Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-18-2014, 09:39 PM #11
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So sorry you moms are going through this! I will say this though... I am 38, I have 3 kids of my own (that yes, I want to wrap in bubble wrap) and my mother still worries about me every time I get in a car... she is worried that one more accident will do me in... I wish I could make that fear go away...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 09-18-2014, 09:41 PM #12
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Quote:
Originally Posted by hockeymom1998 View Post
thank you mark. if there was not such an opportunity for my son right now in hockey, you are right. i would not allow him to play again - or at least until he was an adult living on his own making his own decisions. i appreciate your concern over multiple concussions. trust me i am concerned too. one thing i will not allow is for him to go back too soon. he has to be at pre concussion levels for a good while before he steps back on the ice.
I didn't know about his opportunity. I cant talk as I boxed in my twenties without anything on the line. If he does play again, make sure he promises to back down from any fights Hockey players are a tough bunch and I wish him a great recovery.
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Old 09-18-2014, 09:48 PM #13
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Hi All,

My 15-year-old daughter was in a bike accident on Sunday. No one saw what happened and she has no memory from immediately before or after, but people reached her quickly and I was there within 5 minutes. She was wearing a helmet but obviously hit face-first not the top or back of her head. She was very confused and nauseous at the time and I took her to the ER. Clean CAT scan and the doctor told her she had suffered a mild to moderate concussion.

She's a dedicated soccer player and has a big game this weekend, the ER doc told her she could play, but I've vetoed it. I've also kept her out of school all week. She's been taking it easy, doing lots of crafts, listening to music, but she still seems a little slow to me. We went for a very short walk today (200m - Day 4) and it seemed to me that her coordination was off and after about 5 minutes she complained that her headache was back. She's been tired all week too.

School is willing to give her the time she needs, but she is getting anxious about how much school she's missing and is very, very sad that I might not let her play out the rest of her season, it really is her passion. I'm trying to remain calm, cheerful, yet firm but gotta say, inside I'm freaking out! My husband is willing to follow my lead on keeping her home, but he's also concerned about how much school she's missing and concerned about denying her the thing that makes her happiest.

We're going to see a concussion doc on Monday and I'm hoping to get some better guidelines. On the one hand, I've been so thankful for the Internet, there's a lot of reputable papers out there that have given me the courage to stay strong about no play this weekend and no school this week. But at the same time, some of the information and stories are terrifying. Reputable studies that say that even one adolescent concussion can cause permanent negative changes to the brain. And what about a second? Even once she's healed, how can I let her go back to soccer or even biking? I just want to duct tape her in bubblewrap!! Can't say any of this to her so I'm saying it here. Thanks for reading.
I would suggest that you get school assignments for her to do at home, with the school knowing that it may take awhile for her to get it done. This to be done for two purposes 1. Let her attempt working on it, see what happens with her symptom wise. 2. Report your findings to the doc on Monday. If she complains of a headache or fatigue or other symptoms while attempting school work then there is your way to explain to her why it is so important to let this heal.

Keeping her from soccer- wise decision for now. You know your child, and if and when it is appropriate for her to return to her loved sport....you will feel confidant in it. (remember, the concussed patient isn't always aware of their tell tale symptoms)

Best advice: Better to take the side of caution.
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Old 09-18-2014, 10:07 PM #14
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MusicM,

Welcome to NeuroTalk. I can guarantee you that this is not her first concussion if she has been playing soccer for any length of time. The others just cleared that day. Plus, she has suffered an untold number of sub-concussive impacts heading the ball.

Hold fast to keeping her off the field. She should not be near a soccer field until she is at least 2 weeks without any symptoms, mild head aches included. It would be better for her to slowly start physical activity after 2 weeks of no head aches. If running or walking causes a return of head aches, she should stop. The next time, she should reduce her effort level by 20% until she can sustain that activity level without getting a head ache.

Once she returns to soccer, if she does, she should not head the ball the rest of the season. It is not worth the risk.

The statistics of long term consequences from heading the ball in soccer are not good. Pile that on top of her fall and she needs to be very cautious.

btw, The ER doc is clueless. You can not diagnose a concussion as mild to moderate like he did. Her amnesia, nausea, and confusion indicate at least a moderate level of injury. I would call it more severe than moderate. Her ongoing symptoms support a more severe injury. Many concussions take hours to manifest symptoms. I bet a computerized neurocognitive assessment like ImPACT would show a serious deficiency. Does her soccer team have a baseline from preseason ?

Missing some school will be minor compared to the delay in recovery a premature return to school can cause. The cognitive struggles can be a big challenge. It can be hard to recover from a few bad grades. Believe me. I lived through this scenario at 15-16 and again as a college freshman. My grades dropped by a full grade point.

Please stand strong. It is more than this season at stake. It is her future.

My best to you both.
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Old 09-18-2014, 10:21 PM #15
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Originally Posted by PCSJourney42 View Post
I would suggest that you get school assignments for her to do at home, with the school knowing that it may take awhile for her to get it done. This to be done for two purposes 1. Let her attempt working on it, see what happens with her symptom wise. 2. Report your findings to the doc on Monday. If she complains of a headache or fatigue or other symptoms while attempting school work then there is your way to explain to her why it is so important to let this heal.

Keeping her from soccer- wise decision for now. You know your child, and if and when it is appropriate for her to return to her loved sport....you will feel confidant in it. (remember, the concussed patient isn't always aware of their tell tale symptoms)

Best advice: Better to take the side of caution.
This is great advice. Thanks.
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Old 09-18-2014, 10:33 PM #16
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Originally Posted by Mark in Idaho View Post
MusicM,

Missing some school will be minor compared to the delay in recovery a premature return to school can cause. The cognitive struggles can be a big challenge. It can be hard to recover from a few bad grades. Believe me. I lived through this scenario at 15-16 and again as a college freshman. My grades dropped by a full grade point.

Please stand strong. It is more than this season at stake. It is her future.

My best to you both.
OK, gah, I know you're right, I just wish you weren't. Really helpful to read this though. Thanks.
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Old 09-19-2014, 08:49 AM #17
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OK, gah, I know you're right, I just wish you weren't. Really helpful to read this though. Thanks.
schools are extremely understanding. i would have her do no school work for two weeks. not even at home. the stress of her knowing it is there for her to do just makes her anxiety and symptoms worse. talk to her teachers. they will waive test and projects and just add value to the future ones she can do once she is better. she should have zero stimulus during this period. my son's injury looked so minor - he wasn't even diagnosised with a concussion at the time. no memory loss, no loss of conciousness, he remembers the exact play and everything before and after. the first few moments and days do not predict the longer term effect. i do not mean to scare you in any way. i know your daughter will be fine if she rests now. i just want to save anyone from what we have gone through for the past 4 months. please do not let her play tomorrows soccer game. she may say she is fine not realizing 1. that she may not be 2. the long term implications of a second impact. i know it is hard to take but she should not even go to watch. she should just be in a dark room resting. i had my son at a so called concussion specialists and they never told us this. it is only four weeks ago did i finally find a good doctor tell me this. my sons face when he was told he could do "nothing" would break your heart. but we are now following his advice. my son does not even step in a rink to watch right now. he is finally feeling some relief - although i don't want to jinx anything because i know how easily he can be set back. his school has been amazing. he started september with only one class. he has recently felt able to add another. we are hoping by mid october he will be able to add another and graduate with his class after grade 12. not to go on and on but please anybody reading this, after a head injury of any kind, rest your children. they are kids that want to be with their friends playing. they will always say they are fine.
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Old 09-20-2014, 12:13 AM #18
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Quick note, MusicM. I would protect your child as much as is physically possible. Soccer is the number one concussion sport for girls.

I have become overprotective since my own injury. I could not have ever imagined what hell this injury can be. I know a young girl who has been off school since Feb 2014....she is an athlete too and she is suffering. I didn't let my daughter continue in soccer this year...she is now still playing 11 yr old hockey but it kills me. I am hoping she will stop!
Good luck
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 09-20-2014, 11:10 PM #19
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I really appreciate all the advice and support on this forum! I've been trying to do my best to get her the rest she needs. We've been doing lots of handcrafts and audiobooks, and more importantly for her, she's had some low key visits from friends. She is definitely not playing this weekend, there's no way she'd be capable of anything like soccer right now. Even she knows that. But she had really wanted to go watch the game. But it's an almost two hour drive away and would be long day and I finally got both her and my husband to agree that she is just not in shape to handle it right now. She's better than she was earlier in the week for sure, but she's still far from well. I keep telling both my husband and her that the more she rests now the faster she'll get better.

We go to the concussion clinic on Monday. She's getting anxious about school but can't concentrate enough right now to even try any homework. I'm just trying to stay positive and patient.

Thanks again everyone.
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Old 09-20-2014, 11:33 PM #20
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Mark in Idaho put it succinctly. Please take this seriously. This is her brain we are talking about. I understand your sentiment. At first, I was devastated that I could not play a contact sport that I thought defined me. Then, I was frustrated that I had to stop working. Now, I have trouble having conversations among a host of other cognitive problems. I am laughing at how naive I was. This is scary stuff.
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