Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-12-2014, 02:54 PM #11
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Galaxy..mine has come and gone several times..it is with me now.pulsatile tinnitus...doctor says vestibular therapy might get rid of it..I've NEVER heard or read that...he's a very good, young, hip to brain injury guy, but I think he's wrong on this one...Feel pressure in left ear but so far no tinnitus...

Kevboy...I like your quote at the bottom of your message..
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Old 09-12-2014, 03:50 PM #12
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This references a medication that is used for tinnitus IF it is caused by vestibular problems...I will mention it to my doctor

http://www.ncbi.nlm.nih.gov/pubmed/21860977
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Old 09-12-2014, 03:57 PM #13
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There are posts regarding SERC throughout the forums here.
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Old 09-12-2014, 04:12 PM #14
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Thanks Lara. I never heard of it even though vestibular test showed central vestibular damage and I always mention Tinnitus. I am definitely going to read about it.
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Old 09-12-2014, 07:25 PM #15
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My has been there since accident. (3 years yesterday

It gets super loud when I have done too much ... Not just being i. Noisy places but thinking, reading. Talking with a friend, etc.

Different frequencies too. At least I shiuld have had some harmony bewteen my ears!!!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 09-12-2014, 07:31 PM #16
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Thanks Mark, its from a song called Hear Me Now from Hollywood Undead. Excellent band, I miss listening to them.

So this past week Ive been extremely sick. Kidney issues from my prolonged over use of OTC meds because my neuro is a tard. Anywho this has been the worst week for tinnitus ive had. No matter what its there. Today im feeling slightly better (midsection swelling has gone down slighlty, no vomitting, no cough, no fluid buildup in lungs, still a slight fever but at least I can hold down food n water) and the tinittus has eased up a bit.

Last edited by Bruins88; 09-12-2014 at 07:32 PM. Reason: Dumb brain
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Old 09-12-2014, 09:12 PM #17
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Quote:
Originally Posted by Galaxy1012 View Post
We haven't had anybody on board till now who says their ringing subsided a bunch after a year or two..I suppose it really is a permanent phenomenon no matter how better it gets overtime it doesn't leave you completely.
My brief bout of tinnitis might not count as major enough for this, but I lightly stepped into a door with my shoulder (didn't even hit my head) about 5 months post-injury, which perplexingly caused a ringing in my left ear that wasn't super loud, but definitely was irritating. It stayed with me for about a month, but gradually got better and now I don't hear it anymore.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 09-13-2014, 01:46 AM #18
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I use my tinnitus as a gauge for when I have done too much. It keeps getting louder as I over stimulate my brain. I almost always have loud buzzing at bed time and mostly none in the morning.
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Old 09-13-2014, 07:48 PM #19
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The tinnitus most traumatic brain injuries sustain is likely due to hearing loss or some sort of damage to the inner ear.

The best way to get this tested is an otoacoustic emissions test to test if your sensory hair cells are PRESENT or ABSENT.

Mild TBI are likely 50/50 chance of recovery. A lot depends on the degree of hearing loss and factors such as age.

If it is your first major head injury, without a skull fracture, your chances of Tinnitus going away are likely GOOD. However it may take up to 12 months.
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Old 02-16-2015, 09:31 PM #20
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I notice my tinnutis gets extremely loud if I've over done it. If I don't take brain breaks and think that I can do what I did before my accident and overdo it- it gets worse. The ringing is reminiscent of going to a concert and coming home with your ears ringing.

A question I have is does anyone also get headaches with the tinnitus and/or a an alteration in your consciousness (like getting spacey or feeling as if you're dehydrated and out of it, or inability to pay attention)? This has happened to me often since my injury and it is weird. I have to lay down and do nothing to get back to baseline. I'm curious if anyone else experiences this.
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I am a 33 year old female who is healing from Post Concussion Syndrome for 32 months after a cycling accident.

Therapy: Vision therapy to improve focal and ambient systems Neuropsychological testing and treatment Vestibular therapy Gabapentin 1800mgs/daily Clonazapam when needed

Natural Therapy and Supplements: Brain breaks every 2 hours Meditation GABA 1000 mcgs B12 1000 mcgs Niacin 3000-5000 mgs (this has significantly helped with brain fog, mood control, and depression) Nordic Naturals Fish Oil 2000mgs Potassium Multi V Glucosamine 5HTP Vitamin D 1500mgs

"Your True Self contains Every Possibility"
-Deepak Chopra
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