Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 03-07-2015, 12:52 PM #1
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Yes!!!

I have the eye wobbles bad!

I asked my Neuro OT what the heck!

She who primarily focused on vision training with me told me that my focal and ambient visual systems were off. That my visual processing center in the brain was on overdrive trying to understand my environment. She had me do a lot of proprioception work to get my brain to learn my environment through my other senses -touch, stance, smell, hearing etc to give my eyes some peace. It's taken a lot of work but my wobbles are now only happening if I'm super fatigued, way overstimulated, or reading in lighting that promotes glare.

I noticed as my eyes wobbled I also lost hearing and would get out of sorts. Again my eyes were overworking trying to understand what was going on around me. When it happens now I 'think before look' I look at an object I know isn't moving, I use a slinky to walk around (as directed by my OT) and track objects as I walk and listen to the slinky (I've cracked up thinking a slinky really?!!). It promotes proprioception engages my hands and ears and allows my eyes to focus only on what they need to.

I can't say enough about NeuroOT vision therapy. Saved my sanity!

Good luck.

On the phone- is it your attention or hearing that goes? Are you closing your eyes and listening or are you looking around and talking?
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I am a 33 year old female who is healing from Post Concussion Syndrome for 32 months after a cycling accident.

Therapy: Vision therapy to improve focal and ambient systems Neuropsychological testing and treatment Vestibular therapy Gabapentin 1800mgs/daily Clonazapam when needed

Natural Therapy and Supplements: Brain breaks every 2 hours Meditation GABA 1000 mcgs B12 1000 mcgs Niacin 3000-5000 mgs (this has significantly helped with brain fog, mood control, and depression) Nordic Naturals Fish Oil 2000mgs Potassium Multi V Glucosamine 5HTP Vitamin D 1500mgs

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Old 03-07-2015, 02:12 PM #2
injuredbutrecoverin injuredbutrecoverin is offline
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dots: hmm interesting - i haven't noticed particular instances with regards to vision when my "wobbles" occur. i'm participating in vision therapy as well.. what do they have you doing for it? i haven't found it to be super high tech.. they basically have told me to just keep reading as much as my eyes would tolerate.

when i'm talking on the phone i'm just looking around and doing stuff as i would have been prior to being injured. it isn't the sound that overwhelms me because i can listen to music all day long (and often do to pass the time). it might be the talking? or maybe having to concentrate on the conversation? i'm unsure. it is somewhat my attention but i would say really i just start to feel fatigued.

msnyder: how did they diagnose the nerve palsy?
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Old 03-09-2015, 02:42 PM #3
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She did a full exam with a vision specialist.
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Old 03-18-2015, 12:47 AM #4
cerebellarmaniac cerebellarmaniac is offline
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I had a cerebellar tumor that affected my vestibular system. So I have eye control issues.

I experience trouble tracking moving objects (smooth pursuit) and reading. My eyes wobble. The docs tell me to increase the font size. However, that doesn't help because the wobbling still affects my attention. On some days unfortunately my issues are a lot worse than other days.


I have found vestibular rehab has helped somewhat. Eye teaming exercises helped the most in my opinion. Google sterograms (aka magic eye) and cross view (cross eyed eye exercises). Work on those exercises if you can. That being said, time is your best aid.

Two years post-op these issues still plague my life. My life kind of sucks. Luckily I've been experiencing more good days lately.

If you are already able to drive and do a moderate amount of reading (30minutes plus a day) this bodes well for your recovery. Keep doing what your doing, but don't overwork yourself.
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22.
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