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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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09-18-2014, 12:18 PM
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I went to bed last night telling myself, I was going to get up and find a way to have a good day today. It is not happening.
These are the days I hate. I feel like I am trapped in a mind that does not belong to me. How do you be productive in a day, when around every turn or attempt....you are basically sabotaged? |
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| "Thanks for this!" says: | Lara (09-18-2014) |
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09-18-2014, 12:43 PM
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I am very sorry you are having a bad day...
Today is a bad day for me as well.. thinking about going back to bed! Took Immitrex for the first time last night and it did NOTHING! now I just want it out of my system...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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| "Thanks for this!" says: | Lara (09-18-2014), PCSJourney42 (09-18-2014) |
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09-18-2014, 05:14 PM
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I get up each morning hoping it is going to be a good day. but if its not I can still be productive - I stay home and putter around the house, the dusting - which in my former life I detested - gets done, the dishes and laundry too.
All at a very sedate pace - I find this kind of mindless work is easy on the brain and I don't feel so bad about losing a day if I can look around the house and see that it looks nice. But sometimes I have a day so bad with headaches and extreme fatigue that I just have to stay in bed and hope that tomorrow is going to be better. |
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| "Thanks for this!" says: | PCSJourney42 (09-18-2014) |
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09-18-2014, 06:05 PM
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I feel for you people. I've been driven back to bed far to often, either for pain, or weak, or bad night half sleeping with night terrors thrown in.
I'm going back to the young good neuro I am seeing and telling him figure something out. and at the least, TRY something out. A pill that is used for another illness but might work with this (Parkinson's pills have ben used in untreatable tbi cases with some success for certain issues). Or a pt regimen that just might work. Something. I' am not leaving his office without something anymore, unless he promises to go home and do research that night. And I'm not kidding. He's really new and excited about helping those tough cases so now is my time to act, if I can make it out the front door to his office  Sorry for the bad day guys. |
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| "Thanks for this!" says: | PCSJourney42 (09-18-2014) |
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Just a bad day
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