Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-01-2015, 04:19 PM #1
Granny Aggie Granny Aggie is offline
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Join Date: Mar 2015
Location: Durham. England
Posts: 9
8 yr Member
Granny Aggie Granny Aggie is offline
Junior Member
 
Join Date: Mar 2015
Location: Durham. England
Posts: 9
8 yr Member
Default Involuntary movement any advice please?

Hello I'm new to this site and in England. A brief history of what brought me here. I've worked for over 30 years with children with severe learning and behavioural difficulties, a job I loved. Over the years I have had so many punches and head butts it's difficult to count. Usually an OUCH! A hug and a paracetamol was all I needed to mend my head.

However, 3 years ago a pupil threw a rock at my head and to cut a long story short I was diagnosed by a Consultant Neurologist with Post Concussion Syndrome. I returned to school on a phased return 5 months later. Unfortunately I was punched in the same right temple area by another pupil which made my symptoms much worse.
After a years abscence I was still too ill to return to work and was heart broken when I was dismissed on I'll health capabilities grounds.

I'm 60 years old and reluctantly beginning to enjoy my forced early retirement, doing things I never had time to do when I worked full time. I've also just become a Granny in training to the adorable Katie Woo Hoo!

Please take comfort if you are beginning this PCS journey that it does usually improve. I've learned to live with PCS and the most important lesson I've learned is not to fight my symptoms. I listen to my body and rest when I need to and on the days I feel I could climb a hill I only go up half way. The view is still incredible

The thing I would love some advice on is how to deal with the involuntary movement I have developed about a year ago. When I lay my head down to sleep and my brain begins to switch off I begin to have body jerks or in neurologist speak 'functional neurological movements' la de dah . Has anyone else experienced this?

Keep smiling. Life is a gift.

Granny Aggie X
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