Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 08-30-2014, 06:59 PM #1
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Quote:
Originally Posted by Mark in Idaho View Post
Laupala,
There is no reason to expect to not recover from the struggles you are having now. Only a small percentage have prolonged struggles.
That is so true. As hard as it is to imagine, when you're struggling with a myriad of symptoms, most of you will recover and get on with your lives. The statistics are on your side.

If, understandably, that seems too cold and abstract, consider this Board. Very few folks are stuck at NT long enough to get past the "member" designation.

As an "elder" and a "senior," respectively, Mark and myself are anomalies on the PCS forum. We are also atypical patients. Mark has endured a number of concussions, starting in childhood. I was involved in a high speed car crash, sustaining an injury that is rarely even survived.

You will do better than us - but I don't hate you for it.
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Old 08-30-2014, 08:50 PM #2
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Thanks for the kind words, the kindness and compassion shown on this board in the face of such hardship is truly astounding and such a powerful resource for everyone going through PCS and TBI.

Mark, I know you nor Dr. Gronwald's research have said I'll never recover, and I hope my post didn't suggest I was calling you out or anything like that. I'm just depressed by the notion that I may have to always think about how some activity or some situation might flare up symptoms, and thus limit my life.

I also know that worrying about this, or being depressed about it, isn't helping me get better. I think that thinking about every little thing I'm doing, and whether it's helpful or harmful to recovery is setting me back too. For instance, I've started volunteer coaching at my old HS cross country team since I'm taking a medical leave of absence and want to do something positive other than listening to audiobooks. I've done it for 2 weeks, 3 days a week, and the practices themselves go fine - I feel a bit more like myself, am happy, and don't seem to feel too bad.

But then I get home, and if I maybe feel a little tired or have a slightly worse headache I start to worry that maybe I shouldn't be coaching, and then I get sad thinking about how I can't do so many of the things I love, and worry that this will be this cloud hanging over me for the rest of my life, directing the things I can and can't do. So that's why I find the notion that even after I recover, stress could cause a relapse, so distressing. I just don't want to have to worry about this for the rest of my life.

Sorry, I didn't mean to hijack the thread!
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 08-30-2014, 10:27 PM #3
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Your biggest problem is anxiety. Getting caught on an increase in head ache or fatigue is unreasonable. If you get a head ache, take a break. If you get tired, take a break. Think of it as a momentary clue to take a break.

If you are going to take on a busy activity, expect you MAY need to take a break afterward.

Get used to the fact that you may have relapses from time to time. As your life goes on, you will begin to learn how much stress you can tolerate. You may be able to tolerate a high level of stress in certain areas and less stress in other ways.

So, the head ache or tiredness is not saying you should not be coaching. It is saying you need to take a break.
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Old 08-30-2014, 10:53 PM #4
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Don't forget the stages of grief, it applies to all life changes not only loss of a loved one. We go through these stages with Illness and injuries..

http://psychcentral.com/lib/the-5-st...d-grief/000617
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