Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-28-2014, 01:53 PM #1
PCSJourney42 PCSJourney42 is offline
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Default Every day is worse...

Within 24 hours I went off the deep end. I cannot handle people. I think I am going to sign myself into the psych unit. I can't take any more of this.

I can't deal with all the stress people bring. They don't get it...my mind is not capable of figuring it out. I told my own daughter to take a hike. I think I have truly lost my mind
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Old 09-28-2014, 02:08 PM #2
cerebellarmaniac cerebellarmaniac is offline
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Hang in there and try not to take any of your anger out on your family.

The sad truth is that most people to no really get brain injuries, as sad as it sounds. Just like most of couldn't comprehend how debilitating seemingly benign things like dizziness and vestibular migraines can be pre-injury.

Does the added stress of being around other people worsen your symptoms? For me the added stimuli is too much for me to process and I feel dizzy, and have difficulty thinking when I am in a room with more than 2-3 people. For the last 19 months I have been spending most of my time alone and although it is not the most mentally healthy thing a person can do, it is better than feeling really crappy all the time.
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22.
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Old 09-28-2014, 02:13 PM #3
PCSJourney42 PCSJourney42 is offline
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My entire life has been destroyed by this car accident and these medical issues. I was a resident of a completely different state than I had my accident. I ended up stuck in the state that I had the accident because of all of the medical problems. I have no home of my own, people here, I haven't seen in over 25 years....and no resources.

My daughters dad whom we never got along, was letting me stay there for a period and he constantly screams at me because he says I am ignoring people or that this is all in my head. Now, I am stuck somewhere with no resources.

I can't think straight on a regular basis, let alone with someone screaming at me or belittling me.
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Old 09-28-2014, 02:34 PM #4
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I am so sorry to hear these struggles. Hard to imagine your life being flipped upside down in a matter of seconds. It's so familiar to all of us. We may have different symptoms but definitely one thing in common- we are trying to deal with this "new" life and the struggles each day brings.

I have been to the psych unit. You get meds and you get sent home, everything still there when you return. I am battling inner turmoil and feel I am on the brink of true insanity. My mind races constantly and I feel scared, nervous and lonely. Please don't give up.

We have to keep fighting this and use what good health we have left. I always have to tell myself it really could be worse. I know that's not comforting but I'm thankful that I'm not paralyzed and trapped with these thoughts. At least I'm able to move and try and do things to ease my mind. I hope you can find some comfort somewhere.
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Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
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Old 09-28-2014, 02:40 PM #5
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My doctor told me the other day, all of this instability is not helping my symptoms. But how do you become stable without a means too...
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Old 09-28-2014, 02:51 PM #6
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I'm so really sorry it's so difficult for you right now.
I hope my questions aren't too personal.
Do you have somewhere safe at the moment where you can stay?
I'm not sure if I'm understanding correctly but are you still staying at the house where your daughter's dad lives? If not do you have somewhere else to live? Is there a social worker or someone in your town or city who can help you sort out some of the practical day to day decisions for you. Your doctor should be able to help you find someone.

If you don't want to publicly post where you are, then you could do that via private message. There must be resources available to you in this type of emergency situation.

I'm sorry it's so hard.
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Old 09-28-2014, 02:58 PM #7
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I'm in Australia, so I'm not sure who would be a good contact for support there.

There is the
Brain Injury Association - click on State for resources
http://www.biausa.org/state-affiliates.htm

Most States will have a Protection and Advocacy section.
That's to sort out appropriate support and services.

I'm sure other members here would have suggestions of people to call if you need assistance.
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Old 09-28-2014, 03:08 PM #8
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Here are the facts: I don't qualify for public assistance as I do not have children under age 18. I can't get housing assistance, as I do not have a job to pay the difference. I can live in a homeless shelter. Social Security will expedite my case because of my circumstances.

Pretty much...I am on God's good Humor right now
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Old 09-28-2014, 03:50 PM #9
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What state are you in now and what state did you live in ?

Do you have any support if you could move back to your home state ?
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Old 09-28-2014, 06:40 PM #10
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I was at my parents house for a month, until this tuesday... I have been back home and everything is stressing me out... my headaches are raging ... I feel like a horrible mom... a horrible wife and a horrible friend... I am right there with you on the psych ward...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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