[Mystical]

10 months of PCS. Apparently, my daughter is a prime candidate for vision therapy as she was diagnosed with convergence insufficiency. She had to rest big time just after the examination and testing. I can only imagine how hard the therapy might be...

Did anyone try vision therapy with a neuro-optometrist? Does it really help? She is seeing so many therapists at the moment.... I had to drop some or decrease appointments as it gets too much.

It was also suggested that she sees an ENT for inner ear testing. She rested a lot this summer, but didn't seem to improve much. She still has brain fog, head pressure, fatigue, and sensitivity to noise. It's so hard seeing your own child suffer like this...And it's worse when all the medical experts remind me that most improvement happens in the first year.

[MVTBI]

I was diagnosed with the same thing, causes me to see double from time to time and everything does look a little off, also I think contributes to the motion sensitivity. I was prescribed a home vision therapy program and have done it only a few times as it has brought symptoms back for me that were gone for months, I was getting back to a normal life (ish) and it caused me a little distress so at the advice of my brain clinic and pt and psych I have backed off.


I plan to take it up again but for now I am focusing on other areas of my recovery. Your experience may not be the same, as with most concussions it never is the same, I think it really taxes the system when it is not working well, So I would say try it but if its causing to many problems adjust the program, or take long breaks. IT is harder than it looks or you think it could be.

Best of luck

[Mark in Idaho]

Mystical,

Please don't get stuck on the one year comment. There is no science to support it. A better time frame is quite simple. The brain heals when you find the kind of help the brain needs to heal. We have had quite a few here on NT who struggled for a year or more with no progress than finally found what helped and started improving. For many, it was slowing down their life and getting the proper combination of rest and activity.

Therapy helped some but there was not a one size fits all therapy. For some, vision therapy made a breakthrough. For others, prism glasses. It just depends on the individual.

What kinds of therapy is your daughter getting ? How often ?

Did you get the B-12 patches ?

Have you had any blood work done ? B-12, folate, magnesium, D-3, hormones, etc ?

[Mystical]

Originally Posted by Mark in Idaho

Mystical,

What kinds of therapy is your daughter getting ? How often ?

Did you get the B-12 patches ?

Have you had any blood work done ? B-12, folate, magnesium, D-3, hormones, etc ?

Thanks for words of encouragement about the 1 year cut off. I was bummed about that. It made me think of what else I haven't tried yet, and why it was taking so long. And with school coming up....

She sees a neuropsych, OT, and therapist once a week. Regular doctor every 2 weeks.

The B-12 patches irritate her skin, so its back to capsules. Maybe I will try a spray next time.

Pediatrician doesn't recommend any blood work like spectracell testing. She doesn't think the data are accurate. I can always get test from a naturopathic doctor but insurance doesn't cover that.

[Mark in Idaho]

She does not need a Spectracell test. B-12, folate, D-3 and such are common blood tests. Thyroid testing is also worthwhile.

What are the NP, OT and therapist (PT ?) doing and having her do ?

Seeing a regular doctor every 2 weeks is overdoing it. Her recovery can not be measured in 2 week increments. In 2 weeks, she might just start to show a trend. It takes a month or more for a trend to be confirmed. Plus, what can these doctor visits even do to try to quantify her condition ?

In my view, she may be getting over-treated.

Forget about school coming. Do not set time goals. Let healing happen as it happens.

Find some simple activities for her to stay busy with to limit boredom.

What does she do all day ? How is her sleep ?

If she is going to undergo vision therapy, cut back on something else. Vision therapy may help.