Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 08-28-2014, 09:10 PM #1
willgardner willgardner is offline
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Whatever science or statistics say, I am determined to keep dreaming and fighting. Let us be the exception that proves wrong the established theories or popular beliefs. Let us erase the boundaries of human capacity. Let us show that there are no limits, but only plateaus.
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Old 08-28-2014, 09:32 PM #2
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agreed! experts agree the vast, vast majority fully recover. there might be some scars in my brain but the rest of it recovers & rewires to the point where i don't notice the difference. i believe.

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Whatever science or statistics say, I am determined to keep dreaming and fighting. Let us be the exception that proves wrong the established theories or popular beliefs. Let us erase the boundaries of human capacity. Let us show that there are no limits, but only plateaus.
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-28-2014, 10:04 PM #3
Mark in Idaho Mark in Idaho is offline
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Where did you read that "experts agree, the vast, vast majority fully recover" ? There is a big difference between becoming symptom free and fully recovered. One of the standards often used for recovery is simple. Does the patient stop complaining and asking for care or treatment ?

Studies also show that those athletes who recover to their baseline in Computerized Neurocognitive Testing (ImPACT or CNS Vital Signs) still show signs of brain injury weeks later with other testing systems.

It does not mean we should lose hope. Just that our hope should be realistic and we should be careful about the risks and stresses we take on in our future.

85% recover from all symptoms within 6 weeks or so. But, this does not mean they can tolerate stressors without a return of symptoms.
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Old 08-28-2014, 10:25 PM #4
chgs chgs is offline
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Originally Posted by Mark in Idaho View Post
Studies also show that those athletes who recover to their baseline in Computerized Neurocognitive Testing (ImPACT or CNS Vital Signs) still show signs of brain injury weeks later with other testing systems.

It does not mean we should lose hope. Just that our hope should be realistic and we should be careful about the risks and stresses we take on in our future.

85% recover from all symptoms within 6 weeks or so. But, this does not mean they can tolerate stressors without a return of symptoms.
Mark, can you show me the links to the relevant literature? I have journal access so I can read the full text and look at the methodology and results.

A very recent study actually supports your hypothesis at the 60 day mark!

doi: 10.1249/MSS.0000000000000462

I am still going through that study (a lot of words to read), but I would appreciate any other studies that I can look at.

Journal research is the kind of information I prioritize.

Will there ever be a point (e.g. 1 year's time) where all nuerocognitive testing does not show any anomalies? Has this ever been documented?

Thank you for your help!
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Old 08-28-2014, 10:30 PM #5
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I think once you get to the level of PCS-- no matter how long or short you have it, you just do have some brain damage. That said, I feel I have a high level of functional brain damage and it renders me able to work, think, and do much of what I used to do. What's differnt is the tinnitis in one ear, my dislike / mild intolerance of bright screens, and when I am tired, I am very tired. I can assure you this is not who I was.

100 percent should not be your goal. Get back to the highest level you can and learn to live with what comes.

I think that is learning to live with brain damage. I think that is realistic.

Love to you all


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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 08-28-2014, 10:46 PM #6
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http://www.huffingtonpost.com/dr-dav..._b_777163.html

good article about bdnf...never heard about it before this.

that said, it will take leaps in science to fix my broken thalamus, which unfortunately regulates a billion things in the body, but you guys are in early stages of injury and can heal quite a bunch more and move on.

i take the supplements because like mark in Idaho told me...we have to take care of what we can to be around for the new treatments later on.
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