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Old 10-15-2014, 09:09 AM #11
goldenwillow goldenwillow is offline
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Thank you again for your information. I read through the mental side and find a lot that fits me.
The only medical records I have at this point are what diagnosis' I have from my ARNP, Neurologist and a pain Dr. whom each state, tbi, anxiety, depression, tinnitus, and a couple others. My neuropsyc eval is on the 30th this month and I think if I have more info (diagnosis) the better? As far as the work records, no I have nothing, however, my last employer, whom is an acquaintance, said when I left she felt I was "high functioning" but the detail aspects were failing. I think she would write a letter for me as a past employer. I do not think that any of my other employers would be so kind to do so.
I appreciate the PM offer and may do so when I have better questions (informed) to ask, do not want to waste your time
All of this is very overwhelming to say the least.
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Old 11-05-2014, 02:23 PM #12
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Had my neuropsyc eval last Thursday. Battery of tests roughly 5 hours long. I found I was exhausted around the lunch break, 2 1/2 hours in. The rest of the testing day was pretty tough. 1 month for out for my results.
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Old 11-05-2014, 10:30 PM #13
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It can be pretty tough to listen to your report. I hope your results are good. Just in case, you might want to take a friend or family member along for support. And, of course, we're all here for you. Many of us have been down that road and have some insight into how you're feeling.

My neuropsych report was devastating - but it was the best thing I ever did. It led to my getting cognitive and occupational therapies that addressed my identified deficits and advanced my recovery.
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Old 11-06-2014, 09:02 AM #14
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Thank you. I found myself very emotional through most of the testing process. I realized that I am very dependant on taking notes, using my fingers to count and how much I have depended on my husband for recollection of facts.
I am looking forward to my results. I wish they would not take so long to get to me, however, I am finding some relief in all this while I am waiting. Pieces of the puzzle.
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Old 11-14-2014, 08:19 AM #15
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Quote:
Originally Posted by Hockey View Post
It can be pretty tough to listen to your report. I hope your results are good. Just in case, you might want to take a friend or family member along for support. And, of course, we're all here for you. Many of us have been down that road and have some insight into how you're feeling.

My neuropsych report was devastating - but it was the best thing I ever did. It led to my getting cognitive and occupational therapies that addressed my identified deficits and advanced my recovery.
I am awaiting my report which I was told would take a month, now 2 weeks out. The past 2 weeks have been very difficult. I just want to know what my neuropsychologist found and hope to move forward. It feels overwhelming but I have felt that way most my life so what's another 2 weeks has been my mantra

I am also finding that I have been secretly suffering with my impairments since I was very young. It is somewhat validating having my diagnosis' . Known about PTSD for years but the TBI, new diagnosis since March. Not sure which injury in my life brought that on. My mother and I wrote a list of all my head injuries and loss of conciousness and it was quite long. However, the last MVA in September '08 sealed the deal apparently. Not one person in the ER at that time spoke about TBI (according to my husband and my paperwork). I had fractured C6, C7 and had 2 LARGE open wounds frontal and occipital that required many staples to close. Also a subarachnoid hemorrage as well.

I was blessed with pregnancy a month later (had made the decision to have a baby a few months prior to our accident) and into another unknown chapter of life. I had no idea that my pre existing anxieties were 10 fold due to my TBI, thought it was my prior PTSD and the new ones you naturally get as a new parent. Now that my child is going to school, I have some time to myself and now can breathe a bit. But with that, I see my impairments much clearer, sort of speak, and find I am saddened and relieved with all this information, and more is to come.

I guess I needed to vent, thank you. The support group in my area, meets once a month at 7pm to 9pm at night, weirdly, and I am toast at that time of day, usually
trying to bed the family down to sleep.
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Old 11-14-2014, 10:11 AM #16
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Quote:
Originally Posted by goldenwillow View Post
I am awaiting my report which I was told would take a month, now 2 weeks out. The past 2 weeks have been very difficult. I just want to know what my neuropsychologist found and hope to move forward. It feels overwhelming but I have felt that way most my life so what's another 2 weeks has been my mantra

I am also finding that I have been secretly suffering with my impairments since I was very young. It is somewhat validating having my diagnosis' . Known about PTSD for years but the TBI, new diagnosis since March. Not sure which injury in my life brought that on. My mother and I wrote a list of all my head injuries and loss of conciousness and it was quite long. However, the last MVA in September '08 sealed the deal apparently. Not one person in the ER at that time spoke about TBI (according to my husband and my paperwork). I had fractured C6, C7 and had 2 LARGE open wounds frontal and occipital that required many staples to close. Also a subarachnoid hemorrage as well.

I was blessed with pregnancy a month later (had made the decision to have a baby a few months prior to our accident) and into another unknown chapter of life. I had no idea that my pre existing anxieties were 10 fold due to my TBI, thought it was my prior PTSD and the new ones you naturally get as a new parent. Now that my child is going to school, I have some time to myself and now can breathe a bit. But with that, I see my impairments much clearer, sort of speak, and find I am saddened and relieved with all this information, and more is to come.

I guess I needed to vent, thank you. The support group in my area, meets once a month at 7pm to 9pm at night, weirdly, and I am toast at that time of day, usually
trying to bed the family down to sleep.
I hear you on the difficulties of being a TBI mom.

With a young family, between kid activities and bedtime rituals, my area's evening support group meeting just won't work for me. TBI is isolating. Being a TBI mom, well... As women, we are socialized to care for others and ignore our own needs - no matter how pressing. The number 1 rule of motherhood is MOMS CAN'T GET SICK.

As moms, it's really hard for us to get the rest and quiet so important to TBI recovery. On the plus side, the desire to do better for our children provides powerful motivation to keep striving to improve. Frankly, I was so badly injured, if I didn't have a family that needed me, I think I would have just given up.

While it's not the case for me, perhaps there are other young moms in your support group. If so, maybe they'd be interested in pushing for a different meeting time and/or forming a smaller subgroup that was more accommodating for those on the mommy track.

I had some PTSD after my mva. Are you being treated for this? In addition to traditional talk/desensitizing therapies, some interesting work is being done with medications and memory. I think there is reason for optimism on this front.
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Old 11-14-2014, 12:49 PM #17
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Thank you Hockey. I sincerely appreciate your kind words. I am not one to post on online forums, however, in need of support. Thank you also for the advice on seeing about other moms in my local group. I do feel the same as you that my family is what I am living for.
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Old 11-14-2014, 01:58 PM #18
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I suggest you schedule a light day of activities so you can be rested enough to attend the support group. Many of us have to do just that in order to have a late day or evening activity.
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Old 11-17-2014, 12:02 PM #19
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Good advice Mark. Driving at night bother my eyes typically but I have not rested prior to an evening outing. I typically avoid them.
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Old 11-17-2014, 02:41 PM #20
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Good advice Mark. Driving at night bother my eyes typically but I have not rested prior to an evening outing. I typically avoid them.
If you're having trouble with your night vision, speak to your optometrist. There are lens treatments that can help with that.

Yes, rest is so important - but so hard for a mom with young kids. Do you have friends and/or relatives that could give you some respite time?

Don't try to be "super mom," either. If you need to pop in a cartoon DVD, so you can get 30 minutes of quiet, it will not damage your children's future. What's important is to have a mom who is as healthy as possible.
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