[MVTBI]

Hey Everyone,

Just wondering how everyone on here copes with the roller coaster good day bad day cycle, I am at a loss as last week I had what I would call a great day, besides vision and inability to think all that clearly I felt well. However it is almost always accompanied in the following days with some really not great days.


I do my best to limit things that provoke symptoms (exercise, computers, loud confusing places, driving etc etc) but lately I have been feeling like this is a never ending cycle. On that day I felt like maybe I was turning the corner, heading my way out of this, or at least to a better place maybe not to 100% but I was hopeful.

Also being very active before with hockey, weights , work.. I never really felt bored and had a challenge, I am looking for new challenges that I can work towards anyone have any recommendations, I like to be competitive and improve things but hard to find something to fill those gaps!

Anything helps Thanks in advance

[AndromedaJulie]

Hi MVTBI,

I feel that way too. And when I get on a run of days when I feel better, I start to think it is a true trend, so I get an expectation. I increase my activity. I think, oh, I can do this now. I can do that. Which makes me feel better about myself. Unfortunately, when the roller coaster goes back down, so does my self esteem. I need to work on not having my mood change so much with my good days and bad days.

I hear a lot about how doing a certain amount of cognitive effort is good for the brain. But for me, I find it hard to judge (and restrict) that amount. Once I start going, I find it hard to keep it low level, especially since I like to do creative projects that can get large and those have had to go by the wayside for now. I do try to get on the exercise bike daily. Sometimes I just say that I will clean up one room of the house. Woo hoo. Not what I would call stimulating.

I wish I had some suggestions for you, but I do know how you feel.

Be well
Julie