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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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09-10-2014, 02:33 PM
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So, even though I have a number of the symptoms you guys get, my injury is primarily acquired, and the disturbing symptoms upon waking and the accompanying dagger like pain/burning/tingling/itching which spreads through body is my biggest problem
I am seeing the Deep Brain Stimulation surgeon but more so that he could guide me in the right direction than do surgery. Appointment is on 19th. I will let you know how it turns out. NYU is supposed to be one of the best in the country with an excellent research department too. I'll see what they can do. |
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| "Thanks for this!" says: | Mokey (09-11-2014), music-in-me (09-10-2014), RAllen82 (09-10-2014), SarahSmile0205 (09-10-2014), underwater (09-10-2014) |
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09-10-2014, 04:44 PM
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Thats great!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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| "Thanks for this!" says: | Hockey (09-11-2014) |
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09-10-2014, 04:54 PM
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Thanks Sara. They want me to take a 3T DTI MRI, the DTI is good, some on this board have made a strong case 3T is no big deal
I am SO ready for relief after 9 years and I hope they can help me. |
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| "Thanks for this!" says: | SarahSmile0205 (09-11-2014), underwater (09-10-2014) |
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09-10-2014, 08:24 PM
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Magnate
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I'm so glad to see you out there, advocating for yourself and getting diagnostic tests done.
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| "Thanks for this!" says: | anon1028 (09-10-2014) |
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09-10-2014, 08:25 PM
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That's great! Hope relief is on the horizon.
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. 32 year old female Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes. Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself Getting better everyday thanks be to God! War Eagle! |
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| "Thanks for this!" says: | Hockey (09-10-2014) |
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09-10-2014, 09:22 PM
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yea for hope!!
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel. Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements. Just started vision therapy, waiting on some blue-tinted prism glasses. "You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou |
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| "Thanks for this!" says: | Hockey (09-11-2014) |
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