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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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01-04-2015, 01:09 AM
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Legendary
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My TBI Support group is great. A strong part is that after a group presentation, the group divides between injured and caregivers. Caregivers need the support of other caregivers as much as we need it, maybe even more. They get a chance to talk with others who understand our behaviors and struggles.
We have a FaceBook page but it is by invitation only to post comments. We are trying to use it for announcements but the monthly mailings and reminders of meetings were better. We have between 10 and 20 injured and usually more caregivers. We lost our funding this past year so we have to be tighter with the spending. We have three socials a year. A Christmas dinner, bowling party before summer break and barbeque for the fall restart. I suggest not getting overly complex until you have a good core group.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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01-04-2015, 08:26 PM
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Junior Member
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Thanks, Mark. What kind of presentations do you have? Do you have guest speakers, or members sharing their stories, or something else?
Diane
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What happened: I was on my Triathlon bike doing an easy ride through my neighborhood just a few weeks after completing Ironman Texas (2.4 mile swim, 112 mile bike, 26.2 mile run). A driver on a side street pulled up to a stop sign but didn't see me and pulled out in front of me. I tried to make a sharp turn alongside her but fishtailed and went into the side of her car with the left side of my body at about 17 mph. I walked away with a headache and a whiplash, a sore shoulder, and some bruises but was counting my blessings. I did several months of PT for my shoulder and neck, and I still had problems with headaches, neck pain, and dizziness. My PT insisted I be evaluated, and I was diagnosed with a concussion. I was still in denial, but then I transferred to a vestibular/neuro rehab specialist and learned that my eyes weren't focusing properly (nystagmus, convergence disorder). I was discharged from that PT on June 10, 2014 - exactly one year after my accident - because I was no longer making "significant progress." I did more PT for my neck/shoulder, and on Dec 16, 2014, I had shoulder surgery. I'm coming to terms with the fact that I might never do another Ironman, but I'm not giving up on returning at some level. |
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