Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-21-2014, 10:49 AM #1
WittsEnd WittsEnd is offline
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Confused Things I wish I'd known when I first got a concussion PCS

I am using Siri to dictate as typing is a challenge. September 2014 I was crossing the street at a controlled intersection after I confirmed it was safe. I see the walk sign, I am almost halfway across the street and then I feel this incredible pain. I couldn't wrap my head around the fact that transit bus just hit me. I was lucky,The police said if I was 3 feet prior it would've been a different story because it would around me over. It was turning left and connected with my body, through me 10 feet and I landed on my head on the roadway. I could not Get up and when I managed to feel the back of my head I had was covered in blood. I received nine staples. I have been made to feel stupid because people don't understand how I could get hit by such a large object and not see it. I believe the comfort of crossing out a controlled intersection and checking both ways made me feel secure that it was safe to cross though I did see the bus 30 to 40 feet down the road which gave me time to cross and most importantly I had the right away.

I have not received one sent to help with the treatments I have been able to attend from the insurance company for the bus. My doctor told me that the referrals he made have been questioned by the insurance company and to date no specialist have been seen . The insurance company says I should be better because it's two weeks to heal. My doctor try to send me to PCS specialist and told me that insurance has stopped the referral. How can that be? He also referred me to speech therapy because I stutter really bad and he referred me to a psychologist. Not one of these appointments have been okayed by the insurance company for the bus.

I have received over 50 pages of paperwork to fill out in the past two months which was a real challenge when all I could do was sleep because my head hurts so much. Light hurts noise hurts and if I go out I get really anxious around buses and now I cross the streets anywhere but at a satellites because then you're more alert and aware that you can get hit.

Is it normal for the call to hurt my head so much now that it's winter. Is it normal to be so angry and have fits of rage that are uncontrollable and instant. Then there are fits of crying it seems for no reason but I realize I'm so frustrated because it takes me so long to get anything done because my short-term memory is nonexistent. I have a book that I write everything down when I eat when I sleep because I can't remember and I have no hunger pangs.

Is this normal? I am so frustrated and yesterday I just thought why do I bother living like this with no treatments. I know I had an MRI scheduled to weeks after the injury and the insurance company canceled it! How can insurance companies go against a doctor that's been seeing you for years and knows you and knows you don't stutter and have anger issues and feel frustrated and anxious and now depressed?

I am no longer dealing with the insurance company as I told them all you have given me is a lot of work which I had to get people to help me with in the little bit of time that I'm awake when I need to focus on taking care of me and eating. I was totally broke in September and I'm not doing that again.

I need to know how to get better on my own because my doctor can't seem to push to get me to the specialist that I need to see and I can't handle it anymore I just want to live.
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Old 11-21-2014, 11:41 AM #2
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Quote:
Originally Posted by WittsEnd View Post
I am using Siri to dictate as typing is a challenge. September 2014 I was crossing the street at a controlled intersection after I confirmed it was safe. I see the walk sign, I am almost halfway across the street and then I feel this incredible pain. I couldn't wrap my head around the fact that transit bus just hit me. I was lucky,The police said if I was 3 feet prior it would've been a different story because it would around me over. It was turning left and connected with my body, through me 10 feet and I landed on my head on the roadway. I could not Get up and when I managed to feel the back of my head I had was covered in blood. I received nine staples. I have been made to feel stupid because people don't understand how I could get hit by such a large object and not see it. I believe the comfort of crossing out a controlled intersection and checking both ways made me feel secure that it was safe to cross though I did see the bus 30 to 40 feet down the road which gave me time to cross and most importantly I had the right away.

I have not received one sent to help with the treatments I have been able to attend from the insurance company for the bus. My doctor told me that the referrals he made have been questioned by the insurance company and to date no specialist have been seen . The insurance company says I should be better because it's two weeks to heal. My doctor try to send me to PCS specialist and told me that insurance has stopped the referral. How can that be? He also referred me to speech therapy because I stutter really bad and he referred me to a psychologist. Not one of these appointments have been okayed by the insurance company for the bus.

I have received over 50 pages of paperwork to fill out in the past two months which was a real challenge when all I could do was sleep because my head hurts so much. Light hurts noise hurts and if I go out I get really anxious around buses and now I cross the streets anywhere but at a satellites because then you're more alert and aware that you can get hit.

Is it normal for the call to hurt my head so much now that it's winter. Is it normal to be so angry and have fits of rage that are uncontrollable and instant. Then there are fits of crying it seems for no reason but I realize I'm so frustrated because it takes me so long to get anything done because my short-term memory is nonexistent. I have a book that I write everything down when I eat when I sleep because I can't remember and I have no hunger pangs.

Is this normal? I am so frustrated and yesterday I just thought why do I bother living like this with no treatments. I know I had an MRI scheduled to weeks after the injury and the insurance company canceled it! How can insurance companies go against a doctor that's been seeing you for years and knows you and knows you don't stutter and have anger issues and feel frustrated and anxious and now depressed?

I am no longer dealing with the insurance company as I told them all you have given me is a lot of work which I had to get people to help me with in the little bit of time that I'm awake when I need to focus on taking care of me and eating. I was totally broke in September and I'm not doing that again.

I need to know how to get better on my own because my doctor can't seem to push to get me to the specialist that I need to see and I can't handle it anymore I just want to live.
Do you have a lawyer? Without someone to fight for you, you may find, as many accident victims do, that you will receive little or no treatment. A lawyer will get you to specialists to document your injuries and keep the insurance companies at bay.

DO NOT trust anything the insurance company says. Every brain injury is unique. There is no way to know how much anyone will recover, or how long it will take.

Ask your doctor to refer you for a neuro-psych test. It's the best way to identify your specific deficits and target cognitive and occupational therapies that might help you.

Are you getting an psychological attention to help you deal with the anxiety, depression, anger issues and PTSD that so often manifest after a TBI?

Don't try to so this all by yourself; you need helpers and advocates. If you haven't done so, contact your local chapter of the Brain Injury Association and ask for assistance, support and guidance.
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Old 11-21-2014, 11:41 AM #3
Mark in Idaho Mark in Idaho is offline
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WittsEnd,

Welcome to NeuroTalk.

Your experience is quite common. It sounds like you need the advice of an attorney.

The MRI is not likely to reveal anything. It does not sound like you have symptoms that would require an MRI. They are usually done to protect the doctor form liability. Rarely to benefit the patient.

Do you have your own medical insurance ?
Where do you live ? Country, state, city.
Are you living alone or with family ?

The frustration and anger outbursts are normal to concussions. Your memory issues are also not uncommon. Taking notes is good.

Your doc was right in referring you to speech therapy and a psychologist. A neuro-psychologist would be best. A physiatrist MD (Physical Medicine and Rehabilitation specialist) would also be worthwhile.

Many of us have found the vitamin regimen at the sticky at the top to be helpful. I have updated the regimen at post 101 on Nov. 8.

My best to you.
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Mark in Idaho

"Be still and know that I am God" Psalm 46:10
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