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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-02-2014, 11:03 AM
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Let me start by saying that I thought that seeing a neuro-ophthalmologist would be a turning point for me, based on discussions with the brain clinic and OT.
Boy was I wrong. Appointment seemed like the biggest waste of time. Spent 3 hours waiting to be seen by someone before dr, he asked some questions and focused only on the 2 times I lost my vision due to stress. Said it was a type of migraine headache, except my head never hurt when this happened. Didn't even discuss any of the other problems that I have with tracking, focus, double vision, depth perception, blurred vision, sensitivity to light, aching/tired eyes, etc. They did less testing than the regular ophthalmologist that referred me did. Told me everything was fine. Frustrated as both brain clinic and OT said that I would likely need additional glasses (i've always been an eye glass wearer) for working at the computer, driving, nighttime, etc. Before TBI I would spend 8-12 hours a day at the computer, now I am lucky to spend that over the course of 2-3 weeks. Just sitting here typing this is giving me a horrible headache. Anyone have any experience or advice? Brain clinic dr didn't seem surprised that they were of no help. |
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| "Thanks for this!" says: | Hockey (12-02-2014) |
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12-02-2014, 02:05 PM
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I'm sorry. I had an almost identical experience and I have very debilitating issues with my eyes. After he gave a short check of my eyes he told me to walk. I lose all proprioception (knowing where my body is in space) when my eyes are asked to do much and so I started
falling all over. He told me I was walking "wrong". No **** Sherlock I have no idea where my feet are. I have gone to a chiropractic neurologist and a developmental ophthalmologist who have diagnosed what is happening but insurance does not cover them of course. Beyond frustrating. I think you just need to find the people who have the knowledge, but you would really expect a neuro ophthalmologist to be that person. |
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| "Thanks for this!" says: | Hockey (12-02-2014) |
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12-02-2014, 03:14 PM
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I had a similar experience last year. Really was expecting to get some answers for my eye problems, but all I got was a quick checkup and that my eyes will sort themselves out with time (this was a year after my injury).
I tried asking that maybe prism lenses or different tints might help, but the doc said it's a waste of time and $$. Now another year passed and although my eyes feel better than last year, I still have issues.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months. March 2013 - Thought that since most of my symptoms resolved I could start having fun again. Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before. June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback. November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback. 2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring. Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far. June 2014 - Two months of physical/visual therapy - no noticeable improvement. September 2014 - Diagnosed with Perilymph Fistula in right ear. November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing). January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work. Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens. |
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| "Thanks for this!" says: | lyndianne (12-02-2014) |
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12-02-2014, 09:11 PM
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KnockedOutMom,
Your frustrations are understandable but please try to not direct them at the doctors. If other doctors notice your frustration, it could work against you. There are migraines that do not manifest pain. What the doc said about those vision loss episodes could very likely be correct. "Brain clinic dr didn't seem surprised that they were of no help. " This could just mean they considered your symptoms a challenge to diagnose and are not surprised the neuro-ophtho could do no better. Plenty of us feel your frustration. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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12-02-2014, 09:23 PM
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Another option to try is a behavioral optometrist. These doctors often have practitioners who do vision therapy that may be able to help address some of the issues you are describing.
You can find referrals at http://www.braininjuries.org or http://www.nora.cc
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mTBI and PCS after sledding accident 1-17-2011 Was experiencing: Persistent headaches, fatigue, slowed cognitive functions, depression Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload Sciatica/piriformis syndrome with numbness & loss of reflex Largely recovered after participating in Nedley Depression Recovery Program March 2012: . Eowyn Rides Again: My Journey Back from Concussion . |
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| "Thanks for this!" says: | _Grace_ (12-04-2014) |
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12-04-2014, 03:10 PM
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Quote:
Can you expand on how doctors noticing my frustrations could work against me? |
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12-04-2014, 03:11 PM
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Quote:
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12-04-2014, 05:21 PM
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KOM
I have most of the vision problems that you do I started vision testing with a behavioral optomotrist while I was waiting to get into orthoptics clinic (referred by my opthomologist) My accident left my left eye knocked out of alignment so I ended up getting prescribed prism lenses for reading. That has allowed me to be able to read comfortably finally. My orthoptics clinic visits were covered by my provincial health plan, the behavioral optomotrist was not so you might want to check that out. |
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Frustrations with Neuro-Ophthalmologist
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