Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-25-2014, 03:11 PM #1
Everwilde Everwilde is offline
Junior Member
 
Join Date: May 2009
Posts: 34
15 yr Member
Everwilde Everwilde is offline
Junior Member
 
Join Date: May 2009
Posts: 34
15 yr Member
Default Should I Move, or see another doctor?

Hi, Long-time reader/poster here, looking for input. I had my concussion over 7 years ago (am now 38), and still have a constellation of issues that come and go, seeming to correspond directly to barometric pressure changes (and the occasional bump). I can even be symptom free, and feel great as long as the weather is good, but then we get some unstable weather, and I am miserable. It can turn bad pretty suddenly, but is a little slower to get good again, as I am wiped out from the issues. Symptoms from greatest to least:

Head pressure (can last from days to months during bad weather)

Chills (body temp was 95.1 last week, hard to get warm even with coats on under blankets in 80* Room

Fatigue (Worse than mountain climbing)

Loud noises (right ear, can't be around my kids)

Classic Migraine (right side, last 1-3 days)

Slowed Reaction Time (driving, working, talking, etc)

Can't Focus / Blank Stare

Can't Handle Details / Small stressors

Hunched Posture (because I am cold?)

Slurred Speech

Head 'Static' (right side)

Hot Flashes/Sweats (Especially going to sleep at night)

Headache

Visual disturbance (Bright spots, also Aura with Migraine)

Insomnia (Can't sleep when barometer is rapidly rising or falling)

Tingling along brain Centerline

Occasional Nausea

Dramatic Dreaming (Plane Crashes, Shipwrecks, Accidents, Etc

I have seen quite a few doctors, neurologists, and a good NUCCA Chiro. One neuro told me back in 2007 that it was PCS, and it would be with me for life, and there was nothing he could do. He also said that I was having a continual acephalgic migraine - (a migraine without much headache). Another neuro said that nothing could be done and that I should move if I felt better elsewhere. I was not interested in the anti-depressant road, so I moved my family to WA, and got rid of 2/3 of my issues because the weather was better here.

Now I am contemplating another move to So Cal or AZ to minimize the rest of the symptoms. I have been to AZ for the past few winters, and it helps out tremendously! It turns around my health in short order, and I can't wait to get down there again next week. So, it seems that we have found a solution, but wondered if I should get a few more medical evaluations before we make another big move? We have extended family here, a nice place, a nice church, great friends, but it is all nothing when you are sick so much.

So, the question is: Has anyone heard of a good doctor/neuro (maybe research doctor?) that would be helpful and understanding of my condition (preferably in the western US?) I had a CAT scan early on that showed nothing, but have never had an MRI. Is it possible that there is just a damaged vessel or piece of tissue out of place that is restricting blood flow to the right side of the brain that could be surgically repaired? Has anyone heard of this? I asked a neuro, and he laughed at me, but he did not do any imaging. I am "self pay" so wondering if I should give the medical community another shot, or if it would just be a waste of money.

Sorry to ramble, but I am at another big cross roads.
Everwilde is offline   Reply With QuoteReply With Quote
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Move on-the how to Annie59 Myasthenia Gravis 2 11-13-2010 02:42 PM
My Move befuddled2 Bipolar Disorder 20 02-04-2010 09:15 PM


All times are GMT -5. The time now is 03:20 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.