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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   TBI & PCS articles, research & other useful links (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/20875-tbi-pcs-articles-research-useful-links.html)

HeadStrong 03-18-2012 02:47 PM

Quote:

Originally Posted by pono (Post 240236)

Great Information! Thanks for posting it. :)

Mark in Idaho 03-19-2012 04:33 PM

Record of impact to the head suggested.
 
One expert suggests all impacts to the head be recorded in the patients medical records so that later manifestation of symptoms can be considered as possible PCS. Without this possible concussion in the medical record, the later manifestation of a cluster of PCS symptoms can be confusing to the doctor and patient leading to errant diagnoses.

The following International Code of Diagnostics are recommended for the patients' medical record.

2012 ICD-9-CM Diagnosis Code 850.9
Concussion, unspecified
A violent jar or shock, or the condition which results from such an injury.

2012 ICD-10-CM S06.0X0A Concussion without loss of consciousness, initial encounter

HeadStrong 03-27-2012 08:01 AM

Brain Injuries more visible with new technology.....
 
Here's another article about how New MRI technology can spot traumatic injury deep in the brain where standard testing doesn't reach. It makes the invisible injuries visible.


http://healthland.time.com/2012/03/0...rain-injuries/

EsthersDoll 04-08-2012 02:07 PM

GlassHead posted this in the forum and I thought it was too good not to sticky:

http://www.sciencedaily.com/releases...0329170220.htm

gasman 05-04-2012 02:22 PM

mTBI and HBOT therapy
 
New to this. May do it wrong. Treating mTBI for over 5 years in both civilians, and military blast victims (IED, RPG, mortars, etc) with HBOT. (hyperbaric oxygen therapy) with excellent permanent results. *edit*

Mark in Idaho 05-08-2012 02:55 AM

Anti-malaria drug contra-indicated for TBI subjects
 
If anybody with a history of TBI/mTBI will be traveling to an area with risk of malaria, mefloquine hydrochloride ((also known as Lariam or Mefaquin) is strongly contra-indicated. it's an orally administered medication used in the prevention and treatment of malaria. It can cause paranoia, hallucinations and other psychotic episodes. The US DoD states: Mefloquine is specifically prohibited in the treatment of patients with head injuries, and in particular, a TBI (traumatic brain injury). It is also contraindicated for patients with post-traumatic stress disorder.

There is some question that Sgt Bales, the soldier who went on a killing rampage in Afghanistan may have been treated with it prior to his episode. He had a documented history of TBI.

Eowyn 05-10-2012 02:09 PM

Disability Cards
 
If you want to get cards made to carry with you informing people about your condition:

http://www.pantheracards.com/

Mark in Idaho 05-10-2012 06:55 PM

These cards are a good idea. I make my own. They can be easily laminated with packing tape. I even make a pull tab so I can easily pull it from my wallet. Some people I know put the card so it hinges off their driver's license.

I find it is best to have multiple copies so you can hand the card to the person who needs to read it. I do this at TSA at the airport. With no need to take it back, there is a better chance they will read it all and refer back to it.

Mine says:

Please be patient with me. I suffer from a
brain injury that causes me to over-react
when confronted with shouting or someone
barking orders. I respond by getting loud.
Any assistance to help limit excessive
auditory stimulation is helpful.

I can easily print this in 12 pt type on a piece of paper that is smaller than a credit card.

I also have my ICE information on my cell phone. Emergency personnel know to check cell phones for ICE ( In Case of Emergency) information. Start the name as ICE plus 'wife Susan' or 'mother Diana, mil Debbie, ' ect. Emergency personnel know to check this right away.

This issue is an important one. One TBI survivor I know uses an iPhone/iPad app that will speak for him when he is under stress and struggling with word finding. It states the issue based on an icon he selects.

EsthersDoll 05-16-2012 11:14 AM

I know members here have already benefitted from vision therapy.

In Brainlash by Gail Denton PHD, she highly recommends Vision Therapy for mTBI survivors as well - it helped her recover from a mTBI a great deal.

Here is a link to NORA, Neuro-Optometric Rehabilitation Association, where you can find more information about Vision Therapy and find a practitioner: http://www.nora.cc/

And here's a link to a blurb with a statistic that 90% of mTBI patients who needed it and 100% of stroke patients who needed it benefit from vision therapy: http://www.ncbi.nlm.nih.gov/pubmed/18156092

"Oculomotor dysfunctions are among the most common abnormalities found in the brain-injured population."

Togeone 05-23-2012 01:13 PM

Sports Concussion Library
 
Hi,

A good source for info on concussions / pcs is: 'Sports Concussion Library'. (google it). It includes SCAT2 test and an 'Educational Module' if you care to inform a group about concussions and post-concussion syndrome:

Good luck to all.

xanadu00 05-24-2012 07:16 AM

I don't recall seeing anyone post a link to this site before. It has lots of helpful information:

http://www.ninds.nih.gov/disorders/tbi/detail_tbi.htm

Mark in Idaho 05-29-2012 08:18 PM

Limits of Computerized Concussion Testing, ImPACT, CNS-VS, etc.
 
A study published in the Journal of Head Trauma Rehabilitation analyzed results from almost 400 high school and college football players during the 2008-2009 playing season in Milwaukee, WI. A total of 28 players sustained concussions during the playing season. and were monitored using Quantitative EEG (qEEG) recording, balanced & body control systems, and cognitive testing.

The qEEG results showed that abnormal readings in the concussed players continued long after more traditional tests (balance testing and cognitive testing) for concussions came back "clean," These results point to more evidence that there is a "recovery window" in the brain as it heals from a concussion that might be significantly longer than most athletic trainers and physicians have traditionally assumed.

Here is a link to the abstract: http://journals.lww.com/headtraumare...Related.6.aspx

EsthersDoll 06-01-2012 01:06 PM

Here is an article that discusses life styles choices that enhance or encourage neuroplasticity and some choices that inhibit neuroplasticity.

I found it very interesting.

http://www.healio.com/Psychiatry/jou...ve-Functioning

Basically:

Increasing Activities:
Physical activity
Education
Social interactions
Intellectual pursuits
Cognitive remediation

Decreasing Activities:
Poor health
Poor sleep hygiene
Poor nutrition
Substance abuse
Depression and anxiety

Of course, take it with a grain of salt since it is written about the general population and not in regards to people recovering from brain injuries. (Don't overdo engaging in activities that are believed to increase neuroplasticity as they may cause set backs.)

But I see several things here that members of this forum usually engage in, when possible, to help their brains to heal or at least function as well as possible: good nutrition, good sleep hygiene, avoid substance abuse, reduce anxiety and depression, etc..

EsthersDoll 06-03-2012 09:46 PM

Here's a link to a great article that explains the fatigue brain injury survivors experience:

http://twilightinsight.wordpress.com...i-and-fatigue/

Scroll down (a few paragraphs) past "My Story" to find it.

You can find .pdf files at the bottom so you can print this article out in an easy to read format too! :D

windseeker242 06-08-2012 02:14 AM

Coffee/caffeine link to less dementia risk
 
Coffee/caffeine link to less dementia risk

http://www.upi.com/Health_News/2012/...?spt=fsb&or=hn

GlassHead 06-09-2012 10:42 AM

"What Is Chronic Traumatic Encephalopathy?"
http://www.brainline.org/content/201...halopathy.html

"Single Traumatic Brain Injury May Prompt Long-Term Neurodegeneration"
http://www.sciencedaily.com/releases...0718171401.htm

"Minor head hits can chip away at a football player’s brain — even when there’s no concussion"
http://www.minnpost.com/second-opini...%E2%80%99s-no-

-GlassHead

Mark in Idaho 06-21-2012 11:32 PM

Hormone imbalance after head injury
 
Lots of good links on this page.

http://braininjuryselfrehabilitation...balance-links/

Mark in Idaho 07-30-2012 08:32 PM

Attorney Gordon Johnson has put together some very good information.

The links are www.tbilaw.com

and www.subtlebraininjury.com

xanadu00 08-24-2012 11:09 AM

Here is a study on FL-41 tinted glasses as a treatment for light sensitivity:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2701948/

sospan 08-25-2012 04:31 AM

Can come across as a controversial review of PCS

http://www.talisconsulting.co.uk/pdf...ain_injury.pdf

Mark in Idaho 08-25-2012 03:10 PM

This article is a classic attorneys' 'hired gun' opinion that twists and cherry picks the research. She completely ignore the decades of work by Dorothy Gronwall, Ph.D. of New Zealand that shows the long term effects of concussion.

This is why PCS victims involved in litigation need to read the web pages of Attorney Gordon Johnson at www.tbilaw.com and www.subtlebraininjury.com .

windseeker242 08-30-2012 12:49 PM

Fish Oil Enhances Effects of Green Tea on Alzheimer's Disease in Mice
 
http://nccam.nih.gov/research/result...610.htm?nav=tw

windseeker242 09-07-2012 11:53 AM

Mushrooms!
 
http://www.mushroomnutrition.com/hericium-erinaceus

Mark in Idaho 09-07-2012 03:03 PM

This study shows than Lion's Mane mushroom extract enhances myelination.

http://www.ncbi.nlm.nih.gov/pubmed/12675022

ericalouwho 10-03-2012 09:20 PM

Thank you for the links!

Mark in Idaho 10-15-2012 02:34 AM

This is an excellent article about living with a brain injury.

http://www.brainline.org/content/201...u-to-know.html

andromeda 10-19-2012 10:06 AM

"Young offenders should be screened for brain injuries"

http://www.guardian.co.uk/science/br...oung-offenders

Mark in Idaho 10-29-2012 04:00 PM

Orthomolecular nutrition for brain dysfunction
 
Here are two link to the research and finding supporting orthomolecular nutrition. My vitamin regimen was first presented to me by a specialist in orthomolecular nutrition.

http://orthomolecular.org/index.shtml

http://orthomed.org/

If anybody has questions about orthomolecular nutrition, please start a new thread in the main forum with your questions and comments. Please do not discuss orthomolecular nutrition in this 'sticky thread.'

sospan 11-01-2012 01:55 PM

US navy presentation on balance problems after mtbi

http://www.dcoe.health.mil/Content/n...d%20Injury.pdf

peacheysncream 11-17-2012 04:53 PM

www.ninds.nih.gov/disorders/tbi/detail_tbi.htm

This is a great link from a British site all about TBI's and the research going on for it.

sospan 11-25-2012 06:58 PM

Hi I found this site http://happy-neuron.com/

It has some free tests that stretch and analyse your mind. It has a one week free trial.

When I tried the memory tests I got 50% of what my wife got - not heard the end of it yet.

The one that really threw me was the test where you have to identify a series of pictures of hands - and whether it is a left or right had. There are no intense pictures or sounds just simple photographs of hands in different positions- sounds simple? I did the test once and it overloaded my brain so much it took me 5 hours to recover.

Mark in Idaho 12-04-2012 08:03 PM

CTE research
 
http://abcnews.go.com/Health/cte-deg...7#.UL6cx6zheSo

xanadu00 01-11-2013 05:21 PM

iLs ("Integrated Listening System") is an emerging treatment used by OTs for treating various disorders, such as autism. It can be used to treat audio and visual hypersensitivity, information processing, and (I think) vestibular problems as well.

Here is a brand-new case study in which iLs was used to successfully treat someone who has had mTBI for 11 years:

http://www.integratedlistening.com/c...-brain-injury/

thedude58 01-16-2013 01:53 PM

More Useful Links
 
Good information about TBI and concussion.

A patient's perspective.
"Sixteen years ago doctors assured me that I would return to my old self in a matter of months. To date nearly 200 months have passed since that fateful day in 1982, and I have yet to be restored to my pre-injury splendor. At this point I am pretty much convinced that the effects of post concussion syndrome will plague me into my golden years."
http://www.headinjury.com/linktbinih.htm

I found the Tool Kit helpful as well.
http://www.headinjury.com/library.htm#toolkit

sospan 03-11-2013 05:43 PM

Short overview and symptoms list for Visual problems after a head injury

http://www.visionhelp.com/vh_braininjury_04.html

Mad Knitter 03-29-2013 05:24 PM

Thanks Chemar for the help and the links!! MUCH appreciated! :o)

Eowyn 04-01-2013 03:55 PM

Can Just One Concussion Change the Brain?
 
A Segment from NPR's Science Friday on Concussions:

http://www.npr.org/2013/03/15/174409...ange-the-brain

Dumpling15 05-05-2013 09:18 PM

So sad and lost
 
Thanks for the recommendations. I am really lost after 2 incidents of MTBI I feel like I am barely holding on. I feel very alone and sad. Can't find a neurologist to work with me because none of the want to deal with Motor Vehicle Accident victims. Each day is a bigger struggle. Just got on an antidepressant- hoping it will help.


Quote:

Originally Posted by BeccaP (Post 745801)
I've seen quite a few recommendations for Brainlash by Gail Denton, I did find it helpful.

I found two other books that I even thought were equally helpful information-wise:

Understanding Mild Traumatic Brain Injury (MTBI) Edited by Mary Ann Keatley PhD, CCC and Laura L. Whittemore (A Brain Injury Hope Foundation Publication)

Mild Traumatic Brain Injury: The Guidebook by Mary Lou Acimovic, M.A, CCC-Sp

They are well organized and formatted for people with issues like us. :winky:


anon22217 05-08-2013 08:35 PM

Great comprehensive resource
 
http://www.reactcanada.org/EN/resources/

anon22217 06-26-2013 08:51 PM

http://www.labryshealthcarecircle.co...n_workshop.pdf

Useful article on brain nutrition.


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