to run a 5K in a year or so. I'm going to keep walking for a few more months and then give jogging a try.
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Old 08-30-2014, 05:07 AM #12
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Before my injury I was a very active 50 year old, walked for miles and cycled. After my injury I couldn't walk a mile, my legs would stop working it was weird it was like they stopped receiving the signal.

First two months couldn't do a lot, too nauseas and fatigued, about three months in I started walking distance, gradually increasing from ten minutes to eventually 30 minutes by the four month mark. One early walk I did I walked too far and felt really spaced out and didn't think I could get back but slooowly made it! After resting I felt a lot better, so was spurred on knowing it was actually doing me some good. Tried running in short spurts, early attempts gave me a shooting throb in the head so eased back.

Now I'm almost six months in and if I get a decent nights sleep can walk around the city as much as I want. I can cycle too, but need to pace myself. I've tried jogging a little and all seems OK, my aim is to jog instead of brisk walking around a local boating lake (4.3Km) and increase the aerobic side which I assume will have a positive effect on the brain.

I think just being sensible like Glacier Guy and having goals is the way to go, be prepared for a setback or two it's not a linear progression. But you will progress no two ways about it.
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Old 06-14-2015, 04:22 AM #13
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15 months into this, I am slowly recovering from this symptom but I still can't take those big bumps in my car. I wonder if I have a dura tear causing csf to leak and causing my brain sloshing inside the skull due to csf shortage. It's a wild imagination and probably would seem crazy to docs specially after my MRI was negative ( non contrast MRI , I hope it rules out csf leak, dura tear)
I am confused and thinking to get a contrast MRI . any suggestions? It is necessary?
I don't have any symptoms like clear liquid leak from ears or nose. Also no headaches neck strains etc
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Old 06-14-2015, 10:25 AM #14
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For those of you who are the avid bike riders, there is a book called " TBI Hell " its a hard read as the survivor wanted his old life back and kept getting back on a bike with bad results...

He came out with a following book, but after the first one, I wasn't to open to hear the latest in his saga....
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Old 06-14-2015, 11:02 AM #15
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Quote:
Originally Posted by davOD View Post
For those of you who are the avid bike riders, there is a book called " TBI Hell " its a hard read as the survivor wanted his old life back and kept getting back on a bike with bad results...

He came out with a following book, but after the first one, I wasn't to open to hear the latest in his saga....
I did some research on this guy. Basically what he says is that he had a tbi and neck vertebrae fractures. Did he also crack his skull ot have internal bleeding ? How severe was his injury ?
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Old 06-15-2015, 12:24 PM #16
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Really struggling with things now at 14 months post.

I can't run at all, walking can bark back at me. I can now swim somewhat vigorous for 20 min. I am 56 and been running since I was 15, I miss the freedom that running is to me. No weights, I can't ski or fly either.

This has left me feeling very empty.

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Old 06-15-2015, 01:14 PM #17
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I'm the same way, Bud. I've run cross country/track since 7th grade-college, and was running/racing post-collegiately. Running in many ways defined who I was, and I miss it a lot. I was forced to back off running about 6 months before the concussion from a hamstring injury, which was getting better with PT but is now back to hurting most of the time.

I have recently started aquajogging, and I've found it's a lot more enjoyable than stationary biking. You at least go back and forth as opposed to nowhere, haha, and it's running specific.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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