Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-19-2015, 10:53 PM #1
injuredbutrecoverin injuredbutrecoverin is offline
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Default fatigue

does anyone else suffer from terrible fatigue as a result of physical or mental activity? any tips on overcoming this?
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Old 04-19-2015, 11:40 PM #2
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Learn to moderate your activity and be sure you are getting good restorative sleep. Take frequent breaks, especially when doing mental work.

If you don't learn how to moderate your efforts, further improvements will likely be difficult.
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Old 04-20-2015, 08:47 PM #3
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Yes! No matter how much I want to do....fatigue always wins.....
Tried amantadine...it was good for me but caused a bit of insomnia. Started concerta two days ago for fatigue....no change yet!
This is a good resource:
http://www.brainline.org/content/201...r_pageall.html
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-20-2015, 09:47 PM #4
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Injured,

I still haven't been able to ascertain if I am physically tired or mentally....I have to take breaks to keep going now.

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Old 04-21-2015, 12:49 AM #5
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I forgot to mention in my earlier post. Anybody struggling with extreme fatigue, especially if it manifests as sleepiness should consider whether they are sleeping soundly and breathing properly during sleep. Interrupted sleep and sleep apnea can cause fatigue and also can seriously delay recovery.
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Old 04-21-2015, 09:54 AM #6
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Mark,

How do you know if you have it? I am tired of sleep problems, I slept 1 hr in 2 separate 1/2 hour segments last night!

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Old 04-21-2015, 12:09 PM #7
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Quote:
Originally Posted by injuredbutrecoverin View Post
does anyone else suffer from terrible fatigue as a result of physical or mental activity? any tips on overcoming this?
I do. If I push through it eventually my brain and body quite literally shut down on me. I feel like I need to lay down and then it's lights out for 11-12 hours. Other days I still have difficulty falling asleep and my sleep is often broken.

I know others on here take regular brain breaks too and although I've read about it, I am very inconsistent at doing it myself. I just saw a neuropsych last Friday and he advised me to try to "head things off at the pass". Regardless of whether I feel I need it or not, I'm to take a 10-15 min. break every hour and a half of a physical or mental activity. Just walk away from what I'm doing and close my eyes for a bit.

I haven't put it into practice yet but I hope it will help. I can usually feel when my filters are breaking down and sometimes I take a break and other times, my stupid stubborn nature pushes me to keep going and my filters shatter. My family ends up seeing me at my worst and I feel like crap mentally for my behavior or what comes out of my mouth. I know...stupid to push through!

I think I'll start heeding the doctor's advice!
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My story in a nutshell:
Wife, mother of 4 and new teacher. Have had a few childhood knocks, snowboard falls and 2 major MVAs.

Hit top of my head pretty hard on a cabinet door in July, 2014, then our old pantry door broke off its hinge and hit me in the left temple on Sept. 21st, 2014. Maybe my 8th or 9th concussion. Apparently, one knock too many.

Currently dealing with most of the "normal" PCS symptoms. I'm trying to heal and get back to a normal life and my teaching job.

Things are far too bright and noisy everywhere. I yearn for a good night's sleep.

Undergoing cognitive and vestibular therapy. Hopeful for great progress and healing!
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Old 04-21-2015, 12:33 PM #8
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There is an old axiom.

It is better to remain silent and be thought a fool than to speak up and remove all doubt.

I have a PCS version.

Better to take a break and be though of as weak and injured than to push through and remove all doubt.
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Old 04-21-2015, 12:53 PM #9
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Ugh...the fatigue. Find your level of activity that you can do without causing symptoms to flare and make sure you schedule breaks. Make sure you are eating enough, and I can't agree more about getting good sleep.
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Old 04-21-2015, 05:03 PM #10
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I learned that I was not breathing well during my sleep from my wife. My changes in breathing disturbed her so much that one night she stayed up and observed. I stopped breathing 16 times in one hour.

I had already experienced times when I stop breathing or hold my breath while awake. This happened during an EEG test when i was supposed to sleep. Every time I relaxed enough to start to drift off, I would start gasping for air. I realized I was breathing consciously/voluntarily rather than subconsciously/involuntarily. It appears my problem was do to upper neck inflammation that was causing autonomic nervous system dysfunctions.

You can buy or some places rent pulse-ox alarms you connect to your finger tip. Of your Ox level drops, an alarm will wake you. The rental systems usually require a doctors script but they also have better recording features. You can download a night's sleep and pulse-ox recordings to your computer by USB.
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